On choosing a doctor for LL / What can you tell me about Dr. Pili?

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Quote from: badexperience on May 04, 2018, 02:07:50 AMI have had many bad experiences in consultation with LL doctors. I have visited some doctors I didn't like for different reasons (Guichet and Monegal). I will post more about my findings for the community. Advice: stay away from them.
For how long have to wait to schedule a consultation with Dr Pili? Work makes me difficult to find spots but short holidays now. Is Dr Pili better than Guichet and Monegal? I haven't visited yet but looks good. If he isn't I will quit my idea of doing LL. I can't afford Paley or Rozbruch and won't risk my legs.

What's wrong with Guichet?

Why not go for Catagni? He's Pili's mentor.

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Quote from: Bruce Wayne on May 04, 2018, 08:02:10 AMWhat's wrong with Guichet?

Why not go for Catagni? He's Pili's mentor.

Catagni doesn't treat men without constitutional short stature (160cm and under, I think), but he works with Pili when Pili is having his CLL patients.

FiveTenNeeded would know better about their relationship. Might as well ask in his diary.

And "what's wrong with Guichet"? Have you never read Unicorn's diary?

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Quote from: myloginacct on May 04, 2018, 08:27:57 AMCatagni doesn't treat men without constitutional short stature (160cm and under, I think), but he works with Pili when Pili is having his CLL patients.

Didn't know that. Dr. Pili looks so young and inexperienced in LL.

Quote from: myloginacct on May 04, 2018, 08:27:57 AMAnd "what's wrong with Guichet"? Have you never read Unicorn's diary?

I actually wanted to know from his perspective since he got the bad impression during his personal consultation.

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Quote from: Bruce Wayne on May 04, 2018, 09:14:39 AMDidn't know that. Dr. Pili looks so young and inexperienced in LL.

I actually wanted to know from his perspective since he got the bad impression during his personal consultation.

You're right. I shouldn't have phrased it that way. I need some coffee.

That was a fair and normal question.

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I send doc Pili an e-mail regarding the ATL surgery and other subjects. Here are his responses:

ME:

Ciao, Dottore Pili. Come stai?

I've been hearing a lot about you on some forums about Limb lengthening surgery and I'm really curious about some things:

1- Why is ATL surgery needed?
Some doctors and patients say that is not quite necessary and fairly dangerous.

2-  Is there a possibility that you rise your prices in the future? I'm aware that LL with HEF is around 20k € and that's a reasonable price but I'm worried that it could rise because I'm not from Europe and that means that I have to save quite a lot of money.

3- I want to stay in Italy until my recovery is finished. Do I need a visa? How can I obtain it?


DR PILI:

1 - ATL surgery is needed to avoid equinus foot deformity.
It is not dangerous at all in my experience as I never had ant serious complication following this surgery.

If you get equinus foot during lengthening (80% chance over 4-5 cm lengthening) it is necessary to achieve a good alignment, to walk during the treatment and avoid long recovery time after frame removal.

2 - It is possible for me to rise the price as I have many requests… I can keep the price for you if you will come within 1 year or so…

Do not forget you need a 30 k budget at least considering medical all costs.

3- You need a visa if you come from outside the EU, where are you from?

- A Lecter

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Rising the price only because he has much requests seems unethical to me.
Also, his answer about atl is completely wrong, first of all because atl causes permanent and severe weakness (the bigget the at lengthening the bigger the power deficit) and also because at 5cm lengthening not only 80% patients need atl but noone.
If Pili's patients really need atl ath so low amounts of lengthening then he is clearly doing something wrong. I personally think that he does atl without any second thought like doctors did before 20-30 years.
The same way of thinking had my LL doctor who ruined my legs before my second doctor did at shortening to me and giving my life back.

After all these, I really start to doubt about Pili.

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Quote from: Body Builder on May 04, 2018, 12:58:08 PMRising the price only because he has much requests seems unethical to me.
Also, his answer about atl is completely wrong, first of all because atl causes permanent and severe weakness (the bigget the at lengthening the bigger the power deficit) and also because at 5cm lengthening not only 80% patients need atl but noone.
If Pili's patients really need atl ath so low amounts of lengthening then he is clearly doing something wrong. I personally think that he does atl without any second thought like doctors did before 20-30 years.
The same way of thinking had my LL doctor who ruined my legs before my second doctor did at shortening to me and giving my life back.

After all these, I really start to doubt about Pili.

To be precise, he said 40-50% for 5cm, and "80% for over 4-5cm".

But it is really weird how opinions on ATL can differ so much among orthopedic surgeons. Did you see Giotikas' reply?

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Quote from: Bruce Wayne on May 04, 2018, 08:02:10 AMWhat's wrong with Guichet?

Why not go for Catagni? He's Pili's mentor.

MY EXPERIENCE WITH DR GUICHET

Dr Guichet is serious and rigorous. He took the time to give me a good depiction of what I could expect if I did LL with him. He is serious about the preop, training requirements and motivation letters and preop agreements. This isn’t bad. I like Guichet’s seriousness but he seemed very greedy and money-driven. Some people think preop training is bull   to make money, and I think the same. He had money in his eyes. He looked like a financial rapist who feels entitled to ENORMOUS amounts of money for routine tests. He was also cold and detached and I got the impression he would financially rape me if I got a complication (Unicorn). He was very proud of himself and his achievements, as if he was a god with no mistakes. He admitted he had had complications but blamed patients of their bad luck. Serious, responsible, rigorous but too proud of himself, greedy, callous, and detached. I decided to trust my guts and took him out of my list.

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Quote from: Body Builder on May 04, 2018, 12:58:08 PMRising the price only because he has much requests seems unethical to me.
Also, his answer about atl is completely wrong, first of all because atl causes permanent and severe weakness (the bigget the at lengthening the bigger the power deficit) and also because at 5cm lengthening not only 80% patients need atl but noone.
If Pili's patients really need atl ath so low amounts of lengthening then he is clearly doing something wrong. I personally think that he does atl without any second thought like doctors did before 20-30 years.
The same way of thinking had my LL doctor who ruined my legs before my second doctor did at shortening to me and giving my life back.

After all these, I really start to doubt about Pili.

This makes me feel depresed. I feel short but I don't want to risk my legs. I think I will finally quit this LL idea

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Quote from: badexperience on May 04, 2018, 03:33:11 PMThis makes me feel depresed. I feel short but I don't want to risk my legs. I think I will finally quit this LL idea

Take a look at elevator shoes. Essentially the same results as CLL, without any of the pain involved, for the vast majority of social situations.