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Posted on Jul 17, 2022, 2:13 am
#11

As far as I know, CLL surgery by less skilled doctors is prone to deformity(valgus-flexion deformity of the tibia, varus-flexion deformity of the femur).

Circle type frames can easily correct the deformity, but it may be difficult with monorail.

I don't know if this deformity is severe or not, but if you want treatment, I think you can have a corrective surgery after consolidation.

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Posted on Jul 17, 2022, 3:22 am
#12

Quote from: maison on July 17, 2022, 02:13:03 AMAs far as I know, CLL surgery by less skilled doctors is prone to deformity(valgus-flexion deformity of the tibia, varus-flexion deformity of the femur).

Circle type frames can easily correct the deformity, but it may be difficult with monorail.

I don't know if this deformity is severe or not, but if you want treatment, I think you can have a corrective surgery after consolidation.


if this turns out to be what it looks like that would be another example of shocking incompetence by the usual suspects.
you are completely correct, a full circle frame like TSF is needed to correct this, however with the osteotomy being so far up the femur perhaps a bone graft would be a better solution

giotikas would be competent enough to fix this for rafi if it comes to this

hear rafi? giotikas is your guy if you need additional surgery

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Posted on Jul 17, 2022, 6:06 am
#13

Quote from: boklecrt on July 16, 2022, 10:59:45 PMrafi you need to ask your assistant for your presurgery xrays, they are your property, do not be scared of their bullying

so now, you get your pre surgery xrays and then write emails to these doctors

1 assayag
2 giotikas

and politely ask them to take a look at your xrays and share their opinion and what can be done about it right now when youre still lengthening

if this ends up as bilateral misalignment + 4cm more of bone that would turn into femoral valgus deformity

or it coulr turn into nothing at all, but who’d want to take that chance

also, dont upload screenshots of your camera roll before cropping your xrays, we see your face down in the camera roll



Looks like my xray before operation are lost. we might lost them in hospital or ambulance that tool me the the place im staying in during lengthening. i was in so much pain that trip, didn’t though of any of my belongings if they are with me.


Regarding uploading photos, luckily thats no-one even related to my story. but thank you for noticing and letting me know . i dont have a problem showing my face or telling my true experience with them after external fixator is removed. i even consider joining one if cyborg for life lives for that.

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Posted on Jul 17, 2022, 7:55 am
#14

also i seen similiar x rays with not such a clean cut on AFA instagram and they advertise it as normal

https://ibb.co/fQQn7qw
https://ibb.co/JdzT3Mn

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Posted on Aug 1, 2022, 10:17 pm
#15

Here are my initial x-rays for anyone who asked , finally got them
https://ibb.co/dM1fJX3
https://ibb.co/kDXgyTd
https://ibb.co/V06sv5c
https://ibb.co/dLwXh7S
https://ibb.co/sv5ytgp
https://ibb.co/FVpMsM3


and here are x-rays taken today

https://ibb.co/ZGvqwWM
https://ibb.co/BBv09gR
https://ibb.co/W2H2gML
https://ibb.co/JFmbkz4

the measurements are off and done by myself in different points as by my bone cut is not straight from beginning. Pend bones cut/angle from beginning (which is my first concern)

i willing to get any medicat advice from anyone. idea opinion is very welcomed. thank you!


On external device i’m supposed to be 3.4 cm tales (minus 0.5) which they told me was the device start at beginning but i didn’t checked at the time.


I have very good flexibility on my left leg but only 90 degrees bending on my right

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Posted on Aug 4, 2022, 12:25 am
#16

Quote from: we.live.once on July 16, 2022, 05:15:23 PMit looks like there is a lot of place in your bones, maybe the holes were drilled to big? Or  your bones inside is not strong enough
LON Femur - broken bones not straight


It's looks like they drilled too much to install the nail but during installation they misplaced the nail..

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Posted on Aug 4, 2022, 4:20 am
#17

Quote from: rafi2296 on August 01, 2022, 10:17:35 PMHere are my initial x-rays for anyone who asked , finally got them
https://ibb.co/dM1fJX3
https://ibb.co/kDXgyTd
https://ibb.co/V06sv5c
https://ibb.co/dLwXh7S
https://ibb.co/sv5ytgp
https://ibb.co/FVpMsM3


and here are x-rays taken today

https://ibb.co/ZGvqwWM
https://ibb.co/BBv09gR
https://ibb.co/W2H2gML
https://ibb.co/JFmbkz4

the measurements are off and done by myself in different points as by my bone cut is not straight from beginning. Pend bones cut/angle from beginning (which is my first concern)

i willing to get any medicat advice from anyone. idea opinion is very welcomed. thank you!


On external device i’m supposed to be 3.4 cm tales (minus 0.5) which they told me was the device start at beginning but i didn’t checked at the time.


I have very good flexibility on my left leg but only 90 degrees bending on my right


Perhaps your nail diameter was thinner than the medullary canal at the osteotomy site, resulting in the varus deformity.

If you are concerned about this deformity, you should talk to your doctor about correcting it.
You could try emailing someone who seems to be a reliable doctor. For example, Dr. Paley may reply to you via email.

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Posted on Aug 4, 2022, 1:27 pm
#18

Quote from: maison on August 04, 2022, 04:20:58 AMPerhaps your nail diameter was thinner than the medullary canal at the osteotomy site, resulting in the varus deformity.

If you are concerned about this deformity, you should talk to your doctor about correcting it.
You could try emailing someone who seems to be a reliable doctor. For example, Dr. Paley may reply to you via email.



I have been thinking about rafi's situation a lot and can't imagine how this can happen in the first place

You might have a point

So buldu reamed the femur with a certain diameter tool and then inserted a thinner nail than the specifications of the newly rimmed canal? Maybe his team was unprepared or in a hurry so they grabbed whatever IM nail they had at the time of the surgery

Then they affixed the monorail on top near the hip but here is where I have an issue understanding, do you think that when he pushed with the powerdrill on the bottom femur the femur moved just a little bit and misplaced the nail inside?

And then when the monorail is attached no other adjustments can be made? I think you wouldn't be able to treat misalignment with an improperly installed monorail since it's not like a TSF frame where you can turn the frame in multiple axes

I hope rafi asks assayag or giotikas and tells us their opinion

I suppose the misalignment can be treated post consolidation by additional surgery where the surgeon would need to create a wedge in the bone and re-align it. Seems like a quick solution that can be employed in a single surgery

Sucks that rafi might have to do more surgeries and have even longer recovery, hoping assayag or giotikas have a different take here

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Posted on Aug 4, 2022, 8:30 pm
#19

By the way whats your nail and fixator brands?

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Posted on Aug 4, 2022, 9:38 pm
#20

Ortovia Eksternal Fixators is the one that i have. my doctor says that during distraction the bone will align itself. if not , what would be the disadvantage? at the moment the only problem i have is that i can’t really measure how much i been lengthen due to that angle cut.

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