Quote from: motoboarder on September 21, 2022, 12:33:06 AMNot much. I mean it is what it is now. My arm span now is ~5cm shorter than my height. And I don't want any arm lengthening. Costs differ by doctors. My cost was $195k I think at the beginning of this year. It covered 2 surgeries + 70 hour of PT (14 weeks, M-F 1h/day).
oh ok my hand goes like perfectly in my pocket now. So if i lengthen by 10cm, i should still have the same hand position in my pocket?
I found out that my wingspan is negative because i have narrow shoulders and a small hand. My arms are actually just slightly below average.
Quadrilateral lengthening - Dr. Paley & Robbins
How much do you think your pre-surgery stretching helped? Paley said in his recent interview with Cyborg4Life that he doesn't think it helps/needed and stretching only have short term effect (was kinda surprised hearing that).
And how was the process of lengthening both segments? Did it make it harder to do stretches or anything like that?
Did you do PT in your apartment as well? Or you drove to their place from the beginning?
Quote from: hippo60 on November 04, 2022, 04:38:04 PMHow much do you think your pre-surgery stretching helped? Paley said in his recent interview with Cyborg4Life that he doesn't think it helps/needed and stretching only have short term effect (was kinda surprised hearing that).
And how was the process of lengthening both segments? Did it make it harder to do stretches or anything like that?
Did you do PT in your apartment as well? Or you drove to their place from the beginning?
Pre-stretching helped a lot, I'll still recommend it. I pre-stretched for 2 months every day.
Lengthening both segments require harder work and better preparation. IMO I think a refreshing nutritious non-depressing living environment is a HUG factor. Apparently more stretches. I stretched 3-5 times a day every day during lengthening - including the 1h PT M-F they provided.
I did therapy 1h/day M-F at Paley's PT center. I signed contract with a wheelchair van service paying them weekly to have them transport me back and forth. Then more PTs in my apartment.
Quote from: motoboarder on November 06, 2022, 06:02:26 AMPre-stretching helped a lot, I'll still recommend it. I pre-stretched for 2 months every day.
Lengthening both segments require harder work and better preparation. IMO I think a refreshing nutritious non-depressing living environment is a HUG factor. Apparently more stretches. I stretched 3-5 times a day every day during lengthening - including the 1h PT M-F they provided.
I did therapy 1h/day M-F at Paley's PT center. I signed contract with a wheelchair van service paying them weekly to have them transport me back and forth. Then more PTs in my apartment.
Yeah I read that you stretched so much - that's impressive!
Can you share a little bit about your lengthening process? Did you have any issues / numbness / tightness etc? Don't think you wrote much about it 
What do you mean by "refreshing nutritious non-depressing living environment"? Are you referring to their PT center or just in general?
How's the experience in a wheelchair van? Wondering about it as well. Do you also mind sharing how much you paid?
Quote from: hippo60 on November 06, 2022, 04:36:54 PMYeah I read that you stretched so much - that's impressive!
Can you share a little bit about your lengthening process? Did you have any issues / numbness / tightness etc? Don't think you wrote much about it 
What do you mean by "refreshing nutritious non-depressing living environment"? Are you referring to their PT center or just in general?
How's the experience in a wheelchair van? Wondering about it as well. Do you also mind sharing how much you paid?
Yeah, thanks!
Little about my process:
- My 1 issue was the 1 week delay of tibias (1st) surgery due to me catching covid lol. As a result my 2 surgeries were 2w apart instead of 3. However it was manageable for me in my 30s.
- 1-2 weeks after each surgery is pretty hard: prolonging painful in legs, very hard to sleep, sweat almost all night due to pain. I drank oxycodone almost every night during these initial periods.
- Disturbing night sleep pattern - all LLers mentioned this. Once I was in the process, I felt like it became the norm and I no longer noticed it as an issue. To aid night sleep, I usually waited several days to couple weeks to drink a 10mg oxycodone. This thing could cause addition but at my rate of consumption it didn't for me. I took naps during the day whenever the body demanded to compensate.
- According to comments form PTs at Paley's I didn't have tightness at all during the process. I think this is thank to my pre-stretch + frequent stretching + my super well living condition during the time + my lengthening goal was moderate.
- I had numbness at the front area of my right tibia toward the last 2w of lengthening. I was only lengthening femurs at this point as tibias were already done. So this was interesting. I knew another femur-only patient here who also had the same pattern of numbness. Though he almost maxed out the 8cm.
"refreshing nutritious non-depressing living environment" - I referred to my living space. Paley's care center is super awesome too. The center is super clean and smells nice. All the PTs are helpful & personable. My living space:
- Spacious 2b2ba apt for me & my sister as my caretaker. I literally relocated to FL just for this procedure. I signed a year lease so I didn't have to stress about moving out after lengthening completion.
- Took 3mo off work
- Plenty nutritious food cooked everyday by my sister
- Surrounded speakers, huge TV, xbox one, PS4, etc for entertainment. As said, I literally relocated here.
This thing by itself is critical I think:
- Single-minded mentality for LL: no pokes from nosy friends (I don't have any nosy ones), no work, no sxx, no going out (just Paley's & my home), etc you get the point. I lived as a comfortable peaceful disabled person who appreciated life during this time. By having no distraction from normal life aspects, I think it helped my mind+body take the LL process as a new norm instead of a burden. While many LLers despite the lengthening+recovery process, I myself enjoyed it (knowing that it had an ending). It gave me some new interesting perspectives of life.
Wheelchair van was good, very secure. I recommended the service I used in my sig. In fact I became good friend with the driver who ran this as his home business. Because it was his business, I'll give you a range: it's $80-$120 daily round trip. The price depends on distance, as my apt was only 4-5 miles from St. Mary hospital. Ask for discount if doing 5-day a week contract.
Wow that's super helpful, thanks!
"Disturbing night sleep pattern" - You mean you'd wake up throughout the night but you just see it as "part of the process"? At this point you were in pain or was it more of an "inconvenience"?
I read about your relocation - I think that's super smart and can definitely be a game changer. That's personally a strong incentive for me to do it locally. And totally agree with you on the mentality, hopefully I'll be in a similar mindset 
$80-$120 (let's call it $100
) per day isn't cheap. Uber/Lyft weren't significantly cheaper? Even with your sister with you, you were worried about it?
Care yo share about "It gave me some new interesting perspectives of life"? Appearing the ability to walk and take care of yourself a lot more? 
One last thing, any equipment you recommend purchasing pre surgery?
Congrats, Motoboarder, and thank you for sharing!
As you mentioned, you took three months off from work. Do you think it is manageable if I still work 8 hours/day, for example, starting from the third week post-op? Thank you!
Quote from: motoboarder on September 19, 2022, 05:42:10 PMPrecisely about 3mo & 5 days, from the day I had my 1st surgery on tibias to the last day of lengthening.
It's a bit longer than normal I think. How many mm did you lengthen per day? and how is your bone healing so far?
Quote from: akali on November 28, 2022, 08:39:47 AMIt's a bit longer than normal I think. How many mm did you lengthen per day? and how is your bone healing so far?
Total 1.25mm/day. Bone is healing fine.
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