My argument for waiting for Stryde, please weigh in

Edit Post

Quote from: RealDamagedLostSoul on March 08, 2021, 05:31:33 PMYea I see. They don't do quadro lengthening do they?
I wanted to go for 4 inches in quadro lengthening with Paley but precice really turns me off. crutches would be okay but wheelchair for months sucks ngl.

I'm not too sure. I don't think they offer quadro as in femurs then 3 weeks later tibia like they do in the US but I'm sure you could do femurs then start tibias right after you finish lengthening femurs.

Edit Post

Quote from: RB on March 08, 2021, 05:50:39 PMI'm not too sure. I don't think they offer quadro as in femurs then 3 weeks later tibia like they do in the US but I'm sure you could do femurs then start tibias right after you finish lengthening femurs.

Yea that for sure. It's also a lot cheaper but I kind of doubt it's anywhere close to Paley in terms of safety. Have you talked with the surgery team there already? I'd be interested in what they said about some things.

Edit Post

Quote from: RealDamagedLostSoul on March 08, 2021, 06:01:31 PMYea that for sure. It's also a lot cheaper but I kind of doubt it's anywhere close to Paley in terms of safety. Have you talked with the surgery team there already? I'd be interested in what they said about some things.

Yeah had my final consult with Betz on Friday and spoke with the anaesthetist etc today. Fee free to PM me if you have any questions about it.

Edit Post

Quote from: RB on March 08, 2021, 06:04:38 PMYeah had my final consult with Betz on Friday and spoke with the anaesthetist etc today. Fee free to PM me if you have any questions about it.

Nice, thanks a lot I will do.

Edit Post

Hey,

Congrats, bro. Few questions - what country, how much with everything in (living, food, etc) aprox?

Edit Post

Why not consider full external which is weight bearing? I think we will get used to the frames. If it's inconvenient to wear them for a year then LON tibias is an alternative.

I think both external and LON tibias might be better than Precice which is not weight bearing.

One can also do Precice one side at a time. Do one leg and hop on the good leg. Let the lengthened leg recover (4-6 months) and then do the short leg.

The idea of doing Precice bilaterally at once seems so scary to imagine, especially if you are doing it all alone.

As for waiting for Stryde, the news is not promising so far. We might have to wait for long.

Edit Post

Quote from: one on March 08, 2021, 08:27:32 PMWhy not consider full external which is weight bearing? I think we will get used to the frames. If it's inconvenient to wear them for a year then LON tibias is an alternative.

I think both external and LON tibias might be better than Precice which is not weight bearing.

One can also do Precice one side at a time. Do one leg and hop on the good leg. Let the lengthened leg recover (4-6 months) and then do the short leg.

The idea of doing Precice bilaterally at once seems so scary to imagine, especially if you are doing it all alone.

As for waiting for Stryde, the news is not promising so far. We might have to wait for long.

I asked Paley this he laughed and said externals is a bad idea and he wouldn't go back to this in a pure cosmetic procedure. His argument was that it's unreasonable to do cosmetic surgery yet gain tons of scars (which I kinda agree since external scars really are devastating in some cases). Other than that, externals are super uncomfortable, possibly more painful, and you run the risk of infections etc.

One side at a time is also a bad idea imo, the discrepancy will be too big honestly.

My current hopes are that I am able to get the large-diameter precise since they apparently can hold a weight of 146 pounds (even the second-largest nail is capable of 118 pounds btw). I am only at about 115 pounds, of course, that doesn't mean a guarantee but maybe I can use crutches for most of the time, which will definitely be acceptable for me.

Edit Post

From my understanding, the pain and scars from external method is significantly worse when compared to the available technology. Also, I assume you're just kidding about the one leg at a time suggestion, but lengthening one leg at a time would not be a good idea since one of your legs would be significantly overcompensating for the weight and balance for too long a time. This would only cause further problems down the line.

Edit Post

I see it this way - the world isn't going to return to "normal" for quite some time (1-2 years). If you can wait for the Stryde, you're going to have a much better time getting through all of this as oppose to incurring the emotional weight that comes along from being wheelchair-bounded for 6 months. Image that - for 6 months, you're in pain, you aren't at all self-sufficient, you can't complete even the easiest of tasks on your own. Even if you have a caretaker doing it for you, the frustration from being unable to do it yourself would be very difficult. I'm not trying to discourage you at all, I'm just trying to paint a realistic picture. If it isn't possible for you to wait for Stryde, and you sincerely believe you have the mental fortitude to make it - then all the power to you. Otherwise, you'd have a much better time just chillin' out for a few months 'till Stryde pops back into the market and you're able to walk within a weeks time.

Edit Post

Quote from: BreaktoGrow on March 08, 2021, 10:24:30 PMFrom my understanding, the pain and scars from external method is significantly worse when compared to the available technology. Also, I assume you're just kidding about the one leg at a time suggestion, but lengthening one leg at a time would not be a good idea since one of your legs would be significantly overcompensating for the weight and balance for too long a time. This would only cause further problems down the line.

Exactly.

Quote from: BreaktoGrow on March 08, 2021, 10:30:44 PMI see it this way - the world isn't going to return to "normal" for quite some time (1-2 years). If you can wait for the Stryde, you're going to have a much better time getting through all of this as oppose to incurring the emotional weight that comes along from being wheelchair-bounded for 6 months. Image that - for 6 months, you're in pain, you aren't at all self-sufficient, you can't complete even the easiest of tasks on your own. Even if you have a caretaker doing it for you, the frustration from being unable to do it yourself would be very difficult. I'm not trying to discourage you at all, I'm just trying to paint a realistic picture. If it isn't possible for you to wait for Stryde, and you sincerely believe you have the mental fortitude to make it - then all the power to you. Otherwise, you'd have a much better time just chillin' out for a few months 'till Stryde pops back into the market and you're able to walk within a weeks time.

I kinda doubt that it will take that long. Corona has been around for a long time now and people are getting vaccinated, even if it's slow already, I think thinking that summer is normal again is kind of too optimistic but fall-winter, beginning of new year max, it will be over I guess. That's also the time stryde will be back probably. Like I said, you have walker, maybe even crutches, yes I understand, for me it's pretty frustrating too that stryde has to be gone when I want to do it but I can only think about the positive and possible aspects now, it's all I can do. There is no other option, I can't "chill out" and do it whenever since I am not an unemployed doing nothing. This summer is the only summer I have enough time for the next... almost decade... I can't do it next year since I will only have 2 months off, the same goes for 2023 etc. I need to travel to a whole different country, continent even. The only other option would be Betzbone which has it's benefits (weight bearing? cheaper and on the same continent) but I value safety so much I wouldn't really want to go with them. Wheelchair sucks, yea absolutely but what is the other possibility, not doing it at all, hell nah. Maybe Betzbone :/