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Posted on Jun 18, 2019, 7:58 pm
#1
Hi.I'm planning to do the surgery with Dr Guichet.My biggest concern is proportions.I'm only 5'4 so i'm aiming for 7.5 cm.I'm thinking to do 7.5cm femur but i feel like I need to do combined tibia and femur.However I know that combined tibia and femur even performed not at the same time is still risky.So what do you guys suggest me to do according to the pictures?Your opinions will be greatly appreciated!

https://imgur.com/ifO4oz7
https://imgur.com/Xi2hkDU
https://imgur.com/jwSb9f2
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Posted on Jun 18, 2019, 8:28 pm
#2
Femurs would be good because compared to your tibia they are short, after 7-8 it would look fine
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Posted on Jun 19, 2019, 1:15 am
#3
Hi tom

I don't really think it is a good idea to go to Dr. Guichet, since some of his patients had severe complications although many came out with great results.  In the past, Dr. Guichet was not a bad choice because G nails are full weight bearing as compared to other no weight bearing nails such as Precice and Fitbone.  Weight bearing is a huge advantage so many people chose Dr. Guichet instead of Dr. Paley although his price is comparable to Dr. Paley's price. I also was thinking about him for a while in the past.

Now there is the another full weight bearing nail, Stryde, which is way more advanced and safer than G-nail.  Of course, Stryde is expensive and Dr. Paley is also expensive.  If you care about the price, I think you can also find some other doctors who offer Stryde at the cheaper price than Dr. Guichet.  Dr. Dimitrios Giotikas (Greece), Dr. Kevin Debiparshd (USA), and Dr. Shahab Mahboubian (USA) are currently providing Stryde at relatively cheap prices which may be cheaper than the price of Dr. Guichet. There may be more doctors soon or already who provide Stryde at the low price.

In addition, Dr. Guichet also requires some sort of preexercise before the surgery which I think is completely not necessary although it may be partially helpful. This preexercise costs money and time which killed my motivation to go to Dr. Guichet back then.

The proportion is important but the safety is the most important.  Look for more choices!

Good luck!
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Posted on Jun 19, 2019, 4:57 am
#4
Thanks for your reply.I just looked for some reviews about dr guichet and it's true many of his patients had complications.The thing is I already have a consultation with dr guichet next month.I already paid my flight ticket and booked a hotel in london.I dont know what to do now:(
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Posted on Jun 19, 2019, 5:34 am
#5
Quote from: tom paul 24 on June 19, 2019, 04:57:46 AMThanks for your reply.I just looked for some reviews about dr guichet and it's true many of his patients had complications.The thing is I already have a consultation with dr guichet next month.I already paid my flight ticket and booked a hotel in london.I dont know what to do now:(


I’m sure hotel would refund but not sure about plane ticket
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Posted on Jun 19, 2019, 6:35 am
#6
I dont know what to do anymore.I'm supposed to be revising instead i've spent like 3 hours looking for a surgeon.It looks like no surgeon is good at that point.If Dr Guichet wasn't safe I dont think UK would have allowed him to do the surgery at the Princess Grace Hospital.I know that UK is very strict about such procedures and would not allow someone incompetent to work.
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Posted on Jun 19, 2019, 8:52 am
#7
Quote from: tom paul 24 on June 19, 2019, 06:35:07 AMI dont know what to do anymore.I'm supposed to be revising instead i've spent like 3 hours looking for a surgeon.It looks like no surgeon is good at that point.If Dr Guichet wasn't safe I dont think UK would have allowed him to do the surgery at the Princess Grace Hospital.I know that UK is very strict about such procedures and would not allow someone incompetent to work.

How much is he charging you? My go to would be Paley->Rozbruch->Donghoon Lee->mahboubian->giotikas

Ignore first two if 100k is out of your budget, rest are 50-70k
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Posted on Jun 19, 2019, 12:54 pm
#8
He is charging 56000 pounds for the surgery.I emailed and told him that I want to meet with his patients currently performing the surgery during the consultation and he agreed.I think the internet is full of liars and it's difficult to trust someone online.I will see for myself whether or not he is as bad as people say he is.If he seems not trustworthy then I will do the surgery in the United States with paley or rozbruch.
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Posted on Jun 20, 2019, 1:09 am
#9
It seems that he has reduced the price over the years.  I remember his price was 65k Euro in the past.  I think the reduced price is likely due to the advance of Stryde.  It is really no comparison between G nail and Stryde in terms of reliability, comfort, and safety perhaps more.  Mechanical clicking mechanism for G nail is also annoying and somewhat painful as compared to magnetic ERC machine for Stryde/Precice.  I did CLL with Paley with Stryde. 

Right now I think the only factor that makes G nail stay in the CLL would be the price since G nail is more likely outdated.  However, 56k pounds, I think, isn't still cheap enough to offer an attractive factor.  As I said above, you can find some doctors who offer Stryde at the similar or even cheaper price than 56k pounds.  Apparently, most of doctors who offer Strdye seem to be trustworthy.   

Yes, it is true that the internet is full of liars in general and some posts/comments are wrong or inappropriate. But I found this forum very helpful and resourceful as long as you read, analyse, and think enough.  Many of them here try to help and to provide valuable information.  I am also trying to the same at the moment, although I may be leaving here someday.  CLL is a very serious thing.  Prepare enough (study, think, plan) before doing it.

Good luck!
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Posted on Jun 20, 2019, 7:13 am
#10
Thanks a lot for the reply Ghostfish.
Yea I think I need to do the stryde.Have you done the surgery with Dr Paley?
Cuz i did go to the Paley Institute in December and the atmosphere seemed quite dead.It actually scared me too.I mean the place was not at all what I expected.Please tell me if you did the surgery with Dr paley and if you did how was it briefly?I now strongly feel i have to go for the stryde method.
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