Hey, it's been a while, happy new year to you, what's your progress as of now? How are you holding up? Have the team said anything about walking so far? Do they allow to walk once or twice a day during lengthening?
Kilokahn, had something to ask you as well, you said once that your running stamina has decreased from what it was pre surgery, what did you mean my that? Having some discomfort while trying to run, considering it has been 10 years already, what kind of discomforts do you feel and did some of them go away with time? What kind of restrictions do you still have, and would love to know some details about your recovery, 2 years post surgery.Would be expecting your reply, I know I'm annoying you, and I'm extremely sorry.
I won’t walk until the end I guess, but it depends on my x rays which I go tomorrow to do, if my bone is ok they let me maybe stand/walk a little but not more than that.
Pain wise I’m ok now, feeling the muscles stretch and it’s not comfortable, at night is the worst because u wake up lots of times because of discomfort.
Btw I had pinsite infection, on my ankle and that was the most terrible pain I felt in my life, every movement hurts like hell, no sleeping at all! Every time I tried to go to sleep, my muscles flinched just before falling asleep and the movement made me just scream in pain and wake up, just like horror movie so I didn’t have sleep for almost two nights, but I took my antiobiotics and ultracet pain killer and I was ok the night after, right now throughout the day I’m not taking any pain killers, at night I take Pregablin as the doctor told me but in few days It will be done.
Right now I’m supposed to be 2cm on left leg and 1.625 cm on my right, tomorrow I will know better after the x rays, I hope the measurements will be the same because I really want to get those frames off my legs 😂 and go back home of course
I'm very sorry to hear that you got pinsite infections, but how did you get them in the first place? I thought pinsite clearing clears away the chances by a lot. And yeah I certainly feel you when you say you want to get rid of those frames and go back home, it'd be very great if you'd attach some pictures of your x ray, and your progress is pretty solid, just around 3 cm in one leg and 3.375 cm in the other is left, I'm sure you'd cross this hurdle too, and I hope you experience less pain for that, btw, you said "I might be able to stand" So since 4th of december, you haven't stood up a single time, post op? And those medicines and that you took to ease your pain, were they given to you by the team or was it an out of pocket cost? Assuming you to finish lengthening on your 80-90th days in both legs, you'd try walking then, just as you said, please update when you start walking with assistive devices. My best wishes
So I had my follow up last week, and the team measured my device distraction and it was 1.88 cm on my left and 1.45 on my right, but the actual length that was measured in the x rays was 1.5 cm on left and 1 cm on my right so it’s a less actually.
Right now i supposed to be 2.15 cm left and 1.65 cm right, I just can’t wait to get to 3 cm, because when Il get there, the end would be closer than the beginning and it’s a big milestone for me.
I was able to stand, most of the weight on my upper body as they told me to not weight bear on my legs because of compression, so I was practically floating almost 😅 with no weight on my legs/very small weight bearing.
Almost everyone get pinsite infection from my understanding, it’s not uncommon you just buy medicines from your money with prescriptions they give you and it’s usually passes in a few days, the pain from this pinsite was terrible and I slept like 3 hours total in 2 days due to the pain but it settled down and I just forgot about it.
Right now I feel pain in my bones, I feel the discomfort from the fixator and just feel overall stiff, every movement is just hard and it’s pretty bad to be like this for another 50 days, also the pinsite cleaning everyday definitely makes it a lot harder because the pins gets so painful when u scrub them everyday, but that’s orders from dr parihar and I’m not playing with that.
Next week I will have another follow up and I hope the x rays will say that I’m at least 2.8 cm on left and 2.3 on right
Hi how are you doing as of now? How's your physio going on? Did the team ask you to take a few assisted steps? How do they counter not losing of muscular ability required for walking over such a long period? How's your pinsites now? Hope they are better than before and what's your length in both of your legs, as of now?
The protocol of not losing muscle is the same with everyone-pt, even tho I was permitted do stand and take 2 steps, 3 times a day.
My pin sites are better now, slowed down to .75 on both legs, my left is currently 3.15 cm and right is 2.7 cm, I’m planning on lengthening for 4 more weeks and then stop and schedule removal surgery, I hope I will be able to hit at least 5 but 5cm is also ok for me, I don’t want to be greedy and also staying alone, having pain with no one to help me around can be too difficult and frustrating so the fastest I’m going to get out of here is better for my mental(also physically because my nutrition is bad here, always ordering rice and chicken and burgers) the better.
How much is food and accommodation at the hotel per month?
Great going man, more power to you to tide over this period, I remember you once mentioned that the hotel is providing you someone to take care of you at times, is that an extra expenditure or is it included within the package? Do you actually like require help from them at times or you can even do things alone, with assistive devices, but you opted to be safer, so you asked for a helper, which one is it? Also, please keep updating at times, it means a lot and please continue this till the day when you can gain around maximum of your pre op abilities.
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