i'm in lengthening phase, and it's about to end soon. but i barely hear from my doc about how my legs are now and if there's discrepancy etc.
recently i asked to check for both leg's lengths to find out if there's discrepancy but he's barely responsive and seems not interested in it at all.
he's a renowned surgeon and i never expected this. what should i do? this is terrifying
Who was your surgeon or in which country did you do This surgery?
Maybe you Should ask another surgeon for help if your surgeon is ignoring you, especially if you think you had an leg discrepancy
in USA, he's a renowned surgeon.
What do you expect anyone here to do for you if you can't even provide enough information? We don't even know what Doctor you're talking about.
Genuinely, what do you think we can do for you here on this forum?
You should be calling your Doctor's office. You should be talking to his nurses and/or PA if you can't get ahold of the Doctor directly. Send emails if you can't call.
You're in the lengthening phase, which means you're doing PT regularly, so why don't you bring this up to one of your physical therapists? Presumably, they'll be working with the Doctor unless you foolishly went back home during the lengthening phase rather than staying local with the Doctor.
I mean I'm utterly confused at what you want anyone here to do. This is a really strange thread.
Dr. Roz in east coast. Who knows? maybe someone knows how to handle this situation.
i already sent multiple emails but he's barely responsive, even when my lengthening is about to finish.
I feel like he's not attentive and I'm afraid i end up having different lengths in the legs.
I definitely, must avoid that, but i don't know what to do anymore when my doctor seems not caring.
I don't work with PT specialist. I do PT alone as their instructions.
Quote from: lovinglonglegs on June 20, 2023, 12:33:27 AMDr. Roz in east coast. Who knows? maybe someone knows how to handle this situation.
i already sent multiple emails but he's barely responsive, even when my lengthening is about to finish.
I feel like he's not attentive and I'm afraid i end up having different lengths in the legs.
I definitely, must avoid that, but i don't know what to do anymore when my doctor seems not caring.
I don't work with PT specialist. I do PT alone as their instructions.
Have you called their office? Have you spoken to one of the nurses or PA's at least?
dr is responsible for leg discrepancy. plus their PAs are similarly indifferent
i'm kind of disappointed. idk his fame is appropriate though i can't judge yet
Quote from: lovinglonglegs on June 20, 2023, 12:33:27 AMDr. Roz in east coast. Who knows? maybe someone knows how to handle this situation.
i already sent multiple emails but he's barely responsive, even when my lengthening is about to finish.
I feel like he's not attentive and I'm afraid i end up having different lengths in the legs.
I definitely, must avoid that, but i don't know what to do anymore when my doctor seems not caring.
I don't work with PT specialist. I do PT alone as their instructions.
You could pay for an x-ray called Telemetry. This is an xray of both limbs and it allows you to measure them. It's not very expensive and it's the best way to solve your problem with accuracy.
Quote from: lovinglonglegs on June 20, 2023, 04:25:42 AMdr is responsible for leg discrepancy. plus their PAs are similarly indifferent
i'm kind of disappointed. idk his fame is appropriate though i can't judge yet
Aren't you having regularly scheduled x-rays every 2 or 3 weeks? And then a follow-up appointment later that day if you're in NYC or the next day virtually if you went back home? Did you notice a discrepancy at your last follow-up? You doing femurs or tibias? What does the summary in your MyHSS app say was the amount of distraction in each leg after your last appt? You said "barely responsive" so he did respond then? What was his response? Was he simply saying he'd look at your next set of x-rays? How much of a difference do you see? The ERC machine is saying everything working and legs same amount of distraction? How much distraction so far? It's hard to tell if you're freaking out over a few mm perhaps because one leg early consolidated or if you had a nail break and you've got over 1cm difference and need surgery ASAP to replace the nail. Hope everything works out.
Quote from: lovinglonglegs on June 19, 2023, 09:18:41 PMi'm in lengthening phase, and it's about to end soon. but i barely hear from my doc about how my legs are now and if there's discrepancy etc.
recently i asked to check for both leg's lengths to find out if there's discrepancy but he's barely responsive and seems not interested in it at all.
he's a renowned surgeon and i never expected this. what should i do? this is terrifying
That's so unporfessional and unethical! Is this what they promised you when talking you into doing the surgery?! you should insist or even put a formal complaint imo
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