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Posted on Dec 22, 2018, 6:24 am
#21

Thanks for your information and advice dear temakisushi.
Some complication appear over safe limit. But I think if anyone lengthening less than 6.5cm in tibia, he or she would come back to normal life within a year. With salamfix frame coming back to work in office also could achieve with pants and crutch. (Actually in this new forum someone came back work after surgery a month in 2018. And he felt good and work without problem.)
I learn from many real former Ller that Lee and some doctors in Beijing have many good result even with nail in Lon method. And people goal more that 7Cm should use nail for provent bone bent and avoid losing time. But the disadvantage is the about 15% or less permanent knee pain and deeper scar. And Lee or BEijing frame is difficult to work until removing the frame. But with nail it really save time and the risk is not so much actually. People always choose the method that they need most. No the best metrod just the most suitable method for every different individual.
I would choose styade or Precice first when doing femur and when coming to tibia lengthening I would do pure external for 6.5cm to keep a real 6cm height gain.
Thanks you!

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Posted on Dec 22, 2018, 7:06 am
#22

Quote from: raku on December 22, 2018, 06:24:35 AMThanks for your information and advice dear temakisushi.
Some complication appear over safe limit. But I think if anyone lengthening less than 6.5cm in tibia, he or she would come back to normal life within a year. With salamfix frame coming back to work in office also could achieve with pants and crutch. (Actually in this new forum someone came back work after surgery a month in 2018. And he felt good and work without problem.)
I learn from many real former Ller that Lee and some doctors in Beijing have many good result even with nail in Lon method. And people goal more that 7Cm should use nail for provent bone bent and avoid losing time. But the disadvantage is the about 15% or less permanent knee pain and deeper scar. And Lee or BEijing frame is difficult to work until removing the frame. But with nail it really save time and the risk is not so much actually. People always choose the method that they need most. No the best metrod just the most suitable method for every different individual.
I would choose styade or Precice first when doing femur and when coming to tibia lengthening I would do pure external for 6.5cm to keep a real 6cm height gain.
Thanks you!


The chance of going back to work in one month after surgery with external is not very high due to severe pain and inflammation
 if thing go wrong it can end up more expensive
So better save up much more than 25K even with Salameh

To avoid permanent  knee pain, need to choose a good doctor
15% chance of permanent knee pain does not mean that all doctors got the same rate

Some doctors can be as low as close to 0%, others can be more than 30%

Even with pure externals if things are not properly done, permanent pain can appear in knees or other parts of legs and body
Some  femur cases got knee problems or even nurve damage in lower leg, without cutting knees of course

External is not a dream method without permanent pains in joints

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Posted on Dec 22, 2018, 7:36 am
#23

Quote from: TemakiSushi on December 22, 2018, 07:06:46 AMThe chance of going back to work in one month after surgery with external is not very high due to severe pain and inflammation
If your reason to do Salameh is to go back to work early, better chance is with Stryde


To avoid pPermanent knee pain, need to choose a good doctor
Even with pure externals if things are not properly done, permanent pain can appear in knees or other parts of legs and body
External is not a dream method without permanent pains


Incase of femurs there is no doubt that internals is the only safe and reliable method.

But for tibia's there is a difference of opinions. You claimed earlier that alot of doctors don't recommend that anymore. Alot of doctors don't have incentive anymore for that either especially when compared to the quadrupled costs of internals. Once they start getting much more money for the same surgery they don't prefer going back to 30-40% cut made by exetrnals only.

Alot comes down to the individual as well. If one prefers to resume his everyday life asap then internal tibias is a better option with higher cost. Permanent knee pain and other complications can be avoided same as with externals. If the lesser cost or lesser invasive method is preferred then externals only can do it but longer time and more difficult management will be the downside.

For me as long as the end goal of gaining 7cm is achieved, I'd prefer lesser cost and low invasion into legs coz i can manage the increased time wearing those heavy frames and longer time away from life but its not the case for everbody.

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Posted on Dec 22, 2018, 7:44 am
#24

Quote from: Sanity on December 22, 2018, 07:36:05 AMIncase of femurs there is no doubt that internals is the only safe and reliable method.

But for tibia's there is a difference of opinions. You claimed earlier that alot of doctors don't recommend that anymore. Alot of doctors don't have incentive anymore for that either especially when compared to the quadrupled costs of internals. Once they start getting much more money for the same surgery they don't prefer going back to 30-40% cut made by exetrnals only.

Alot comes down to the individual as well. If one prefers to resume his everyday life asap then internal tibias is a better option with higher cost. Permanent knee pain and other complications can be avoided same as with externals. If the lesser cost or lesser invasive method is preferred then externals only can do it but longer time and more difficult management will be the downside.

For me as long as the end goal of gaining 7cm is achieved, I'd prefer lesser cost and low invasion into legs coz i can manage the increased time wearing those heavy frames and longer time away from life but its not the case for everbody.


Dr Salameh couldn’t avoid patient having severe complications
That’s why I don’t recommend him
The risk overweigh the merit of Salamehfix being small
Doctors should be responsible for managing post surgical process, cannot blame patients

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Posted on Dec 22, 2018, 7:48 am
#25

Quote from: TemakiSushi on December 22, 2018, 07:44:34 AMDr Salameh couldn’t avoid patient having severe complications
That’s why I don’t recommend him
The risk overweigh the merit of Salamehfix being small
Doctors should be responsible for that not patients

Sorry I don't know much about this doctor salameh. If u read my post it was just generic comparing the 2 methods.

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Posted on Dec 22, 2018, 7:49 am
#26

Quote from: TemakiSushi on December 22, 2018, 07:06:46 AMThe chance of going back to work in one month after surgery with external is not very high due to severe pain and inflammation
 if thing go wrong it can end up more expensive
So better save up much more than 25K even with Salameh

To avoid permanent  knee pain, need to choose a good doctor
15% chance of permanent knee pain does not mean that all doctors got same rate

Some doctors can be as low as close to 0%, others can be more than 30%

Even with pure externals if things are not properly done, permanent pain can appear in knees or other parts of legs and body
Some  femur cases got knee problems or even nurve damage in lower leg, without cutting knees of course

External is not a dream method without permanent pains in joints



I think 0% is difficult. Even like very rare case fat embolism is not close to 0%. From Dr. Paley, having 31years experience of Cll still had 4patient had fat embolism among 250 cases(one of the four was close to die but survive by Paley full experience.
In case of this forum and old, pure external within 7cm, there is no permanent pain cases and after removing the frame, they could run. With nail, though we could come back normal life earlier, but it is the nail working for us, not the power of our bone. With the nail, the full recover of bone would be half a year slower than pure external. Besides, pure internal just having 19 years history,(Fitbone, Dr. Betz stop to use latter now using Precice and beztbone), with preicece 7years history, and Styade lack of 1year history, we still do not know what would happen 10years or 20years later.
As for Dr. Giotikas, he is expreience with nail(Precice styade), but why he does only pure external rather than use TSF plus Lon or Latn?

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Posted on Dec 22, 2018, 7:54 am
#27

Quote from: TemakiSushi on December 22, 2018, 07:44:34 AMDr Salameh couldn’t avoid patient having severe complications
That’s why I don’t recommend him
The risk overweigh the merit of Salamehfix being small
Doctors should be responsible for managing post surgical process, cannot blame patients


In his diary, most of the patient (within 7cm lengthening), even dangerous 8cm 9cm patients is satisfied.

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Posted on Dec 22, 2018, 8:04 am
#28

Quote from: raku on December 22, 2018, 07:54:16 AMIn his diary, most of the patient (within 7cm lengthening), even dangerous 8cm 9cm patients is satisfied.


Did you read the severe complication case of Salameh?

most patients don’t share their experiences on internet
If one severe complication case appear, there can be a lot more hidden  unhappy cases

I understand lots people get interested in cheaper methods
But in reality, considering longer downtime, it can end up even more expensive
Economical loss from recovery time is quite a lot

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Posted on Dec 22, 2018, 8:23 am
#29

Quote from: TemakiSushi on December 22, 2018, 08:04:00 AMDid you read the severe complication case of Salameh?

most patients don’t share their experiences on internet
If one severe complication case appear, there can be a lot more unhappy cases hidden


Yes I read. I have no idea which ller you are talking about. If you are talking about Sam'case she did 9cm twice (18cm totally)in Tibia. With a very originally bent leg. And she just said if doing in Gemenny it would be better.
This is her original leg. I am sorry I don't know how to use imgur
 https://pan.baidu.com/s/1KKYSy-rfKnUbmaACRXlJsg
Other ller is satisfied.

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Posted on Dec 22, 2018, 9:15 am
#30

Quote from: raku on December 22, 2018, 08:23:57 AMYes I read. I have no idea which ller you are talking about. If you are talking about Sam'case she did 9cm twice (18cm totally)in Tibia. With a very originally bent leg. And she just said if doing in Gemenny it would be better.
This is her original leg. I am sorry I don't know how to use imgur
 https://pan.baidu.com/s/1KKYSy-rfKnUbmaACRXlJsg
Other ller is satisfied.

Well, better to read old forum makes me taller
There’s guy from USA having severe complications with Salameh
Not being able to work for 2years or even more

If you are Chinese I strongly recommend Dr Lee even if you want to do pure ilizarov
He is very experienced with our tibias
https://drdonghoon.com/?lang=en

I warn here because I’ve been in touch with just too many complication cases of CLL
I really hope no one suffere from it
Dr Lee is top notch expert to fix complications coming from Europe also

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