Hi guys,
Someone asked me about a list of questions to ask potential CLL docs. I came up with some and thought I'd share with you as well. Always listen to your gut and don't let the docs off with evading difficult questions. Insist on seeing walking videos and not merely photos - as desperate docs will get their patients to perform short bursts of stunts to look normal. Feel free to add to these, as it's not comprehensive of course. Just stuff that I wished I had asked more clearly and had insisted on transparency. My attitude going into it was, "...others are stupid, I'm not, so it won't happen to me." How arrogant and naive I was!
QUESTIONS
1. How many have they done so far in total?
2. How many with Precice and Stryde?
3. Breakdown by male/female, race and age group?
4. What’re the oldest and youngest candidate?
5. What complications have they encountered?
6. What was the worst case?
7. What is the smallest lengthening, biggest lengthening, average lengthening?
8. Do they repair congenital deformities or trauma or are they uniquely cosmetic only? % btw CLL vs trauma cases?
9. How many nails broke?
10. How many non-union?
11. What does the price include (are complications included in the package price?)
12. Can you speak to several candidates (current and successful or failed?)
13. How do they filter who is a good candidate for CLL according to them?
14. How do they monitor during lengthening to ensure safety?
15. How do they minimize duck ass, X legs, wide legs?
16. What kind of painkillers do they use and supplements they recommend?
17. What are their preparation recommendation for undergoing surgery for potential CLLers?
18. What is the average months/years of their patients from surgery to normal walking gait?
19. What are the pros and cons of Stryde vs Precice vs ISKD vs externals? What is their preference?
20. Do they prefer femur or tibia CLL?
21. Are pre and post xrays/medical testings/scans etc included in pricing? What are extra costs to anticipate?
22. Have they turned away potential CLLers? Why?
23. Do they let you go home to lengthen or do they insist you stay w them during the entire lengthening period?
24. What are the absolutely maximum length they'd let you do for tibia and femur?
25. Do they do unilateral and quadruple CLLs?
26. Are there ongoing lawsuits? Past lawsuits? What were the verdicts and why?
27. Has the doctor moved hospitals/countries etc.? Why?
28. Has there been any death of any patients during/after CLL even if unrelated (like suicide due to mental instability?)
29. Has the doctor ever been suspended/banned or placed under investigation? For what reasons?
30. Where did the doctor learn his CLL trade?
31. Who else would the doctor recommend if you didn't go to him?
32. How realistic is it to resume pre-CLL athletic ability including skiing?
33. Has the doctor observed long term effects from his patients like early onset of arthritis etc (does he even keep in touch?)
34. Can they suggest CLL surgery insurance?
35. Realistically speaking, if one runs out of money and there are complications, what is the doctor willing to do?
UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
An important question is missing:
How many times has the doctor been sued by their patients.
hey unicorn, i read through your diary and i wanted to say you are so brave for going through what you are! and also i saw your pictures you are very pretty XD!
I'm very suspicious about this diary. The more Unicorn writes about herself , and her stories about that urine bags and letting someone else get scolded, the more I realise that we read very subjective diary. We do not really know what actually happened. We had numerous diaries from Guichet patients and non of them was even close to this. How we supposed to know if she really followed his instructions etc? We dont know but we assume that Unicorn is saying the truth even though no one can verify it.
And then attention seeking on instagram, hash-tags, words like mansplaning etc, being single and childless it really show that there might be something wrong with her. Somehow we get for granted what ever she says without any scepticism. To me she definitely has some mental problems but it is just my opinion based on how she behaves.
I would love to hear what Guichet has to say.
I wish you all the best!
you are truly my hero.
the words are not enough to describe how much admiration i have for your vitality and endurance.
Stay strong!
Quote from: doomsday on July 31, 2018, 12:36:58 AMI'm very suspicious about this diary. The more Unicorn writes about herself , and her stories about that urine bags and letting someone else get scolded, the more I realise that we read very subjective diary. We do not really know what actually happened. We had numerous diaries from Guichet patients and non of them was even close to this. How we supposed to know if she really followed his instructions etc? We dont know but we assume that Unicorn is saying the truth even though no one can verify it.
And then attention seeking on instagram, hash-tags, words like mansplaning etc, being single and childless it really show that there might be something wrong with her. Somehow we get for granted what ever she says without any scepticism. To me she definitely has some mental problems but it is just my opinion based on how she behaves.
I would love to hear what Guichet has to say.
The doctor if geuine would not let her suffer like this and have a failed case under his belt.
Read the thread its easy to see she is quite intelligent
Crazy or not it doesnt take a genius to see she cares for her health and would do what it takes to recover
and the thread explains everything. The nail doesnt reverse. Non union.
Quote from: doomsday on July 31, 2018, 12:36:58 AMI'm very suspicious about this diary. The more Unicorn writes about herself , and her stories about that urine bags and letting someone else get scolded, the more I realise that we read very subjective diary. We do not really know what actually happened. We had numerous diaries from Guichet patients and non of them was even close to this. How we supposed to know if she really followed his instructions etc? We dont know but we assume that Unicorn is saying the truth even though no one can verify it.
And then attention seeking on instagram, hash-tags, words like mansplaning etc, being single and childless it really show that there might be something wrong with her. Somehow we get for granted what ever she says without any scepticism. To me she definitely has some mental problems but it is just my opinion based on how she behaves.
I would love to hear what Guichet has to say.
Even if you took Unicorn completely out of the equation, Guichet apparently doesn't even prescribe anticoagulants/blood thinners at any point of the the CLL process, from what was shared in this diary (by LLSouthAmerica - former Guichet patient too). That's how big of an ego he seems to have. "My nail is supposedly full weight-bearing, so I don't need to worry about giving my patients increased chances of death through DVT leading to Pulmonary Embolism, or the reaming of their bones leading to Fat Embolism Syndrome. No blood thinners (anticoagulants)."
I can't blame Body Builder at all when he calls him the worst option out there. If you have the money for Guichet, just go to Rozbruch and don't deal with this man.
Quote from: Unicorn888 on July 30, 2018, 10:26:02 AMHi guys,
Someone asked me about a list of questions to ask potential CLL docs. I came up with some and thought I'd share with you as well. Always listen to your gut and don't let the docs off with evading difficult questions. Insist on seeing walking videos and not merely photos - as desperate docs will get their patients to perform short bursts of stunts to look normal. Feel free to add to these, as it's not comprehensive of course. Just stuff that I wished I had asked more clearly and had insisted on transparency. My attitude going into it was, "...others are stupid, I'm not, so it won't happen to me." How arrogant and naive I was!
QUESTIONS
1. How many have they done so far in total?
2. How many with Precice and Stryde?
3. Breakdown by male/female, race and age group?
4. What’re the oldest and youngest candidate?
5. What complications have they encountered?
6. What was the worst case?
7. What is the smallest lengthening, biggest lengthening, average lengthening?
8. Do they repair congenital deformities or trauma or are they uniquely cosmetic only? % btw CLL vs trauma cases?
9. How many nails broke?
10. How many non-union?
11. What does the price include (are complications included in the package price?)
12. Can you speak to several candidates (current and successful or failed?)
13. How do they filter who is a good candidate for CLL according to them?
14. How do they monitor during lengthening to ensure safety?
15. How do they minimize duck ass, X legs, wide legs?
16. What kind of painkillers do they use and supplements they recommend?
17. What are their preparation recommendation for undergoing surgery for potential CLLers?
18. What is the average months/years of their patients from surgery to normal walking gait?
19. What are the pros and cons of Stryde vs Precice vs ISKD vs externals? What is their preference?
20. Do they prefer femur or tibia CLL?
21. Are pre and post xrays/medical testings/scans etc included in pricing? What are extra costs to anticipate?
22. Have they turned away potential CLLers? Why?
23. Do they let you go home to lengthen or do they insist you stay w them during the entire lengthening period?
24. What are the absolutely maximum length they'd let you do for tibia and femur?
25. Do they do unilateral and quadruple CLLs?
26. Are there ongoing lawsuits? Past lawsuits? What were the verdicts and why?
27. Has the doctor moved hospitals/countries etc.? Why?
28. Has there been any death of any patients during/after CLL even if unrelated (like suicide due to mental instability?)
29. Has the doctor ever been suspended/banned or placed under investigation? For what reasons?
30. Where did the doctor learn his CLL trade?
31. Who else would the doctor recommend if you didn't go to him?
32. How realistic is it to resume pre-CLL athletic ability including skiing?
33. Has the doctor observed long term effects from his patients like early onset of arthritis etc (does he even keep in touch?)
34. Can they suggest CLL surgery insurance?
35. Realistically speaking, if one runs out of money and there are complications, what is the doctor willing to do?
Thank you, Unicorn.
Quote from: hanshi on July 30, 2018, 10:37:06 AMAn important question is missing:
How many times has the doctor been sued by their patients.
Indeed.
Quote from: myloginacc on July 31, 2018, 07:45:31 AMEven if you took Unicorn completely out of the equation, Guichet apparently doesn't even prescribe anticoagulants/blood thinners at any point of the the CLL process, from what was shared in this diary (by LLSouthAmerica - former Guichet patient too). That's how big of an ego he seems to have. "My nail is supposedly full weight-bearing, so I don't need to worry about giving my patients increased chances of death through DVT leading to Pulmonary Embolism, or the reaming of their bones leading to Fat Embolism Syndrome. No blood thinners (anticoagulants)."
even dr parihar does not give anti coagulants from the 2 diaries here.
Any doctor that doesn't give anticoagulants after a so invasive surgery as LL (epsecially internal) for at least 1 month after surgery is truly dangerous.
And Doomsday, a man who suffers from an illness or a doctor's fault usually becomes more sensitive and "unstable" as some people, who never had any significant health problem, would say.
But I can truly understand Unicorn as I was in the same condition after the crapy atl I had and I would have gone totally nuts if I havent fixed it.
So before judging so hard, think about what she says. She has a huge nail for her bone, Guichet force anyone to lengthen unstoppably for 1mm per day which could lead to non union and after all, she has a huge non union! How can that be her fault?
It cant. And Guichet is a butcher for prescribing antiinflammation drugs which are a bug NO during LL as they lead to non union, for forcing his patients to lengthen very fast, for not prescribing anticoagulants which may lead to death! and for so much more. And all these with almost the price of Paley but with an obsolete and useless nail.
So yes, that doctor is the worst out there for LL. Simple as that.
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