Stryde update: " ....right after surgery you can start weight bearing....."

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Quote from: Honore on May 28, 2018, 05:17:01 PM@FormerKidd.. thanks, that's what I figured will happen the first weeks

@Penguinn: thanks, I was referring to stryde when talking about weight-bearing. But you proof my point. If stryde is fully weight-bearing from day 1(or after 3 weeks), but the first weeks(or even months) you can hardly move...what IS the added value of weight-bearing?

The added value is that with Stryde you'll be able to walk about 1 month after opetation while with precise 2 you won't walk, even with walker, at least 4-5 months after surgery.
And completely unaided, at least 6-7 months after surgery for about 7cm lengthening.

So the difference between unaided walking is about 6 months for 7-8 cm which is huge.
Stryde, if it is really fully weight bearing as nuvasice says, is the peak of LL and a true revolution.
I doubt if something so revolutionary as that will come to market even in 20 years from now.
So in a few words, LL may never become easier, at least with distractial osteogenesis method.

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Quote from: ZUCC420 on May 28, 2018, 08:17:02 PMBasically if your initial surgery isn't too invasive you should get the stryde otherwise your just wasting money since you wouldn't be able to walk anyway for a few months?

About a month after my surgery, I started doing hydrotherapy and walking in water.  It took a little bit of time to get it down, especially since I couldn't go to the pool on a daily basis, but I imagine if I could walk whenever, it could come back quicker.

Quote from: Body Builder on May 28, 2018, 10:40:03 PMThe added value is that with Stryde you'll be able to walk about 1 month after opetation while with precise 2 you won't walk, even with walker, at least 4-5 months after surgery.
And completely unaided, at least 6-7 months after surgery for about 7cm lengthening.

This doesn't sound right to me at all.

I was using the walker about a week after surgery - but honestly a lot of that movement was via my upper body.  And Puru (another Paley patient who posted a diary here) did 6.5cm and was able to walk after 3.5 to 4 months, it's looking like I'll be in a similar boat.

Of course, both of us did femurs only.  Tibias and quadrilaterals are much tougher, I think.

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Quote from: Body Builder on May 28, 2018, 10:40:03 PMThe added value is that with Stryde you'll be able to walk about 1 month after opetation while with precise 2 you won't walk, even with walker, at least 4-5 months after surgery.
And completely unaided, at least 6-7 months after surgery for about 7cm lengthening.

So the difference between unaided walking is about 6 months for 7-8 cm which is huge.

Actually, I walked baby steps with a walker a few days after my surgery but mostly just did standing. Some Precice 2 patients on this forum did walk with a walker during their lengthening months I think, I personally did not.

I think for me it was something like
0-3 months: standing with a walker
3-6 months: walker
6-7 months: crutches
7-8 months: partial crutches/unaided
8 months onward: unaided, slight limp and sometimes walking stick (for the left; because my right was well healed and left was lagging)
10 months post-op: Unaided with a proper, normal gait

Two things worth mentioning:
-my left leg was operated twice due to a faulty Precice 2 nail, so had that not happened I would've probably walked unaided and with a good gait around 7-8 months post-op.
-returning to your old self takes way longer than it takes to get a good gait. Even after your gait is good enough for people to not suspect anything, you won't feel normal. You'll look 100% before you feel 100%. Agility and quick turning, instantly sitting and getting up etc takes time. I've felt normal for a long time now, say 95% of my old self, but the last 5% is a slow recovery. I'm good enough to jog or cycle etc, but not good enough to play football without suk a$$ at it yet. Beautiful thing is I'm still recovering, so I have a feeling eventually I'll have a flawless recovery. I'd define a "flawless recovery" as "playing intensive sports without having any problems that a non-LLer would not have".

tl;dr if you want to do LL, you HAVE to be in it for the long haul

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agreed. but stryde if as good as claimed is ground breaking. it lets you not forget how to walk which is a BIG deal. 3 months of not walking on precice 2 would cause too much muscle atrophy. physically and psychologically you never hit rock bottom. it is like you have an annoying injury for 3-4 months, not a completely crippling one.

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@penguin .. thanks, very enlightening timeline, but almost 2 years(sept) and you are still at 95%? How come a member here(paley patient) is already jogging, bench pressing, traveling, dancing, dating... Nevermind.. I don't believe a word he is writing anyway

@body builder .. thanks, hope the revolution is true.. what about that synoste from Finland..also full weight bearing promise

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Quote from: fokid on May 29, 2018, 02:22:48 PMagreed. but stryde if as good as claimed is ground breaking. it lets you not forget how to walk which is a BIG deal. 3 months of not walking on precice 2 would cause too much muscle atrophy. physically and psychologically you never hit rock bottom. it is like you have an annoying injury for 3-4 months, not a completely crippling one.

Exactly. STRYDE is a quantum leap from PRECICE. The STRYDE patient I met is walking with crutches 2 weeks post op (femurs). I had my femurs done 2 months ago, and I'll need another 2 months to even be weight bearing, let alone walk. During these first two months, I lost 20lbs (mostly muscle, including from my upper body - bicep circumference down by 2cm), got apathetic, depressed and essentially isolated in a hotel room, limited by a wheelchair (see why).

Paying $5k on top of $90k to not be a disabled cripple for 6 months is a no-brainer.

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Well sir OYG... no answer can beat that! Stryde it is then... thank you for your suffering