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No More Mal-Kahn-Tent - External Tibias - Dr Parihar

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Viggen_18
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Posts: 358
Joined: Nov 2024
Posted on Oct 9, 2025, 1:48 pm
#1001
Hey kilo, it's been a while, how have you been? Can you enlighten me about how common is CECS, I'm considering a 5cm tibia lengthening with Dr. Parihar, LON method, what are some things that I should look out for as potential risks?
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K
KiloKAHN
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Posts: 408
Joined: Sep 2013
Posted on Oct 11, 2025, 5:53 am
#1002
Quote from: Viggen_18 on September 06, 2025, 06:22:16 AMDo you think a 5 cm lengthening on tibia can cause CECS? How painful is CECS and can't it go away with non surgical processes?

Nobody really knows what causes CECS, ofc lower lengthening amounts will be safer and probably have a comparatively reduced risk.

Quote from: Viggen_18 on September 07, 2025, 05:58:13 AMDoes LON cause frames to break or bend and the same doesn't happen with exfix?

Exfix only has more pins and wires attached to the bone for added stability, whereas LON has fewer to make room for the nail inside. With LON, you won't be allowed to walk unassisted until the bone has healed enough, whereas with exfix you can be fully weightbearing right after surgery if that's something you want to do. Bending would only happen if you're walking too soon, which is why it is important to go to an experienced doctor that knows this.

Quote from: Viggen_18 on September 06, 2025, 06:22:16 AMDo you think a 5 cm lengthening on tibia can cause CECS? How painful is CECS and can't it go away with non surgical processes?

CECS is painful in that there's a lot of pressure in the affected area, but it goes away quickly when that area is left to rest. Won't go away without surgical intervention, which means a fasciotomy to let the muscles expand without restriction. The surgery itself had a very painful recovery period for me. Made my calves a lot bigger though and I can run without pain now. Only downside is having slightly worse balance than before, so I probably wouldn't do well in walking a tightrope.

Quote from: Viggen_18 on September 04, 2025, 06:23:20 AMHey there kilo, ik it's been a while and I'm also considering to do a LON tibia (5 cm gain) with doctor Parihar, I read your diary and saw a few roadblock of yours, what should I look out for LON tibia, how much is the risk of fat embolism, if i go with doctor parihar, based on you experience

Don't know exact numbers as far as risk, but typically breathing becomes a lot more difficult right before. They keep you in Parihar's hospital to monitor you for a week to look out for signs though.
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Viggen_18
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Posts: 386
Joined: Nov 2024
Posted on Oct 13, 2025, 4:52 pm
#1003
Thanks for answering all my questions, your diary is a treasure for us. You used to do wrestling at College as per what you said before, and not to mention you look quite big for your frame, even at 5'7", and at the time of your surgery, you were around 84 kgs (significantly above healthy bmi)I get it, it's normal for wrestlers to have greater mass, hear me out, I'm no specialist but I've recently seen overweight people (6'0-6'1 tall) have severe mobility issues, months after bone healing when they got injured, my guess is, longer bone fragment, itself was a lot of stress for the soft tissues and muscles to keep up with, coupled with some more weight, caused CECS, just a wild guess tho, and also did you have really bigger than average calves before the surgery? Like even people would point it out at times?
 a very simple question, does bone regeneration start immediately after lengthening, i couldn't find any articles or data about it, and I got into the forum less than a year ago, I mean, let's say i turn by 0.5 mm can 0.05 mm of regenerate appear in 1-2 days, like on a regular basis? Thank you.
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Viggen_18
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Posts: 464
Joined: Nov 2024
Posted on Oct 14, 2025, 3:17 am
#1004
Like everyone talks about how well the surgery underwent and their recovery goes, but yours is the only one which has well continued almost a decade after your surgery with active responses, I sort of understand what kind of pain and performance issues you get after CLL with exfix, but since you've spent a considerably longer time here than me, what kind of a pain can I expect from LON tibia, after 3-4 years of nail removal and how much of it just fades away with enough exercise on an average, I understand every body reacts differently to LL. Secondly, other than lesser scarring what other benefits does exfix provide over LON, what made you go through an extended period of wearing those frames without taking a nail and reduce the wearing time by 1/3rd? Is it potential knee pain? Doesn't exfix also have a chance of that? Thank you.
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Viggen_18
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Posts: 254
Joined: Nov 2024
Posted on Oct 26, 2025, 12:48 pm
#1005
Ik this is a pretty old post and I understand that you're no specialist, but your tibia to femur ratio comes out to be around 0.87 that is above the safe range of 0.76-0.82, so what did Dr Parihar say about this, like apart from arthritis and mobility issues what sort of problems you might face, and will symptoms start appear earlier than do for normal people?
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K
KiloKAHN
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Posts: 92
Joined: Sep 2013
Posted on Oct 29, 2025, 11:43 pm
#1006
Quote from: Viggen_18 on October 14, 2025, 03:17:36 AMLike everyone talks about how well the surgery underwent and their recovery goes, but yours is the only one which has well continued almost a decade after your surgery with active responses, I sort of understand what kind of pain and performance issues you get after CLL with exfix, but since you've spent a considerably longer time here than me, what kind of a pain can I expect from LON tibia, after 3-4 years of nail removal and how much of it just fades away with enough exercise on an average, I understand every body reacts differently to LL. Secondly, other than lesser scarring what other benefits does exfix provide over LON, what made you go through an extended period of wearing those frames without taking a nail and reduce the wearing time by 1/3rd? Is it potential knee pain? Doesn't exfix also have a chance of that? Thank you.

I had some lingering aches and pains for a few months aftedr surgery, and my first time walking all day aftesr removal left my legs very sore for a few days. That all eventually went away a few months afterward, though.

My tibia shafts were naturally too curved for a nail to fit properly. On top of that, the slight risk for chronic knee pain with LON wasn't appealing to me.  I had some knee pains while wearing the frames, but none after removal. There should be no risk with purely exfix because there is no need to cut through the knee and stick a metal rod through it.

Quote from: Viggen_18 on October 26, 2025, 12:48:29 PMIk this is a pretty old post and I understand that you're no specialist, but your tibia to femur ratio comes out to be around 0.87 that is above the safe range of 0.76-0.82, so what did Dr Parihar say about this, like apart from arthritis and mobility issues what sort of problems you might face, and will symptoms start appear earlier than do for normal people?

So far I havent noticed any issies related to ratio. Like no arthritic pains or anything.
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Viggen_18
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Posts: 116
Joined: Nov 2024
Posted on Nov 12, 2025, 4:12 am
#1007
With LON, can I walk assisted, for bed to toilet transfers or moving around in the room using a zimmer frame,  like after 2-3 weeks post surgery and beginning of lengthening phase? Asking you this because the most recent LON patient with Dr. Parihar has no photos or videos. How does one do PT with LON then, isn't not losing mobility a part of the rehab?
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Viggen_18
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Posts: 450
Joined: Nov 2024
Posted on Jan 5, 2026, 3:15 pm
#1008
First of all, happy new year, there's this thing that I needed to ask you, has your fibula alignment is accurate enough, I mean these has been no pain since it after all these years? You talked about the knee alignment, how is that alignment getting disturbed when you're getting the surgery on your tibias? And is exfix equivalent to LON for alignment, since you said in a post that you would definitely choose LON over exfix if you did the surgery now with your current employment status, how much worried should I be about alignment of fibula, if I go with LON, with Dr, Parihar?
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