Days 21-48
Hey, guys…
I stopped writing for a while because I had many bad problems:
1. Heavy constipation
2. Tibia surgery
3. Replacing left femur nail because was bent
4. Big pain in my right lower leg + extra movement in my tibia
5. About my lengthening run
1.CONSTIPATION – since first surgery I had constipation, but I didn’t feel it for one week… and then, suddenly, I felt needing to do it and… stone stool. I asked doctor to remove completely the narcotics from my medication and he gave me medication based on Paracetamol and Voltaren. This change stopped nausea, vomiting, confusion and sweating… but not constipation ! Nobody could tell me which medicine still doing it, and actually I didn’t care. For me was important TO NOT HAPPEN ANYMORE.
So, they gave me a useless syrup named Duphalac, fibers and medical enema… but nothing worked and the stool pushed me…. I was desperate, because I couldn’t sleep and I finally did the extreme solution: scooping the rectum with my finger, plus enema with the shower hose. And, guys, I did that for five times, that means every week… It was a nightmare, because last time I got blood…!!
So, I said, this is not good !... and finally I tried the last chance, KEFIR.
And, unexpectedly it worked !... no constipation anymore. Unbelievable, guys !
2.TIBIA SURGERY
After 34 days from femur surgery, they scheduled me the tibia surgery on Jan 27. OK.
But before tibia I did a normal xrays for lengthening…. And I found something really bad: my left femur nail was starting to bend. And doctors had to decide what they do…
They moved me from the hotel to Medicana hospital for tibia surgery and next day they did it.
Guys, after anesthesia I started to get pain, big pain, and next day doctors came to me for bandage replacing and for the tibia xrays after surgery. I saw the cutting points are not same, on the right tibia is very different.
You have the pictures here and you let me know about your opinion...
https://photos.app.goo.gl/U2Ud4wVxbofbxZC46https://photos.app.goo.gl/G6rD1oDY9adtJL3H6I ask them why is that and they said its ok… OK then !
Also, they told me that the bending femur nail is very serious, so they have to replace it. And they scheduled me 2 days later !
The next 3 days was THE WORST MOMENTS I ever had. It was a combination of tibia pain and no sleep + scare because of the nail replacing and a bad moment after nail replacement which put me in a kind of depression when I asked God to take me because this is too much !!... only problems and suffering and nothing goes normal !
3.REPLACING FEMUR NAIL
The nail was first bent in sagittal plan and after 2 weeks turned to be in frontal plan…. So no chance to continue.
Why was happen ?.... nobody knows. Doctors noticed the nail providers, and they blamed me. But doctors knows I am so careful that I not even used the walker, I was 100% on wheelchair. No forcing, and no abuse… So they blamed the nail….
I asked doctors how they do the 40mm lengthening on the new nail, because it takes 7 hours, but they told that they replace it with a longer one and finally I will have 32mm lengthen. And that’s even better, because my right femur is shorter with 11mm, so I have to lengthen them same, to the end, when we’ll do the fine adjusting. Ok then.
Here is the nail bent...
https://photos.app.goo.gl/ghCpJa7U7CZPjhpZ8And here you have the new nail implanted...
https://photos.app.goo.gl/UzsGz2STRQki2bMHAUsually, between 2 big surgeries like these, should be a 1 month pause… but they know I am strong and I can get it…. But they didn’t think to my mental and suffering…
So, bad luck for me !
And now I tell you something unbelievable happened after nail replacing, in the surgery room…
So, after surgery In the operation room, they left me in cold for half hour. When i was ready to wake-up, a nurse slapped my face few times and yelled to me to wake up. So, this is not ok, because i had my eyes opened... but i couldnt talk. She was a nurse, or a kind of a technician. I trembled very hard, with a strong sensation of cold. I started to talk a bit and i begged for blankets saying 100 times COLD, COLD ! , but she not even looked at me... talking with a co-worker.
And i felt to spit with blood (a big spit after surgery), i asked for help, but again, she not looked at me and finally i spit on my pillow and my bed ...and she saw that, but she let me like that, no cleaning and sent me upstairs, to my room. I also did stained my shoulder with my blood spit... like in war conditions !
In my room I trembled like crazy for another one our, so i could come to normal temperature, even they put 3 blankets on me !
Next day, my surgeon told me that they should heat me up after surgery... but they didn't !
I paid big money to have good service and respect as a human being, because not even a dog is treated like that … but they treated me like s-hit !
In my room they did a decent job and they was helpful, most of them.
In my opinion, that woman should be fired and never work anymore in a hospital !!
So, another bad luck for me !
Next day later they did an x-ray to my new nail and looked ok. And one day later they moved me to the hotel.
4.BIG PAIN IN MY RIGHT TIBIA, EXTRA SWOLLEN, VERY LOW SENSITIVITY + MOVEMENT IN MY BONES
After surgery I noticed the different cut in my right tibia and that was the reason to have extra swollen and MUCH MORE pain in the right lower leg.
Now my left lower leg its ok, I can move everything, the pain is very low and not swollen anymore…. But the right one gives me very high pain and is still swollen and I have very low sensitivity on my skin.
Also, on my right tibia cutting point, every day is bleeding and when the nurse is changing my bandage is always full of blood…
Picture here..
https://photos.app.goo.gl/sWjaDFUsW7EFkguD9Also, the right lower leg have more bruise.
Picture here...
https://photos.app.goo.gl/xt9z9u5zvwRidNvZAAfter few days from tibia surgery, I felt in the right lower leg an extra movement on my cut bone, a flexion which shouldn’t be there. And I realized, that happen because the bone was cut vertically and the end of cut are not strong to stay well on nail. And, because I had no space left after surgery, when the bones flexed, I fell how the ends of the tibia and fibula touching and rubbing each other !.... But on left tibia nothing like these happened, because the cut was good and they left me a space between bones.
You saw the pictures above.
I also have a laterally movement between tibia and nail, which scared me, because give me box leg shape.
But, the worse thing is that I noticed a miss-rotation in my right lower leg, so if will not fix it after PT, that means I will need another surgery… which will makes me to hate my life.
So, another bad luck for me !
Because all these I couldnt do any kind of PT on my right leg !
To fix that, I asked a PT guy to help me to buy a brace. First I was looking to ankle-tibial one, but that one helps me only for anterior-posterior flexion. So I decided to buy a knee blocking brace, which will tight my tibia in anterior + lateral.
You have pictures here...
https://photos.app.goo.gl/ihw29otnoxf7BUyT7https://photos.app.goo.gl/wrfxQwCUZwA3mcZh7He order it for me and I got it. I checked it and it stopped the bone movement. The only problem is that the upper tibial strap is fixed, so I cannot move it and is pressing on my bandage, so today it was bleeding more...
5.ABOUT MY LENGTHENING RUN
After tibia surgery I stopped lengthening my femur and I re-started after 4 days, on Feb 1.
On Feb second doctor asked me to start on tibia, so I did.
Today as my calculation, I should be 5 cm taller, so from 1.71 now I am 1.76
But, 3 days ago, my Nuvasive old crappy ERC stopped working. I got some error messages and done. I sent a Whatsapp message to the technician that he brought me the machine, plus a video with the start-up on the display and few hours later he sent me another guy with a machine. When he arrived he tried to start the machine and it worked. He asked me why I called him, but I showed him the video and he understood, because his partner didn’t show him the video.
He brought me same old model, but at least this one looks very less used and clean…
So, as you can see guys, I never get bored… always something happens to me !
BTW, meanwhile, I turned 56 years old...