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Posted on Jun 15, 2020, 11:32 pm
#1311

Hi Kenda this is unicorns diary so i will just leave the link for my diary,

http://www.limblengtheningforum.com/index.php?topic=64740.0

if you want to post on it we will chat there

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Posted on Jun 16, 2020, 2:42 am
#1312

This is the reason because reversible nails are better, because they can help in case of non union.

(If I am wrong, please, quote me with correct info, and I will strike the text)

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Posted on Jun 16, 2020, 3:41 am
#1313

Quote from: Polvorón on June 16, 2020, 02:42:12 AMThis is the reason because reversible nails are better, because they can help in case of non union.

(If I am wrong, please, quote me with correct info, and I will strike the text)


You're right. It's one of advantages of Precice/Stryde in comparison to Betzbone and the Guichet Nail.

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Posted on Jun 16, 2020, 1:58 pm
#1314

Quote from: seriouslyinjured on June 15, 2020, 11:32:52 PMHi Kenda this is unicorns diary so i will just leave the link for my diary,

http://www.limblengtheningforum.com/index.php?topic=64740.0

if you want to post on it we will chat there


Wow, I went through your journal and you and I had so many similar 'complications'. Chin up and keep fighting ok? We'll get there eventually and will be made whole again.

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Posted on Jun 16, 2020, 2:05 pm
#1315

Quote from: BetzLandLiberator on June 16, 2020, 03:41:57 AMYou're right. It's one of advantages of Precice/Stryde in comparison to Betzbone and the Guichet Nail.


In the past, for those of you born after Stryde came out UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016, we had a choice of either :

1)  Guichet Nail = Fully weight bearing but manual lengthening (painful as crap)

2)  Precice =  Non weight bearing but remote lengthening (in wheelchair for months)

Hence, with Stryde which is the new Precice nail with weight bearing features, it renders the Guichet/Betz nails obsolete. Stryde is fully weight bearing AND remote lengthening. So you get the best of both worlds.

In addition, Stryde/Precice nails allow you to stop and reverse, which comes in crazy handy when you have non-union because you can shorten and wait for calluses to grow. This saves you from having to undergo further unnecessary surgeries unlike with the Guichet nail, you need to be operated on to shorten/stop (if even possible).

Further, Stryde/Precice nails don't runaway whereas the Guichet nail cannot be reversed, stopped and worst of all, in the case of non-union, it can runaway to its maximum length (10cm).

So in a medical paper published in the '90s, the correct way of using the Guichet nail is actually to maximize the nail to your agreed length goal before insertion. Hence, since my length goal was 7cm, Guichet being the 'inventor' of this nail should have known better to take the extra precaution to click away 3cm, so that the max lengthening for me would only be 7cm.

But of course, throw caution to the wind... and here I am, 4 years and 5 surgeries later...

There're many reasons why doctors don't take this precaution and one of them is the fact that there are actually repeat LL patients who lengthen to 5cm, recover but not remove the nail. And several years later, undergo another osteotomy to lengthen the rest of the 5cm to a total of 10cm before removing the nail.

This is an incredibly easy repeat business / double profit for doctors, hence, they'll always leave that option open at the expense of runaway risks.

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Posted on Jun 16, 2020, 4:07 pm
#1316

I just got the operative report from my 5th surgery and one thing that jumps out is significant metallosis.

https://en.wikipedia.org/wiki/Metallosis

Over time, some implant nails can corrode and degrade releasing metallic debris that gets circulated throughout the body via the bloodstream. The metal material can accumulate at the original implant site as well as in adjacent or distant tissues and organs in other parts of the body which can lead to significant health problems for patients including metal toxicity/poisoning, inflammation, pain and even cause various diseases and disorders.

Apparently, the Guichet nail shed significant metal debris that required reaming and debridement of my femur bone area. In some ways, I'm thankful that the Guichet nail broke and I needed to expel it from my body, once and for all. The long term consequence can lead to necrosis of the bone and tissue around the nail, blood poisoning and who knows what else after that? Sepsis? Amputation?

The symptoms of metallosis are:

  • Pain around the site of the implant (even when not moving)
  • Pseudotumors (a mass of inflamed cells that resembles a tumor but is actually collected fluids)
  • Necrosis
  • Loosening of the implant
  • Osteolysis
  • Metal toxicity
  • Blood poisoning
  • Neurological damage


This probably explains why my right leg hurt so much during these 4 years even though it is the leg that didn't fracture and had no activity nor bone fusion. It really feels like the Guichet nail is the gift that keeps on giving... Please, stop already with the endless generosity UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016

I think I truly won the jackpot in terms of worst-case scenario of a lengthening patient. Or I'm suffering the onset of 'neurological damage', worst basket case of a lengthening patient UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016

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Posted on Jun 16, 2020, 4:24 pm
#1317

WHAT YOUR TISSUE LOOKS LIKE WHEN REMOVED

UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016

THIS 2018 XRAY COULD BE A PSEUDOTUMOUR FROM METALLOSIS

 UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016

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Posted on Jun 16, 2020, 10:06 pm
#1318

Quote from: Unicorn888 on June 16, 2020, 04:24:27 PMWHAT YOUR TISSUE LOOKS LIKE WHEN REMOVED

UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016


Necrosis. Is that......yours?

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Posted on Jun 16, 2020, 10:24 pm
#1319

Quote from: Arrogance on June 16, 2020, 10:06:08 PMNecrosis. Is that......yours?


Top is not my photo, bottom is my xray. Easier to show what metallosis looks like since it’s the latest thing I’ve discovered that’s plaguing my leg. Life is like a box of cocoa, or rather caca 💩 in my case.

I feel like one of those police officers who scare high school kids with grisly photos to deter them from reckless behavior, like leg lengthening 😂

Eureka! We can post emojis? 💸🦵🪓🦿🤕👩‍🦽🚑 🏨💉💊🚷🖤☠️

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Posted on Jun 16, 2020, 11:06 pm
#1320

Quote from: Unicorn888 on June 16, 2020, 10:24:18 PMTop is not my photo, bottom is my xray. Easier to show what metallosis looks like since it’s one new thing I’ve discovered that’s plaguing my leg.

I feel like one of those police officers who scare high school kids with grisly photos to deter them from reckless behavior, like leg lengthening 😂

Eureka! We can post emojis? 💸🦵🪓🦿🤕👩‍🦽🚑 🏨👩🏽‍⚕️💉💊🚷🖤☠️

Oh thank God. You had me worried for a second. Jokes on you these days huh?  UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016 UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016 UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
On a serious note though, yeah you definetly saved some people from Guichet and maybe others from doing leg lengthening alltogether

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