My LL Journey - Dr. Jamal Abu Nemer, Kiev

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Quote from: Rocky on May 02, 2018, 06:34:13 PMWhen I want to reply to someone by clicking on the "reply" button, why doesn't show their text with my reply beneath it.

I see alot of people reply to others by showing the original message and their text beneath it.

Look to the top right corner of message you want to reply to. Click on "Quote".

You can delete whatever isn't relevant (since sometimes you just want to reply to one small section out of many paragraphs), then add your response below. Here's how it looked as I replied to this.

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Quote from: Android on May 02, 2018, 06:45:44 PMLook to the top right corner of message you want to reply to. Click on "Quote".

You can delete whatever isn't relevant (since sometimes you just want to reply to one small section out of many paragraphs), then add your response below. Here's how it looked as I replied to this.


Testing 1 2 3

Thank you Android 

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Day 8 Update

I had 1 hour session with Dr. Jamal today. We did 7 clicks. We are training to put my full body weight on my right leg alone. Since the operation for left leg will be next week, I have now a week to strengthen my right leg so it can take the full weight of my body. It has to be strong enough to be the leading leg, once the left is operated and will be in a healing state. Right now I am standing from time to time on my right leg while lifting the left one. I am using the walker to support a little bit, so I am not fully there yet. When I walk, I step longer time on my right leg and less on my left leg on purpose. This is what I need to work on right now and a week ahead.

Dr. Jamal brought some tablets with him. I will stop the pain killer injections from today and switch to lighter pain killer pills every 5 hours.

He examined my food menu with the helper and instructed her to add 2 fish meals in the weekly menu. She just went out to buy some fish.

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So your right leg will be bearing your full weight while you are still distracting? Wow.....good luck!

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Hi Petite888 and thanks my friend

Yes, that's the whole idea. I can stand on it shortly but I can't hold the balance for long without the walker. I am working on it.
The right leg has to be the leading leg next week.

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Quote from: Rocky on May 02, 2018, 06:11:23 PMHello Petite888

Thank you very much and I really wholehearted wish that your consultation will go well with Dr. Monegal.

Please write about it so we can follow your progress.

Are you planning for femur or tibia? Internal or external devices? And what are your expectations?

I will start a diary as soon as I finalize my decision on which dr I will go with.  I’m hoping for ~5.5cm on femurs and who knows, maybe (a very distant maybe) 3.5cm on tibs a year down the line if I get through unscathed??

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Quote from: Petite888 on May 03, 2018, 07:19:41 PMI will start a diary as soon as I finalize my decision on which dr I will go with.  I’m hoping for ~5.5cm on femurs and who knows, maybe (a very distant maybe) 3.5cm on tibs a year down the line if I get through unscathed??

Hello Petite888

Sounds really good. Those figures are definitely within a safe range so you should be fine during your recovery. Its a hard decision, but it will probably be one of the biggest decisions upon your body's condition during your life time.

I wish you all the best and hopefully you will be in safe hands to fulfill your dreams 

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Quote from: Rocky on May 04, 2018, 07:05:31 AMHello Petite888

Sounds really good. Those figures are definitely within a safe range so you should be fine during your recovery. Its a hard decision, but it will probably be one of the biggest decisions upon your body's condition during your life time.

I wish you all the best and hopefully you will be in safe hands to fulfill your dreams 

Hi Rocky,

As a female I don’t feel like I need lots of height but being 4’11” really sucks. Would be nice to experience the remaining half of my life at a relatively normal height rather than come up to every bodies armpit 

I do also realise that everything is working against me when it comes to CLL (gender, sex, race) so I do need to be conservative and I want to be do little enough so people don’t really notice that I suddenly got soo much taller....... better they think “you look well, something different, but I can’t quite place it!” 

Hope you are doing well. You seem to be doing amazingly well actually that I’m almost considering going to Kiev myself 

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Quote from: Rocky on May 03, 2018, 12:27:42 PMDay 8 Update

I had 1 hour session with Dr. Jamal today. We did 7 clicks. We are training to put my full body weight on my right leg alone. Since the operation for left leg will be next week, I have now a week to strengthen my right leg so it can take the full weight of my body. It has to be strong enough to be the leading leg, once the left is operated and will be in a healing state. Right now I am standing from time to time on my right leg while lifting the left one. I am using the walker to support a little bit, so I am not fully there yet. When I walk, I step longer time on my right leg and less on my left leg on purpose. This is what I need to work on right now and a week ahead.

Dr. Jamal brought some tablets with him. I will stop the pain killer injections from today and switch to lighter pain killer pills every 5 hours.

He examined my food menu with the helper and instructed her to add 2 fish meals in the weekly menu. She just went out to buy some fish.

Hi Rocky, be careful and avoid standing on one leg. You are risking your nail might break due to fatigue failure if you intentionally put a lot of load on it. TBH, the whole thing about leading leg sounds a bit weird. You should see to it you load your legs equally.

Wishing you all the best.

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Quote from: hanshi on May 04, 2018, 03:52:30 PMHi Rocky, be careful and avoid standing on one leg. You are risking your nail might break due to fatigue failure if you intentionally put a lot of load on it. TBH, the whole thing about leading leg sounds a bit weird. You should see to it you load your legs equally.

Wishing you all the best.


Hi hanshi

Thanks for your message. The Bliskunov nail that I have chosen is made out of Titanium. It comes in different diameters. I can't remember the figures exactly, but as I was explained the one I have can take up to 120+ kg of load. We are talking about just one nail here. Once I get two nails in both legs, it will double up. That's one of the reasons why I didn't want to go with other modern nails and chose this old-school Russian nail.

I got a detailed explanation how it is stabilized during the operation but I remember half of it. It was something about that they don't just mount the nail and the bone with screws, but they also put screws to hold the screws for extra stability.

I am actually doing full weight bearing on one leg, but I still lose my balance. It got better today, but I'm still not there yet.

So from that angle, I am not worried.

Regarding the one leg thing. I was informed that having the two legs operated on the same day is not something that is recommended. Many reputative doctors do it, but it will put an unessasiry and impleasant pressure on the patient to start weight bearing in a slow manner. I got also a detailed explanation about that part too, but I don't remember all the details. All what I can tell you, I would have suffered doing my daily routines if I had both legs in a weak condition just after the operation. It was a big relief to have the left leg supporting me and get the right leg to a stronger state where it will be taking over the load at some point.