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Posted on Dec 19, 2015, 1:13 pm
#51

Quote from: orangina33 on December 19, 2015, 06:48:18 AMYeah I think so, he did go back home to lengthen, it seems painful and complicated :S. I wonder if I can go back to Canada to lengthen but at the same time it is such a long journey and extra money but I really really don't want to stay in Russia argh

I recommend against that.  Throughout my lengthening phase, the doctors kept an eye on me and corrected misalignments while they were still minor.  If you lengthen at home and then come back at the end, you could end up with a serious misalignment needing to be fixed with drastic measures.

Misalignments happen with external frames.  The resistance of the muscles is just too powerful for the devices to handle.

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Posted on Jan 18, 2016, 3:41 am
#52

I am sure you are right, I also think that I must to plan in a way so I stay in St-Petersburg, I wonder how long it takes in total to be recovered and be allowed to come back home? From other patients' it seems it takes on average 6 months. And also do you know by any chance whether your tibia size increases in width due to surgery? Thanks so much. Quote from: Medium Drink Of Water on December 19, 2015, 01:13:43 PMI recommend against that.  Throughout my lengthening phase, the doctors kept an eye on me and corrected misalignments while they were still minor.  If you lengthen at home and then come back at the end, you could end up with a serious misalignment needing to be fixed with drastic measures.

Misalignments happen with external frames.  The resistance of the muscles is just too powerful for the devices to handle.

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Posted on Feb 2, 2016, 7:01 am
#53

Hmm, it seems that badwolf was online yesterday (Feb.1, 2016).

I've been closely following this diary. Hopefully badwolf gives us some update. I'm curious how much has he lengthened so far.

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Posted on Feb 15, 2016, 8:44 am
#54

Any updates will be so appreciated as I am sure i am not alone anxious about your results, hope all is well!

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Posted on Feb 15, 2016, 8:41 pm
#55

my it is fake profile

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Posted on Feb 21, 2016, 7:23 pm
#56

Hey Badwold,
Could you please update your diary? I´m really thinking about 3-4cm´s with Dr. Solomin so your diary is my main source of information.
Greetings

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Posted on Feb 28, 2016, 11:41 am
#57

Hi,

Apologies for the lack of updates. So far I have lengthened 6.5cm. Due to slow bone regeneration, I have stopped lengthening for the time being and am undergoing ultrasound therapy and may ultimately undergo a bone graft. The cause of my slow regeneration is, most likely, my genetics as I am eating and sleeping well, taking a large array of supplement, and am performing small amounts of weight bearing daily. (Not as much weight bearing as I would like, due to the fact that I broke one of my half-pins in December because of too much walking and had to undergo and pay for an additional operation to fix it.)

Other possible causes could be:
Lengthening too fast. (For the first 3cm, I was lengthening 1mm a day.)
Taking NSAIDs, which some say can inhibit bone growth. (I took 90mg of Acroxia a day for the first 4.5cm. Now I take nothing.)
Not enough weight bearing. (As mentioned above.)

There are other possible causes, but these are the probable few I can think of right now.
That being said, my bone IS slowly regenerating. My last X-ray shows there is noticeable cloud formation (more so on my right leg, than left), but being that it's been 5 month since my initial surgery, things are progressing slower than I would like -- especially since I would like to lengthen another centimeter.

On the bright side, I've had plenty of time to stretch and so I have neither ballerina foot nor knee bending.
Also, I've been working, studying, and taking violin lessons, so I feel like my time here so far has been well spent. (Although lacking on the social side.)

I've had quite a few requests to quote my total financial costs so far, which I will try to do in the near future. It's just quite a hassle, as I haven't been keeping an active log of all my expenses.

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Posted on Apr 1, 2016, 11:05 am
#58

Quote from: badwolf on February 28, 2016, 11:41:55 AMHi,

Apologies for the lack of updates. So far I have lengthened 6.5cm. Due to slow bone regeneration, I have stopped lengthening for the time being and am undergoing ultrasound therapy and may ultimately undergo a bone graft. The cause of my slow regeneration is, most likely, my genetics as I am eating and sleeping well, taking a large array of supplement, and am performing small amounts of weight bearing daily. (Not as much weight bearing as I would like, due to the fact that I broke one of my half-pins in December because of too much walking and had to undergo and pay for an additional operation to fix it.)

Other possible causes could be:
Lengthening too fast. (For the first 3cm, I was lengthening 1mm a day.)
Taking NSAIDs, which some say can inhibit bone growth. (I took 90mg of Acroxia a day for the first 4.5cm. Now I take nothing.)
Not enough weight bearing. (As mentioned above.)

There are other possible causes, but these are the probable few I can think of right now.
That being said, my bone IS slowly regenerating. My last X-ray shows there is noticeable cloud formation (more so on my right leg, than left), but being that it's been 5 month since my initial surgery, things are progressing slower than I would like -- especially since I would like to lengthen another centimeter.

On the bright side, I've had plenty of time to stretch and so I have neither ballerina foot nor knee bending.
Also, I've been working, studying, and taking violin lessons, so I feel like my time here so far has been well spent. (Although lacking on the social side.)

I've had quite a few requests to quote my total financial costs so far, which I will try to do in the near future. It's just quite a hassle, as I haven't been keeping an active log of all my expenses.
I'm sorry to hear that man Saint Petersburg - External Tibias - Dr. Solomin Could you give us a little update about your current situation, how would you rate the treatment you have received so far?

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Posted on Apr 2, 2016, 7:03 pm
#59


Thanks for sharing your experience with us, badwolf  Saint Petersburg - External Tibias - Dr. Solomin
I'm also considering Dr. Solomin / Dr. Kulesh to do 6cm on my tibias using external fixators (maybe LON), so I'm very much interested in your diary.

The fixators you have don't appear to be that big compared to the others I've seen. Do you think one could lead a somewhat normal life wearing these things (e.g. going to university)?
Is it possible to hide them from the gazes of other people when you wear pants with wider legs?
Do you think it was worth the money to have your surgery done in MEDEM instead of Saint Elisabeth?
Sadly, I don't speak any Russian. How hard had communication (talking to the nurses ect.) been while you were in St. Eli?
And I would love to know your total expenses too (whenever you find the time)  Saint Petersburg - External Tibias - Dr. Solomin

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Posted on Jul 7, 2016, 11:25 pm
#60

Hi.this is the first time ever i post on this forum.
dr solomin is the most affordable doctor.
i intent to do my surgery with him and this is the only diary of him.i am dying to know what happened for the last 5 months now...
badwold please let us know you are ok and tell us what has happened.....please..

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