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Posted on Jan 9, 2024, 7:23 am
#51
Quote from: Acemace86 on January 09, 2024, 12:23:35 AMYou had x-rays that showed the nails did not lengthen?
Not yet. They scheduled me for Friday 12.
The problem is that I don't know anything because this primitive ERC, as I said.
Friday I should have ~ 17.5 mm already... but I can have a bad surprise to find zero mm !
So, I need a better device which says exactly if the nail receive the signal, the rate of spinning in nails, if I positioned correctly the magnet, the power of signal, etc. So, I need a device with a good communication with nails and a permanent feedback.
But, in my case, I do it blindly and I have to wait and stay stressed 2 weeks to see the x-rays result... otherwise I don't know anything ! 
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Posted on Jan 9, 2024, 7:44 am
#52
Hi. Write about everything you do. I am 49 years old.
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Posted on Jan 9, 2024, 8:03 am
#53
Quote from: Robert Adam on January 09, 2024, 07:44:55 AMHi. Write about everything you do. I am 49 years old.
Welcome to my diary, Adam !
The age is just a number, as long as you have a clean life and you do maximum to improve it... because looking to new generations you can see they ruin their health before 40's !
We can talk in pm, so you can tell me details about you...
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Posted on Jan 9, 2024, 11:48 am
#54
Ok please update when you get the x-rays.
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Posted on Jan 9, 2024, 11:56 am
#55
Quote from: Acemace86 on January 09, 2024, 11:48:03 AMOk please update when you get the x-rays.
Of course, man !
I will put here the xrays that I got next day after surgery and then the surgery got Friday, so we can compare.
For me its a very important moment !
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Posted on Jan 10, 2024, 4:17 pm
#56
9 - 10 Jan

Today doctor Ghokan gave me a surprise and came to me. I told him I am MUCH BETTER after stopping the Contramal  and after finding Ibuprofen cream.
He was happy to see me ok, because last time he saw me ruined…
We talked about many things, including personal things. I found I am 5 years older than him, and that was a bit funny, but my respect for him didn’t decrease at all. For me he is maybe the best orthopedist in Turkey and one of the kindest person I ever met in my life !
He told me that my entry incisions healed, so not need to put bandages anymore and now I can entry in the swimming pool.
I showed him my left brake of my wheelchair loose, so my wheelchair became unstable and very unsafe. So, doctor right away turned it upside down to see what is going on. I was so embarrassed that my doctor  is doing that. I said: Please, doctor, you make me feel embarrassed and I don’t want to bother you !
When he turned it upside down I saw right away where are the adjustment screws, because I am good technician, worked all my life with tools and worked 20 years in bikes industry. I said: - Sir, I can fix it in few seconds, but I need a 4mm hex wrench. Next second he called the technical department in the hotel and after 15 minutes a guy came with the cheapest hex set I ever seen… like a Dollar Store one. I thought: Wow, these guys from the hotels are really cheap, or they hired cheap workers asking them to bring their personal tools !
Anyways,  I didn't disturb him and he tight it somehow, but after doctor left I used the chair and the brake was just a bit better than before. I called the PT guy and I asked him to bring me a hex set tomorrow, so I can adjust it with my hand...

Next day he came with the hexes and I adjusted both properly and equally, telling him how good quality wheelchair is this… He answered:  - Of course is good, because is a very expensive one. So how come ?... And he said: - Because this is 5000 Euro one, left by an ex patient to me after he finished !
Ohh, this is not a wheelchair from the hotel ?... – Ohh, no. They have only crappy regular ones. But I brought it special for you !
Ohh, man, now I realized my wheelchair is a Carbon fiber, Folding one and, of course, the hotel will NEVER buy such an amazing wheelchairs for customers. The model is a Ottobock Zenit Carbon.
I appreciated a lot what he did and I told him that…

Few minutes later we went to main level, for MY FIRST DAY IN THE POOL !
For me is the most important day since the surgery !
After 2 weeks of suffering finally I can feel I am a normal free walking person, not a crippled one.
 I put a swim brief on me, the bathrobe and I grab the swimming cap, because is mandatory. BTW, the hotel told me, when I had the hotel tour, that they charge me 8 Euro for the cap. No kidding, I said. And I found a used one, I wash it… and done.
So, we arrived to the pool and I was excited like a boy, because I can walk freely, after 2 weeks of staying only in bed and wheelchair…
They, PT guy and the nurse, supervised me to safely move from wheelchair to plastic sunbed and then to the floor. Then, being to the edge of the pool, going straight in the water. They was happy I did it well from the first time and after 2 minutes they left.
The pool is large enough and the entry in the water it has a special slope to the bottom, with handle rails along the entire length of the slope. Good job Antwell hotel !
The deepness  is 1.50 m, perfect for adults, but not for children.
The temperature is 20 C, but it should be 24-25 C for muscles and bones, so I felt it a bit colder, for the whole our.
Guys, again, if the hotel hadn’t have this pool… I wouldn’t start this crazy LL journey !...Period !
So, being my profession, the PT guy leaved me alone to do whatever I need.
I did many walking exercises and different static exercises, for one hour. Then I lift the body to the floor, then to the sunbed, then to the wheelchair where I put a thick towel…
It was great, as expected !

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Posted on Jan 12, 2024, 1:53 pm
#57
12 Jan - the big day

Hi, guys.
For me its a big day because finally I could see what happened with my bone after starting elongation.

X-rays - 2 days after surgery:
https://photos.app.goo.gl/XiJ2yf4UdAAXUhkp9
https://photos.app.goo.gl/Mxz53bYtU915eDfw5
https://photos.app.goo.gl/zoUjEnDu3pfHRBf38
https://photos.app.goo.gl/dk2UDtHtYSqhQw3V9

X-rays - 20 days after surgery
https://photos.app.goo.gl/kVF54FDH1ZCj5WC2A
https://photos.app.goo.gl/UUnwRt8g9WgKmBnR7
https://photos.app.goo.gl/9jPtsxmTLptuhmqG9
https://photos.app.goo.gl/2nDs6ECKA4Zw5yXC9

I don't know how many mm I gained, but, at least I am happy it worked and now I got a bigger gap !

Guys, as I told you, they brought me the oldest ERC model, named ERC1 which doesn't give you any "live" information about the nail. It only says the elongation setup rate and when it finished to work... BUT NOTHING ABOUT WHAT REALLY HAPPENS WITH THE NAILS.
I didn't tell you first time, because another embarrassing moment, but I tell you now...The brought me a very dirty unit (I am pretty sure never been cleaned). So, I used 5 cotton pads with alcohol, so I could clean the machine, the display unit and cables. They just take the unit from a patient... and give it to another... just as it is !
 
Now, the Nuvasive factory released the 4-th generation one, named ERC-4P, which is much more evolved.

Here is dr. Paley talking about it:




And here you have the ERC-4P user manual:

https://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=&ved=2ahUKEwj278qegNiDAxU0D7kGHdvLCl0QFnoECAoQAQ&url=https%3A%2F%2Fwww.nuvasive.com%2Fwp-content%2Fuploads%2F2022%2F06%2FLC0265_D_English.pdf&usg=AOvVaw2qeJG_3j7jcleeb2JUXoE2&opi=89978449


I would like to have it and, guys, we pay big money for these surgeries, so we deserve to have and use the best technology, not to give us crappy old devices... don't you think ?
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Posted on Jan 12, 2024, 4:41 pm
#58
What did your Doctor say about your bone growth?
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Posted on Jan 12, 2024, 4:55 pm
#59
Quote from: Acemace86 on January 12, 2024, 04:41:13 PMWhat did your Doctor say about your bone growth?
He said "is very good, with already started callus formation around gap".
He said the gap now is 18-19 mm.
My big concern is the left femur, where the proximal bone is not aligned with the distal one anymore, in sagittal plane !
But, still, doctor said its ok... So, all I have to do is to hope that everything will be ok...
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Posted on Jan 16, 2024, 7:57 pm
#60
X-rays look good. How are you right now? I hope you are well.
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