Starting Bilateral Tibial Surgery With Dr. Paley - Dec-02-2021

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Quote from: GodsGrace on July 13, 2022, 06:09:06 PMHello Realistic, thanks for spending your time and reading my diary. I appreciate your kind words. Without this forum, I could have never imagined the LL and would have lived the rest of my life with height neurosis. It's my time to give back to the community. The older diaries will get you the knowledge but only the most recent diaries will give future LLers much more confidence as it is happening presently and make an informed decision. At least that's what happened to me when I was reading the diaries.

I am in the US with a working visa and I am an Asian.

Awesome..sent you a PM

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Quote from: Realistic on July 13, 2022, 07:08:44 PMAwesome..sent you a PM

Responded you in DM.

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A minor setback in my recovery. On the 17th of July (Sunday), I woke up with severe nerve pain near my left ankle. I thought my drop fingers situation was getting corrected. Then later during the day, I got high fever then during the night the fever came down, and suddenly I couldn't move my left leg. Around 1 AM I woke up and was shocked to see my left leg was swollen in 2 places. The site where the 2nd screw is there from the top on the left knee and also the place where lengthening was done. They were like 2 small mountain-like bumps. I could not sleep after that. I woke up (on the 18th of July, Monday morning) and I called the Paley institute and I booked an emergency appointment with Dr. Robbins.

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Dr. Robbins looked at the swellings on my left leg and asked me what did you do?. In fact, on Sunday I didn't even walk because of the never pain and I didn't do anything at all. We took an x-ray and it was good and there was nothing bad. Then he referred me to an ultrasound to ensure there were no blood clots in those spots. The ultrasound report came negative for blood clots and that was good as well. Dr. Robbins and Doug (his assistant) prescribed me an antibiotic and told me that it will be alright in a few days. I left the clinic after that.

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Quote from: GodsGrace on August 01, 2022, 03:46:05 PMDr. Robbins looked at the swellings on my left leg and asked me what did you do?. In fact, on Sunday I didn't even walk because of the never pain and I didn't do anything at all. We took an x-ray and it was good and there was nothing bad. Then he referred me to an ultrasound to ensure there were no blood clots in those spots. The ultrasound report came negative for blood clots and that was good as well. Dr. Robbins and Doug (his assistant) prescribed me an antibiotic and told me that it will be alright in a few days. I left the clinic after that.

I hope everything goes well, thanks for sharing. I hope you get well soon.

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The swelling came down in 3 days but the screw site pain never came down in fact I didn't walk for 5 days after the visit and I was completely in my wheelchair. The pain at the screw site got horrible that any small movements will pass the pain (which felt like an electric shock) to the whole body. At this point, I had the feeling that there was something wrong with the screw. The pain was only getting worse and I couldn't walk. Doug asked me to update him every 2 days which I did and on the 22nd of July, he asked me to set up a follow-up with Dr. Shannon. I went and met Dr. Shannon and she also mentioned there is a possibility that the screw might have popped out a little bit maybe 1 or 2 mm that's causing the inflammation so you are feeling a lot of pain. She asked me to take ibuprofen for a week and see if the inflammation comes down. She also asked me to apply Voltaren (anti-inflammatory topical cream) at the screw site where the swelling is.

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Hey,

are you also experiencing residual fluid in the anterior tibial muscle part (https://bit.ly/3bjNbzg) of your lower leg? Mine is still quite substantial even 9 months after the tibia surgery. Its only a cosmetic thing, other than that it doesnt bother me. Just curious on what paley might know about this?

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I followed her instructions for 7 days and the pain was still the same and there was no improvement at all. I updated the same with Doug and he asked me to schedule an appointment on July 29th. This time I was mentally prepared to ask them to remove that screw which is causing the issue as there is enough callus formation and also there are 6 screws that can hold the precise nail with the bone. At this point, I was slowly walking but limping with my left leg. Before this happened (until July 17th) I was very comfortable walking with the walker. After this, I started limping with my left. Right is absolutely fine for now.

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I went on the 29th July and hoping to meet either Dr. Shannon or Dr. Robbins. None of them showed up as they were busy. Doug assisted me the whole time. He was moving my left leg in different positions and evaluating my pain level and the screw situation and he was on the phone with Dr. Robbins. Then I asked him can we remove that one particular screw as there is enough callus formation. He checked with Dr. Robbins and said yes that's possible but they wanted to try out one more non-invasive method by giving the cortisol injection. What he explained was that once we put the cortisol steroid at the screw site where the pain is more for the next couple of days it will be more painful but after a week it should start working and theoretically it should be good for 4-6 months. I took a few mins to think about it and finally said yes. Then I asked him what if this doesn't work and he replied the last option is to remove the screw.

First, he came up with the numbness injection and he was injecting it at the screw site ouch it hurt as he was moving the needle in different directions and the needle was touching my bone. It numbed the area and he injected the cortisol at the screw site. Hopefully, it works. Fingers crossed.

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Quote from: Siegfried on August 01, 2022, 04:12:54 PMHey,

are you also experiencing residual fluid in the anterior tibial muscle part (https://bit.ly/3bjNbzg) of your lower leg? Mine is still quite substantial even 9 months after the tibia surgery. Its only a cosmetic thing, other than that it doesnt bother me. Just curious on what paley might know about this?

Yes, at first I experienced the residual fluid on my right during the last week of lengthening and I would say it was there for about 5-6 weeks after that and it is totally gone in my right. It was like a water bag and whenever I touched it I felt like touching a water-filled balloon. Now after this swelling started I experience the residual fluid on my left around the lengthened area.