my doctor is idle, what should i do?

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while i wasn't very satisfied with the way he responded, i can't say anything about him now till i see final outcome.


Quote from: EndGame on June 20, 2023, 12:18:38 PMAren't you having regularly scheduled x-rays every 2 or 3 weeks? And then a follow-up appointment later that day if you're in NYC or the next day virtually if you went back home? Did you notice a discrepancy at your last follow-up? You doing femurs or tibias? What does the summary in your MyHSS app say was the amount of distraction in each leg after your last appt? You said "barely responsive" so he did respond then? What was his response? Was he simply saying he'd look at your next set of x-rays? How much of a difference do you see? The ERC machine is saying everything working and legs same amount of distraction? How much distraction so far? It's hard to tell if you're freaking out over a few mm perhaps because one leg early consolidated or if you had a nail break and you've got over 1cm difference and need surgery ASAP to replace the nail. Hope everything works out.

i did all.

just i never saw or heard their check on lengths of my legs, except checking the values on ERC.

has anyone had or heard such cases where doctor doesn't check the overall length of leg but only the ERC values?



 Quote from: Marie_Bard on June 20, 2023, 05:47:23 PMThat's so unporfessional and unethical! Is this what they promised you when talking you into doing the surgery?! you should insist or even put a formal complaint imo

Quote from: KrP1 on June 20, 2023, 07:27:48 AMYou could pay for an x-ray called Telemetry. This is an xray of both limbs and it allows you to measure them. It's not very expensive and it's the best way to solve your problem with accuracy.

thanks for replies

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Quote from: lovinglonglegs on June 20, 2023, 07:35:14 PMwhile i wasn't satisfied with the way he responded, i'm no expert, and i can't judge anything till i see final outcome. it's inappropriate for me to say anything about him now.


i did all.

just i never saw or heard their check on lengths of my legs, except checking the values on ERC.

has anyone had or heard such cases where doctor doesn't check the overall length of leg but only the ERC values?

So how long ago was your last x-ray? How much of a discrepancy do you think you have?

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Quote from: lovinglonglegs on June 20, 2023, 07:35:14 PMhas anyone had or heard such cases where doctor doesn't check the overall length of leg but only the ERC values?

He should measure the length on the x-ray and compare to the ERC values. It's surprising that's not the case.

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i wonder if it's ok to go without checking overall leg length. I thought that's the standard protocol. and my doctor seems simply disregarding that. confused.
anyone seen cases like this?

Quote from: EndGame on June 20, 2023, 07:47:02 PMSo how long ago was your last x-ray? How much of a discrepancy do you think you have?

last month, i think 8mm Quote from: hippo60 on June 20, 2023, 07:48:24 PMHe should measure the length on the x-ray and compare to the ERC values. It's surprising that's not the case.

i expected that too

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Quote from: lovinglonglegs on June 20, 2023, 08:46:44 PMi wonder if it's ok to go without checking overall leg length. I thought that's the standard protocol. and my doctor seems simply disregarding that. confused.
anyone seen cases like this?
last month, i think 8mm i expected that too

When is your next x-ray scheduled? I'm surprised you're only getting x-rays every what 4+ weeks during lengthening?
Did it seem fine last month but now a month later off 8mm? Or seems stable at 8mm since last month's x-rays? Perhaps post the x-rays. If the nail is still working you should be able to even them out. Hope everything works out.

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Quote from: lovinglonglegs on June 20, 2023, 08:46:44 PMi wonder if it's ok to go without checking overall leg length. I thought that's the standard protocol. and my doctor seems simply disregarding that. confused.

What do you mean by checking overall leg length? Rozbruch & his team just measure how much the nail distracted, you don't need more. Unless I misunderstood you...

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Doesn't he tell you how much each leg has distracted after every X-ray session?

In any case, if there is a leg discrepancy, you should be able to see it with your eyes. I had a minor leg discrepancy myself (of about 8 mm) and it was noticeable even without X-ray.

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can someone check this xray?
it shows that difference.
https://postimg.cc/gallery/vgSSgf1
not sure if i'm doing it right

 Quote from: hippo60 on June 20, 2023, 10:32:29 PMWhat do you mean by checking overall leg length? Rozbruch & his team just measure how much the nail distracted, you don't need more. Unless I misunderstood you...

doesn't it have to be checked for
- overall length of the leg on Xray
- distracted length of internal nail inside the leg on Xray
- lengthened values on the ERC
?

my doctor checks only the last two (distracted length of internal nail inside the leg on Xray,
lengthened values on the ERC)


Quote from: GrowGrow123 on June 20, 2023, 11:27:38 PMDoesn't he tell you how much each leg has distracted after every X-ray session?

In any case, if there is a leg discrepancy, you should be able to see it with your eyes. I had a minor leg discrepancy myself (of about 8 mm) and it was noticeable even without X-ray.

he looks at ERC value and if one more, the distracted length of internal nail in xray, not the overall length of the leg being lengthened. That concerns me.
i also see slight diff with bare eyes. not sure if that's from other parts of the legs(those not lengthened).



Quote from: EndGame on June 20, 2023, 09:26:09 PMWhen is your next x-ray scheduled? I'm surprised you're only getting x-rays every what 4+ weeks during lengthening?
Did it seem fine last month but now a month later off 8mm? Or seems stable at 8mm since last month's x-rays? Perhaps post the x-rays. If the nail is still working you should be able to even them out. Hope everything works out.

did you do at hss? or did yu see someone who did there? how was your or their experiences? never heard anything like mine? thanks for your words btw

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Quote from: lovinglonglegs on June 21, 2023, 01:25:33 AMcan someone check this xray?
it shows that difference.
https://postimg.cc/gallery/vgSSgf1
not sure if i'm doing it right

The lengths of both tibiae may have been different prior to the leg lengthening process.
If the lengths of the left and right tibiae are made exactly the same, a discrepancy in the combined length of the tibia and femur may occur.
It would be advisable to discuss this with your physician.

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Similar story from Dr. D office. Their front office sucks, and I have no direct access to the dr. It has to go through his secretary who is like, unresponsive unless you triple text.
I think it's important to learn to read own x-ray at this point lol. It's not hard to figure out if there's a discrepancy. Measuring the device length is easier than the bone separation length imo.