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Posted on May 11, 2019, 12:33 pm
#1191

Quote from: fodawupa on May 11, 2019, 07:55:11 AMunicorn ur story is sad. ur opinions of guichet are 100% right. he is very very very unethical. ppl should never forget to trust their own judgement before putting full faith on a doctor in a forum board. i think this guy was banned from marsaille in france and so he went to italy. if u ask he will tell u that there is no "world class isokinetic center" in marsailles. as if that is the only one pt center that can help an LLer. marsailles has a professional football club, dont tell me they travel to isokinetic center in italy for pt.
if u tell him u dont have time for pre-op training or logistics issues, then he will happily say it's ok its not necessary anyway.

he is an arrogant monster. a rogue surgeon. he shouts if u question anythng he is uncomfortable about. he "shouts".


also unicorn i am happy u are thinking responsibly about having a child. having a child is a LOT of work and responsibilites. u are bring a new life and are responsible for everything of that child. everyone underestimates the effort and responsibilities of raising a child. dont take any rash decisions until u are emotionally stable. think of whether u can support the child financially, socially and mentally for at least 25 years of the child's life.

all the best!


Yes, all true.  Let me put it in plain words.

1)  PRE-OP TRAINING £3000

Not necessary.  Many surgeons laugh at this gimmick.  It's a great way to charge £3k extra.  One of my classmates arrived in London 10 days before his surgery and joined us at the gym.  He was aghast when he later received an invoice for £3k pre-op training that he did not subscribe to nor was notified about beforehand. 

And the PT is the very same one who does everything else.  He instructs us to do sets on 10 machines and 1 cardio, and leaves us to juggle his other responsibilities.  Guichet is never present at the gym, pre or post op.

2)  CYBER TESTS 2 x £170

Again, not necessary as it means nothing.  Better yet, I failed my cyber test on one leg and yet I was approved for CLL.

3)  PRE-OP PSYCHIATRIC EVALUATION £300

Might be helpful but in my case, he passed me with flying colours and wanted to continue seeing me to help me solve why I'm still single (!).  And the psychiatrist on the Guichet approved list was located outside London, in a makeshift office above his parking garage with a broken down sofa.

In addition, 2 non-native English speaking female patients of Guichet automatically failed their £300 psychiatric evaluations.  And the ONLY option left was for them to get another last minute evaluation (from Guichet's approved list) with an additional fee of ~$1k more.  At this price, they passed with flying colours.  We were all crying because Guichet had threatened her that if she didn't pay and pass her 2nd psychiatric evaluation, he would cancel her surgery and confiscate her surgery payment.

So the irony is, no test was administered on us and the most basic DSM-IV diagnosing tools were not even used.  But one of these girls got labeled 'Narcissistic Princess' by Guichet, which I'm sure is not a mental disorder.  And a doctor who values discretion should not be trash talking his existing patients to newbies.

4)  PRE-OP TESTING PACKAGE £5000

All the pre-op tests are conveniently included in this prepaid package and we get a brand new Guichet backpack as well. Wow.  However, when one of our classmates signed up for it, he was shocked that most of the test centres he went to on Guichet's approved list didn't even have a pre-paid agreement with Guichet.  So this patient had to pay double and then beg for his £5k back from Guichet.

5)  HYALURONIC ACID £2000

He prescribes 6 syringes of hyaluronic acid for us to buy for ourselves before surgery so that he can use it during surgery.  But he then tells us not to buy it ourselves as he can obtain them cheaper from France.  So after surgery, he told us he didn't have time to buy the cheaper French version and had to buy it last minute at Princess Grace Hospital (who charges 20% extra dispensing fees) and that we will 'bleed' when we find out the price.  This is one of the excuses he uses, for not refunding back our initial £3k surgery deposit.

In addition, I never realized patients are expected to procure their own in-surgery medications?  I mean, was I supposed to bring my own anaesthesia mix as well?

6)  ISOKINETIC CENTRE

So the only upside of going to the Isokinetic centre is they have a nice bathtub for hydrotherapy.  But we probably got 5 sessions in a 2-month period.  For the rest of the time, the professional Isokinetic trainers are not allowed to touch us.  They're allowed to watch us while we do our stretches and even then, they're usually not even there the whole time.  So it's a gimmick yet again.

The more sinister part is the doctor at Isokinetic actually contradicts Guichet and dispenses separate advice regarding the speed with which we were being lengthened, and the timescale we were promised for full recovery.

And recently, a potential LL patient went to inquire at Isokinetic in London if they could help him with post-op physiotherapy after he gets lengthened by another doctor.  Lo and behold, his data got shared by Isokinetic to Guichet, and he received a phonecall from Guichet trying to persuade him to use the g-nail instead.  So this potential LL patient freaked out and filed an official complaint regarding the violation of private information.  Isokinetic promptly issued an extensive apology letter for this data breach.  Guichet is not officially affiliated to Isokinetic.  https://www.isokinetic.com/en/staff/londra/18302683/

AND MORE

And the list goes on...  Better yet, former patients who had finished lengthening would continue to receive invoices.  In my case, after I had fully paid up for my first 3 surgeries, 8 months after... I received an invoice for £30k more because he now claims I had not paid Administration Fees for each prior surgery (which in the fine print are fully included), the extra years of his diligent monitoring and lastly, for the g-nail that he broke when I was under anaesthesia.

So you guys can imagine that as patients, we were so stressed out as we were not used to being so harrassed for money before and many of us broke down emotionally because we were in pain, we were blind, we were shouted at (one classmate got punched in the stomach) and we were constantly being milked by the very hands in which we had entrusted our lives.

It's like the fox who guards the hen house.  That's what we were, helpless crippled hens.

CONCLUSION

Total Guichet staff during our lengthening period (9 patients) between July to October 2016 = 1

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Posted on May 11, 2019, 6:18 pm
#1192

Quote from: wannagrowtaller on May 11, 2019, 12:53:26 AMUnicorn, you said it’s impossible a bone graft would be able to fill the 10cm gap non union you have. What have changed? Why the bone graft is working?

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Posted on May 11, 2019, 6:42 pm
#1193

Quote from: wannagrowtaller on May 11, 2019, 12:53:26 AMUnicorn, you said it’s impossible a bone graft would be able to fill the 10cm gap non union you have. What have changed? Why the bone graft is working?


Hi Wannagrowtaller,

The answer is inbetween.  The NHS doctors grafted me in June last year with cadaver bone chips (DBX).  They sliced me open 10cm on the side of my femur and packed the gap with DBX (see photo).  Almost 1 year later, xrays show the area is almost fused thinly.

However, they didn't cut me open on the other side of my femur because usually, when bone grafts work, they slowly grow around and fuse 360 degrees.  In my case, there's still nothing on the other side.

Hence, NHS wants to bone graft me more aggressively this time by harvesting my own hip bones.  They mentioned the recovery time could take up to 3 months and the pain might be lifelong for some people.

So that's that.  I was hoping last year's surgery was my last.  So the answer is yes, the bone graft worked a bit.  And no, it didn't fully heal me.

Does this make sense?  I'll post my latest xrays here when I get the CD
https://www.instagram.com/unicorn_gets_taller/

 UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016

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Posted on May 11, 2019, 7:29 pm
#1194

hey unicorn so sorry to hear about all the long term complications you had to deal with. Do you think all this couldve been avoided if you wouldve gone with another doctor like rozbruch or paley or do you think it could've happened with any doctor ?

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Posted on May 11, 2019, 8:01 pm
#1195

Quote from: kanye007 on May 11, 2019, 07:29:19 PMhey unicorn so sorry to hear about all the long term complications you had to deal with. Do you think all this couldve been avoided if you wouldve gone with another doctor like rozbruch or paley or do you think it could've happened with any doctor ?

Yes, it could.

First Paley or Rozbruch would not insert 13mm nails on her leg
Second they would not prescribe anti_inflamatory drugs to her
third they would watch the callous carefully and not permit lengthening without callous
fourth the precice nails would not involuntary click till 10cm.

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Posted on May 11, 2019, 8:48 pm
#1196

Quote from: kanye007 on May 11, 2019, 07:29:19 PMhey unicorn so sorry to hear about all the long term complications you had to deal with. Do you think all this couldve been avoided if you wouldve gone with another doctor like rozbruch or paley or do you think it could've happened with any doctor ?


My current long term complications are caused by :

RIGHT LEG

My right leg was lengthened too quickly with no bone consolidation.  Then, it ran away to 10cm because Guichet's nail cannot stop nor reverse.

Had I not gone to the NHS after Guichet told me that it was normal to have wound sites oozing green, I might have never realized that all the things that happened to me was not entirely my fault and that they were not normal occurences.  The head orthopaedic surgeon at the NHS hospital cried during my first consultation with her, and she wrote in her report that she has never cried in front of a patient before.

In fact, it was the NHS who opened my eyes eventually, in June 2017.  Before that time, I had trusted Guichet fully and agreed to be operated by him 3 times, with each surgery making my situation worse and worse.

To this date, 3 years later, my right leg has not fully consolidated.  The NHS grafted me last year with cadaver bone and it healed on one side.  They plan to graft me again with my own hip bones this time around, to heal the other side which remains non-union.

LEFT LEG

The second complication happened when Guichet rammed a large size 13.00mm g-nail into my asian femurs.  Everyone, even Guichet himself, annotate that asian females usually have smaller diameter and brittler bones.  Here's an article he posted in this forum just 3 months before my surgery in 2016.  For perspective, most large diameter nails for male lengtheners do not exceed 12.5mm.

UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016

Hence, during this initial surgery, he created an eggshell fracture near my left knee.  He said it was not a big deal but 2 weeks later, while moving in bed, I heard a crack followed by blinding pain.  I called Guichet for a morphine patch because the pain was excruciating but he told me that it was probably due to my bones fusing too fast.  So he had me take blood thinners to slow down fusion (!!!) and a high dose of aspirins (NSAID).  In addition, he made me go to the gym for physiotherapy and asked me to lengthen at a faster rate.  I was delirious with the agony and trauma of manually twisting my leg to lengthen, when it was so broken.  This is what your xray looks like when your g-nail cracks through your bone.

UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016

My nurse fed me sleeping pills over 4 days while Guichet was out of town.  When he returned, he finally sent me a script for xrays and realized that indeed, my leg was broken and it was NOT fast fusion.

So Guichet operated on me a 2nd time in September 2016 to push the g-nail back into my bone.  By this point, my body was suffering from severe scoliosis because my right leg had run away and my left leg was shattered in pieces (see imaging here).

UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016

By February 2017, my left shattered leg finally healed and I could restart the lengthening process again.  My 3rd surgery was slated for 1st Feb 2017 but Guichet failed compliance at Princess Grace Hospital.  So my surgery was cancelled and I had to wait until he got reinstated.  We waited for months with no clarity as to when he would be allowed to operate in the UK again, so finally he asked me to get my 3rd surgery in Milan in April 2017.  All these surgeries were fully funded by myself.

During this 3rd surgery, Guichet broke his own nail inside my body and had to hammer pieces out through my left knee causing chronic knee pains for years after.  He inserted another g-nail and subsequently, invoiced me for an additional £30k for his defective nail and extra fees for monitoring, PT and admin.  He abandoned me in July 2017 and in his notes to my NHS doctor, he claims that he referred me to her as it is illegal for doctors in the UK to abandon their patients without further care.

Thank goodness, the NHS also has their own set of records that conflict with Guichet's version of events.

CONCLUSION

Yes, I may be an older asian female and perhaps most ethical doctors should reject me.  That said, we are now a large group of lentheners in a global chat community and there are asian females in my age group who are successfully lengthening with other doctors, without suffering ANY of the above complications.

One key factor here, few to no females receive 13.00mm nails.  And the 2 asian females who received Guichet's 13.00mm nails ended up with damages like these.

UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016

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Posted on May 14, 2019, 12:20 am
#1197

You should tell him to give you your money back unicorn or you'll go to the French media with story.
You gotta fight for yourself too!
You have to bully the bully.

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Posted on May 14, 2019, 12:56 am
#1198

Hi Unicorn
I feel terribly sorry for you.  I just really don't know what to say for you.  Be strong and continue to fight for yourself! 
Hope things will be better soon for you.

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Posted on May 14, 2019, 5:32 pm
#1199

Stay strong unicorn ... I'm glad the NHS is helping you ...

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Posted on May 16, 2019, 4:56 am
#1200

Isn't Dr Giotikas in NHS?

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