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Posted on Apr 24, 2019, 1:45 pm
#1161

Quote from: BeYourBest on April 24, 2019, 01:20:22 PMWhy are you sayings its so F'd up?

what is so "fk'd" up with what I wrote? Try to see the truth...I have received PMs from other members. Some former patients, some on the fence.. they all agree with me but the toxic climate on this forum makes them stay silent.

Look at the other who replied to me, one went to russia and cant feel his lower leg. Other can only "walk, swim and go to gym" and he is content with that. I am not going to engage in debate with people who think that is a good outcome and keep endorsing LL to newbies.

I dont have any issue yet but that doesnt mean I cant criticize what this forum has become: a deception to newcomers. That LL is some kind of magic pill to turn around life. Its not, its filled with permanently injured patients at times masquarading as they're recovered 100% and is conquering the world just because of LL. Because their pride cant accept they did the wrong decision.

And I never called LL to be outlawed, but regulated. Weed out unsafe procedures and surgeons.

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Posted on Apr 24, 2019, 3:31 pm
#1162

Nothing is fked up with what you are writing regarding the reality of LL perhaps. And straight after that question I said "we know it is", which I mean like we do know the reality is F'd up. However, hearing what your personal experiences are is more interesting as you are currently lengthening. We all can read the rest if needed. But yeah, I have agreed with you in the past also that this is serious sh*t out here. I also hope people think deeply before committing.

But like you said you have committed and I wish you the best. It's a shame that you feel that LL will not change your life but maybe down the years it will for the better. Thank you for informing us that you don't have any issues yet. Information like that is helpful for prospective LLers. Albeit, we know every patient is different, it is nice to know that you are doing well as it eases our minds. Good luck on your journey!

Anyway, as we are on Unicorn's diary, I wish her the best recovery.





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Posted on Apr 25, 2019, 7:02 am
#1163

Im going to be simple, choose a doctor that shows you his current patients and atleast one recovering patient and dont lengthen more than 5cms per segment and you should be fine. We all know there are risks but we do it anyway. I just did 4cms on femurs and im recovering fine.

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Posted on Apr 26, 2019, 11:35 pm
#1164

Quote from: 4cms on April 25, 2019, 07:02:12 AMIm going to be simple, choose a doctor that shows you his current patients and atleast one recovering patient and dont lengthen more than 5cms per segment and you should be fine. We all know there are risks but we do it anyway. I just did 4cms on femurs and im recovering fine.


Unfortunately there are doctors who manipulate and hide their bad cases. Read here

Quote from: LLuser1 on December 08, 2015, 12:10:54 AMDr Monegal doesn’t tell the truth about his patients. He uses to prepare a tour for his prospective patients, like a salesman does. He shows them the clinic and the guesthouse but he only shows what he wants them to know.

In October some prospective patients visited Dr Monegal’s center and met some actual patients. I have visited the center. Glenn described this tour in his diary. Everything seemed fine but the doctor didn’t tell all the truth to his future patients. He introduced these people to all his current patients but one girl who was also at the guesthouse and who has had very serious complications (Musicmaker??). This is for me a case of dishonesty. I learnt about this after my trip.

I can understand that this is a difficult surgery and sometimes things go wrong, but doctor said none of his patients had had complications which wasn’t true.

After the trip, I made some research. I asked some people (patients and people from the forum) and got to know that it’s not only this girl who had problems, but other people. It seems there is one American guy whose implant failed. Dr told him that he had to be exfixed and he had to pay around 7000 eur. Finally the company sent a free implant for him but it failed too and he had to go to OR again. It isn’t about money but about all the trauma and suffering for that guy. It seems he hasn’t been compensated.

I don’t have more evidence of this than what I have been told.  Perhaps patients and doctor himself can explain but I think people should know about this. I feel deceived by the doctor. Dr Monegal should have acted like honest doctors do and say, ‘Look, guys, I try my best, but sometimes complications occur and these are the complications I have had’. But he lied. He said all his surgeries were fantastic and it seems there were at least two people with major complications and other people with other problems like misalignments, screws getting loose and nerve problems which required additional surgeries and consultations with other surgeons.

There are many LL doctors like that. They are businessmen instead of doctors. It seems LL corrupts doctors.


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Posted on Apr 30, 2019, 1:39 pm
#1165

After seeing How badly Dr Guichet destroyed her legs if people saw no one would ever go to Dr guichet ever again
Look up Unicorn_gets_taller on instagram.
I promise if you see her legs you would never consider dr Guichet.
I dont know if shes better now but she was walking crooked and pretty much crippled and awkward.
I really hope you're better unicorn and not like what i seen in those instagram videos.

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Posted on May 1, 2019, 8:31 am
#1166

Heres her instagram judge for yourself

https://www.instagram.com/p/Bt_KV48hMK8/?utm_source=ig_web_copy_link

https://instagram.com/unicorn_gets_taller?igshid=1j3uwvu6kganu

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Posted on May 10, 2019, 6:48 pm
#1167

Hi everyone,

I'm so sorry I've not been here at all.  Since the last bout of shilling from Guichet, I've been so traumatized I couldn't even bear to risk coming here and reading the toxcity by accident.  Because I know it will be etched in my head forever and anything I've read will never be unread.

That said, just wanted to update you guys that I've since seen my NHS doctor this morning and unfortunately, they need to perform my 5th surgery now because my right leg which received the DBX (cadaver bone) graft last year had only healed on the part where the graft was applied.

However, the underside where the graft wasn't applied (I never realized grafting can be only 180 degrees and not 360 degrees) has not fused at all.  Again, further proof that Guichet's wait-and-see approach was not going to obtain 'miraculous' results, even after waiting 3 years now.

So NHS will graft me this time with a more invasive manner.  They're going to extract abt 1cm cube of my hip bones and apply that to the back of my right femur where it wasn't grafted last year.  My understanding is it is an excruciating process that could result in a lifetime of pain in the hip area.

In addition, the lead surgeon told me they will not remove the gnail from my body because the nail is way too big for my cortices and even after consolidation, trying to remove it might shatter everything.  Part of the problem is the nail was lodged too high in my hip area and hence, dislodging it would be quite a brutal process.

I'm so numbed out because I had naively convinced myself that my life had to move on and that it did already.  However, this news is quite a stark reality check for me and has set me back to my dark days of hiding under the covers of my bed.

What saddens me most is I always thought that after CLL, I would at least have 1 kid on my own by the time I turn 45 years old.  This is now such a far distant dream due to the fact that not only am I not physically able to bear full pregnancy weight on the guichet nails and unconsolidated bones - I'm left bereft of finances to even feed myself, much less a child.

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Posted on May 10, 2019, 7:59 pm
#1168

Nice to see your update unicorn. I hope everything goes fine for you from now.

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Posted on May 10, 2019, 8:37 pm
#1169


Your story is so sad! I hope your next surgery is the last one. CLL doctors who destroy their patients' lives should be deprived of their licenses. Let's fight together against these psychopaths.

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Posted on May 10, 2019, 11:47 pm
#1170

Quote from: Unicorn888 on May 10, 2019, 06:48:49 PMHi everyone,

I'm so sorry I've not been here at all.  Since the last bout of shilling from Guichet, I've been so traumatized I couldn't even bear to risk coming here and reading the toxcity by accident.  Because I know it will be etched in my head forever and anything I've read will never be unread.

That said, just wanted to update you guys that I've since seen my NHS doctor this morning and unfortunately, they need to perform my 5th surgery now because my right leg which received the DBX (cadaver bone) graft last year had only healed on the part where the graft was applied.

However, the underside where the graft wasn't applied (I never realized grafting can be only 180 degrees and not 360 degrees) has not fused at all.  Again, further proof that Guichet's wait-and-see approach was not going to obtain 'miraculous' results, even after waiting 3 years now.

So NHS will graft me this time with a more invasive manner.  They're going to extract abt 1cm cube of my hip bones and apply that to the back of my right femur where it wasn't grafted last year.  My understanding is it is an excruciating process that could result in a lifetime of pain in the hip area.

In addition, the lead surgeon told me they will not remove the gnail from my body because the nail is way too big for my cortices and even after consolidation, trying to remove it might shatter everything.  Part of the problem is the nail was lodged too high in my hip area and hence, dislodging it would be quite a brutal process.

I'm so numbed out because I had naively convinced myself that my life had to move on and that it did already.  However, this news is quite a stark reality check for me and has set me back to my dark days of hiding under the covers of my bed.

What saddens me most is I always thought that after CLL, I would at least have 1 kid on my own by the time I turn 45 years old.  This is now such a far distant dream due to the fact that not only am I not physically able to bear full pregnancy weight on the guichet nails and unconsolidated bones - I'm left bereft of finances to even feed myself, much less a child.


Guichet needs to pay for what he's done even if we just spread the word on what he's done to unicorn.
We really should send him messages to give unicorn all her money back.
Unicorn if you send me your full name i can send him a message if you want.
We should all hound him and tell him until he deposits all of unicorns money back we will all spread the truth about him here on the forum.
#Refundunicornhermoneyback.

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