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Posted on Jun 20, 2020, 4:51 pm
#21

Who actually performs cosmetic LL at ICLL? Is there evidence of patients at your center having recovered from this procedure that future patients can see? And how many cases of bilateral femur and tibial lengthening for stature has the center performed using internal nails?

I'm only asking what any prospective patient would want to know, I'm certainly not disputing the reputation of the center itself.

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Posted on Jun 20, 2020, 7:16 pm
#22

Quote from: frenchie on June 20, 2020, 04:51:27 PMWho actually performs cosmetic LL at ICLL? Is there evidence of patients at your center having recovered from this procedure that future patients can see? And how many cases of bilateral femur and tibial lengthening for stature has the center performed using internal nails?

I'm only asking what any prospective patient would want to know, I'm certainly not disputing the reputation of the center itself.


Très bon point Frenchie! Very good point, and as a patient I would wonder the same thing.

Dr Janet Conway , Dr Michael Assayag  perform CLL on adults. We have 35 patients who had The procedure done with Internal nails including Precice, Stryde, and the late ISKD that we obviously do not use anymore. I currently have 3 patients undergoing Femoral Stryde lengthenings and 1 undergoing bowleg correction and tibia CLL with external fixation. In the past year I have also performed 2 cosmetic humeral lengthenings with Precice. Although not for Cosmetic reasons, I have used successfully the new  Precice Bone transport nail twice as well.

Dr. Shawn Standard, Dr. John Herzenberg and Dr. Phil McClure perform CLL on patients with dwarfism and concomitantly correct deformities (added layer of complexity) They have performed close to 50 patients for 4-6 segments lengthenings about 15 of those with internal nails (their anatomy often not allowing for a regular sized nail to fit)

As a whole, the center has implanted more than 450 Precice and stryde nails, all indications included. I unfortunately do not have the numbers for ISKD.

And I am leaving out the countless external fixation lengthenings .

For health privacy reasons we never ask our patients to publicly testify but I know for a fact many of them  visit these forums. Some even participate.

Hope this helps answer the question the good doctors

Edit: that being said, I agree with posters who state it is important to research your surgeon and pick carefully. However it is important also to know that most surgeons deeply care about their patients , and we are heartbroken when complications happen. The good surgeon will disclose these complications and troubleshoot the process frequently. The surgery itself is easy... it’s the followup that makes the real art of limb lengthening.

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Posted on Jun 24, 2020, 5:47 am
#23

hanshi, stupid me just realized betz literally had like a 30% complication rate out of all diaries on the old forum. That's horrible. Betz should be shunned on this forum.

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Posted on Jun 25, 2020, 12:17 pm
#24

Quote from: Michael J. Assayag, MD on June 20, 2020, 02:49:28 PMIt is interesting how in these discussions, the physicians from the Baltimore International Center for Limb Lengthening (ICLL)are always left out.

Dr. John Herzenberg, Janet Conway, Shawn Standard have some of the world’s most extensive experience in limb lengthening , all techniques together! That is where the LON method was developed! There is misconception. that we don’t do cosmetic limb lengthening which is false. Dr. Herzenberg and Dr. Standard (along with Stewart Green were the 3 original designers of the Precice nail!

I myself have been a fellow of Dr. Herzenberg AND Dr. Robert Rozbruch. I currently work at the ICLL and routinely perform limb Lengthenings for both medical, and cosmetic indications. We use external fixators when indicated but have shifted most of our practice towards PRECICE and STRYDE.

Our international reputation in the field speaks for itself as we have been teaching the principles internationally for 30 years through the Baltimore Limb Deformity Course.


I hope this post will rectify the misconception and clarify that we do Cosmetic height enhancement/stature lengthening with great  results. Actually, You may not even find a higher number of limb lengthening surgeons in a single institution except maybe in Kurgan...

Dr. Michael J. Assayag, MD. FRCSC
Limb Lengthening and Reconstruction Surgeon
International Center for Limb Lengthening of Baltimore
www.limblength.org
[email protected]
@bonelengthening on Instagram


Quite informative!

However your website lacks more details about how the whole process works end to end, costs, cost for complications, etc. I mean similar to how detailed the document at Paley's website is for comparison.
Thank you

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Posted on Jun 25, 2020, 7:08 pm
#25

Quote from: ghkid2019 on June 04, 2020, 10:08:14 PMStretch. PT. Stretch. Look for callus formation. Look for bone alignment. If nerve pain ask for doctor for approval to slow lengthening rate. Stretch. PT. Walk. Not very difficult to hold yourself accountable. Non union is genetic unless you lengthen against doctors order, bowlegs and knock knees are a result of poor surgery/genetics. I remember MyEvolution saids the MAJORITY of people don't do enough PT. That's pathetic honestly. The majority are willing to succumb to laziness after having payed decades worth of savings for a life risking surgery, and still don't bother to stretch or PT enough.

PT. Stretch. Eat. Study x-rays. That's your only job after the surgery- you highly overexxagerate how much the surgeons give a fk about you. I remember one poster here literally saw Paley on surgery day and never again. You just fking email him photos and he sees if there's bone formation or not, there's nothing magical about these doctors. Based on reading logs, you would know if you have a leg length discrepancy or bad callus formation- a x-ray tech can tell you this.

Don't underestimate how busy a doctor is. They don't have personal time for you- you should be looking at your own x-rays. The best doctors doesn't give a   about you, the worst doctor doesn't give a   about you. Paley didn't fking notice preconsolidation of someone's single leg after 2cm discrepancy, MyEvolution. Rozbruch okayed the removal of programdude's precice implants in his very obviously not strong callused bone after only a year post op- within months he fractured his leg.

The only thing you need to worry about, is seeing signs of preconsolidation on x-rays, leg alignment and discrepancy, non Union, PT, stretch, and asking to slow down lengthening if you have nerve pain and that's 95% of what guarantees a a good recovery. These surgeons have so many other people to worry about, notably trauma patients and poor kids, they don't have time for you. They look at your photos in 30 seconds and make a decision. That's why MyEvolution had months of unknown preconsolidation despite Paley getting xrays. That's why programdude fractured his femur in half despite Rozbruch playing the removal of his rod. This is why you yourself are essentially the #1 person responsible for your recovery.

Guarantee a good surgeon to do the initial procedure to ensure leg alignment, and good technique for the best possible recovery (IT band release, venting to prevent embolism, minimal scar incisions). Then you yourself is the next most important step for recovery- not the doctor.


Really good point. Dr Lee also stressed in his new yt channel about the importance of patients' active efforts in rehabilitation and PT during LL. At the end of the day both the doctor and the patient's efforts matter greatly.

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Posted on Jun 26, 2020, 6:23 pm
#26

Quote from: ghkid2019 on June 24, 2020, 05:47:16 AMhanshi, stupid me just realized betz literally had like a 30% complication rate out of all diaries on the old forum. That's horrible. Betz should be shunned on this forum.

Yes, it's not only his complication rate, but also his dishonesty and  lack of care for patients. Also his whole business model is violating all kinds of laws and regulations. Betz is definitely among the worst LL doctors.

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Posted on Jun 27, 2020, 12:05 pm
#27

Quote from: frenchie on June 25, 2020, 12:17:30 PMQuite informative!

However your website lacks more details about how the whole process works end to end, costs, cost for complications, etc. I mean similar to how detailed the document at Paley's website is for comparison.
Thank you


I really appreciate the input.

We will develop a pamphlet with the necessary information !

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