My diary of quadrilateral Precice2 LL with Dr. Gokhan

Well, I am not doing very well, but thanks for asking !

I returned home and I struggle to walk, but is very painful. The pain is same like 2 months ago, when I tried first time to use the walker. So, if I don't take 100mg Voltaren, i cannot walk !
I put away the wheelchair and now I walk only with 2 special canes or with the rolling walker. I bought 2 tetra-pod canes, which are best.
But I am home and, at least, nobody disturb me ... which is great, after 6 months of  ty life and being disturbed every day, many times a day !
I eat whatever I want, whenever I want and I can return to my regular and very controlled life style by myself, not by others !
Now I will do an x-ray much less often.
Overall I am less stressed.

Good you are less stressed.

23 June 2024

Today marks 6 months since my first surgery, on Dec 23 !!

This is a summary after 6 months and what I got:

-   Underwent 3 surgeries (because I had to replace a bent femural implant)
-   Lots, lots of suffering !
-   Gained 120mm as height
-   Got chicken legs because muscle atrophy
-   No strength in my legs muscles. Without canes I cannot stand up at all, from bed or toilet
-   I got a good callus on both femurs
-   The callus on tibias didn’t start clearly so far
-   Unfortunately I got a slighyly curved implants on both femurs. Thanks God is not worse !
-   I lost one proximal screw from left tibia, because started to come out of bone, so now all my weight stays on one tibial screw … and that scares me
-   I stayed 5 weeks in a special recovery clinic, after returning in my country, doing exercises in pools with warm salted water, where I achieved what I couldn’t achieve in Turkey
-   The knees are both still semi-flexed
-   Now the heels are down on the ground when I walk, but I have duck b-utt. The right tibial tendon is stiffer, so is behind the right one which keeps the heel down much more relaxed. I am wondering when will I stand normally vertical…
-   I moved back home and I put away my crappy wheelchair and now I use only walker or two canes. A big step forward !
-   I started walking exercises every day and now I can walk  15 steps without help and I can stand up for 1 minute, without help.
-   Finally I can pee like boys, because for 6 months I peed like girls…
-   Still have same bad pain in knees and tibias like before and I must take a strong Voltaren so I can walk
-   Now I got a new pain: in the right hip... I have it permanent when hip rotation, on the bed and on standing up. I don’t know what is this, but is like a knife !
-   Now I have to check again my tibial callus, so I will see on my next x-rays what happened in the last 3 weeks after starting intense full bearing walking. I have to find in few days an imaging clinic close to my house
-   Now I take only Calcium + D3, Colagen, Creatine and Proteins
-   Overall, I don’t understand why I still have excruciating pain when walking,  because its been 2 months since standing up and started to walk. Doctor Gokhan said that pain will go away, but I feel the pain is worse and worse. Going to toilet or to eat is a nightmare, when I don’t take Voltaren. And voltaren I take only one time a day, before walking exercises … in the rest only nightmare !... I stay 1 minute anytime before standing up, to prepare my mind for a new pain !
-   I never could really measure my new height, because my tip toes standing and because knee semi-flexion, plus the “duck b-utt”. Anyways, that moment will come in few weeks, as I feel
-   In few days I will try again to drive my car, because 6 weeks ago I tried but my right foot couldn’t control the acceleration
-   But, at least, every day I feel I am much taller and I am amazed every time when I stand up…

Hello dear Ted.
I read your last post. I hope you're doing well (as can be considering all..).
Since you still tackle many obstacles, perhaps it would be good idea to get another consultation at this point from another LL orthopedic surgeon for proper continuation of your recovery ?

I sure don't want you to suffer from some permanent pain because of complications :/

Also, it sounds like you endure some delayed consolidation of the tibia from what you describe ?
Perhaps a special focus is required regarding how to help more callus / bone growth in that area ?

I'd be happy to hear how you're doing overall. Stay strong friend.

Hi, Mike.
Thank you for your message.

Actually I was talking with 2 orthopedist already, but they are reserved because they never seen this extreme procedure yet and they don't know how is going on. This is available for most countries in the world, because real and serious LL is happening only in 5 countries maybe...

Yes, the biggest concern are the sequels after this procedure...

Regarding tibia callus, I need to find a convenient place to do x-rays every month from now... because now I am on my own and is not easy.

Quote from: Ted68 on May 31, 2024, 10:49:59 AM
https://photos.app.goo.gl/XyjYfgXswnT75qxw7

I think you have antecurvation deformity. The bone has moved away from the original by about 5-8 degrees. It's hard to determine the angle, but yours is now about 74 (normal 77-84)

https://library.rniito.org/download/manuals/Opredelenie_referentnykh_liniy.pdf

Quote from: limon on June 28, 2024, 01:08:19 PMI think you have antecurvation deformity. The bone has moved away from the original by about 5-8 degrees. It's hard to determine the angle, but yours is now about 74 (normal 77-84)

https://library.rniito.org/download/manuals/Opredelenie_referentnykh_liniy.pdf

I asked doctor about that and I am waiting for his opinion...
Thank you

28 June 2024

I have 2 good news, guys:
Because my everyday struggle doing walking exercises.... today I drove safely my car !
and
I took the car, I drove to imaging clinic and I did today new x-rays... and finally I can see the clear callus formation !

https://photos.app.goo.gl/HpznVTXfYGqgYnSb8

https://photos.app.goo.gl/HHb8Nt7t25skbJU49

Quote from: Ted68 on June 28, 2024, 06:00:36 PM28 June 2024

I have 2 good news, guys:
Because my everyday struggle doing walking exercises.... today I drove safely my car !
and
I took the car, I drove to imaging clinic and I did today new x-rays... and finally I can see the clear callus formation !

https://photos.app.goo.gl/HpznVTXfYGqgYnSb8

https://photos.app.goo.gl/HHb8Nt7t25skbJU49

Congratz! Must've been scary going through everything and not seeing callus formation. The countdown to you enjoying new life with your new height is definitely on.

I've been a lurker on this thread, read it all through. Inspiring to see you going through all these struggles and periods of uncertainty with determination and now things seem to be turning in your favor here finally.

Quote from: onedaytall on June 28, 2024, 07:59:42 PMCongratz! Must've been scary going through everything and not seeing callus formation. The countdown to you enjoying new life with your new height is definitely on.

I've been a lurker on this thread, read it all through. Inspiring to see you going through all these struggles and periods of uncertainty with determination and now things seem to be turning in your favor here finally.

Thank you, man !
This diary is for you, my lurkers... because I know you are many... otherwise I couldn't have 15.000 views !

Yes, I was scared while passing through 4 months and zero callus in tibia...
My doctor always said to me: "- Start walking, because only walking will trigger your tibial callus formation ! "... so, I did it finally and 3 weeks later the callus appeared. He was right !

Of course, my problems didn't stop here, because I got many, but at least the new bone is growing... so non-union is not a problem anymore