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Posted on Aug 19, 2021, 11:52 am
#1

I'm planning on getting LON next year in Istanbul with Dr Halil Buldu, and I had a few questions.

Having spoken to a few people about the process, most of them advise against doing LON on the femurs as it can affect the soft tissue and cause some serious issues later on in life.
Instead I've been told that LON on the tibias is a lot safer.

However, the 6cm of safe lengthening that LON on the tibias offers isn't as appealing to me as the 8cm that LON on femurs can offer.

So I wanted to know, is there anyone who has had this procedure done on femurs, and what can you say about the process?

Are you happy with the result? Are you walking naturally again after having the procedure done? How long did it take you to get to that point if so? If you could rewind time, would you change your decision to do the femurs?

People who chose tibias over femurs please do chip in too

Thanks a lot in advance! LON on Femurs LON on Femurs

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Posted on Aug 20, 2021, 2:26 am
#2

Most of the people who go with Buldu seem to choose LON on the femurs over tibia.

I've read a lot of them already, but I can't seem to find any diaries or anything about how people's movement/gait/legs in general are after a year or so of LON on the femurs.

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Posted on Aug 22, 2021, 9:52 am
#3

Your English is fine LON on Femurs

Yeah that's something I'm worried about too.
With the LON procedure, it's as if people stop caring to update the forum once they've had it done.

I also asked a few surgeons (in Turkey) about returning to natural walking, daily activities, ROM etc. and they sort of brush over it.
Saying you'll be fine if you do the PT, blah blah blah, here's ONE video of a successful recovery ...

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Posted on Aug 22, 2021, 9:57 am
#4

My bad, most of these people were surgeons.

I've seen maybe 2/3 videos of people walking after removal of the EF and a little time has passed (3 months was the longest I think), and they all walk in an unnatural way.

If I go ahead with the procedure, I'm thinking of making an in-depth diary of the whole process (similar to how PerfectBody did his), but I'll give updates every year/half year.

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Posted on Aug 23, 2021, 12:18 pm
#5

Yeah, that makes a lot of sense.

I think I'll likely go ahead with the surgery, but I'll be sure to update it yearly or whatever (until I'm back to normal again) for future prospective CLL people.

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Posted on Aug 25, 2021, 11:37 am
#6

7/8cm, and because this is such an expensive procedure, I really want to get the most lengthening within a safe threshold.

I've heard the unofficial max safe lengthening for tibias is about 6cm

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