My Journey with Dr Pili(HEF)

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update: 86 days post op, 74days since lengthening, day 1 post ATL
gain: 5.5cm
stats:
Got my ATL done yesterday , i am flying back home now. Now I have 2 more screws at each heel and a couple of stitches. Can walk, much slower though. Burn/pain around the heels is killing me. About to have the most rough travel ever. This should last a week and my walking would be like before according to doctor atleast. On the good side, I can straighten my legs completely and have reached 5.5cm. The balance losing thingy, I am yet to experience. Only problem so far is the pain . Dr also gave injections I need to take for a few days to avoid DVT. Would be posting pictures shortly.
To future LLers, if you can, avoid ATL(I am a decent pain bearer, and its bad. Trust.)
Please dont spam my thread or mailbox with negativity regarding ATL. I am in no need for such negative comments now. Thanks

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So in your case it was 5.5 cm and after that ATL was necessary?

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Quote from: lucindaris on July 21, 2018, 06:19:30 PMSo in your case it was 5.5 cm and after that ATL was necessary?
I am still lengthening. Dr Pili/Catagni only perform ATL on those who wish to lengthen further. That way you do regain some tension back in your achilles after you reach your goal. Afaik, my LL buddy's brother did feel tight after he got to 9.5cm. He did his ATL when he was at 4. He can run/jump etc now

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Quote from: fivetenneeded2016 on July 21, 2018, 06:26:45 PMI am still lengthening. Dr Pili/Catagni only perform ATL on those who wish to lengthen further. That way you do regain some tension back in your achilles after you reach your goal. Afaik, my LL buddy's brother did feel tight after he got to 9.5cm. He did his ATL when he was at 4. He can run/jump etc now

Hey man, just because he can perform some simple athletic movements does not mean his athletic function is 100% of what i's supposed to be.

Btw, I want to ask you a few questions.

1. Can we have the surgery with Dr. Catagni instead of Dr. Pili?

2. Can we refuse to have ATL? If yes, what are some alternatives such as stretching or something?

Thanks.

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Bruce Wayne,after LL you will never be back to 100%,not even close.And I mean a conservative LL(like 5cms on tibias)
If you manage to come back at 60/70%, it would be a good result
Very interesting the ATL part.So they suggest to lengthen the tendon if you want to surpass 4/5 cms

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Quote from: The Dreamer on July 21, 2018, 08:00:41 PMBruce Wayne,after LL you will never be back to 100%,not even close.And I mean a conservative LL(like 5cms on tibias)
If you manage to come back at 60/70%, it would be a good result

We should lose 3% max based on this study.

http://www.limblengtheningforum.com/index.php?topic=481.msg8548#msg8548

Quote from: The Dreamer on July 21, 2018, 08:00:41 PMVery interesting the ATL part.So they suggest to lengthen the tendon if you want to surpass 4/5 cms

No, to Dr. Catagni, no limitation, he can do it to you even when you reach 4cm.

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So your buddy did 9.5cm in tibia? Wow

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It is a very small size of patients(16) and it isn't told if they were achondroplasiac or not so I wouldn't trust it at all
Athletes struggle to recover from a broken tibias/femur and often don't regain the previous athleticism,I can't see how lengthening the soft tissue wouldn't have a great negative impact upon our body
Athleticism is not only walking and running slowly,is way more(reflexes,explosivity ecc)

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Quote from: Bruce Wayne on July 21, 2018, 06:59:34 PMHey man, just because he can perform some simple athletic movements does not mean his athletic function is 100% of what i's supposed to be.

Btw, I want to ask you a few questions.

1. Can we have the surgery with Dr. Catagni instead of Dr. Pili?

2. Can we refuse to have ATL? If yes, what are some alternatives such as stretching or something?

Thanks.
Yes to both questions. The other patient I know is avoiding ATL using some excercises. He is undergoing PT from a Pili therapist. Apparently all patients from that therpaist have surpassed 7cm without ATL. Yes, his flexibility has improved. As a tip, I would suggest you stay in Milan and undergo Pt suggested by that of doctor recommenddd therapist. I would do so, if I could go back in time.

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Quote from: fivetenneeded2016 on July 22, 2018, 05:35:24 PMYes to both questions. The other patient I know is avoiding ATL using some excercises. He is undergoing PT from a Pili therapist. Apparently all patients from that therpaist have surpassed 7cm without ATL. Yes, his flexibility has improved. As a tip, I would suggest you stay in Milan and undergo Pt suggested by that of doctor recommenddd therapist. I would do so, if I could go back in time.
So you did ATL and didn't go to PT because you had to fly back home ?