UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016

Edit Post

Hi UNICORN, how are you, long time have see you update, just worry about you

Edit Post

For whatever his reasons were, he says now my new lengthening on my left leg (which has yet to begin still), will be doubly slower than my previous experience.  So, it's either too fast or maybe being Asian, I'm a slow healer who'll not form bones quickly irregardless of how fast or slow I lengthened.  Again, this surgery is sooo experimental and individualistic, it's hard to pinpoint what is exactly right or wrong, because everytime we think we chance upon a solid theory, someone else has a completely different experience.

I just met an Asian girl who broke her femur while playing polo.  It took her 1.5 years to finally form bones and worst, her fracture resulted in one shorter leg, so she had to do some lengthening to regain her disproportionate leg.

So I can't tell.  Neither can Guichet.  He claims it's only happened to him one other time where a patient had one healed leg and one non fused leg.  Whatever.

Edit Post

Quote from: snowcloud on March 04, 2017, 01:26:03 PMHi UNICORN, how are you, long time have see you update, just worry about you

Hi Snowcloud,

Thanks for your concerns.  Didn't mean to ignore you.  I keep getting banned from this forum with no end date.  Whatever that means.  So I can't log in most of the time.

I've absolute no news to report as no news fr the wonderful doctor either for over 2 weeks.  I give up.  I guess when you become a liability to a doc, you're prob not top on his priority list.  In fact, I think if I got hit by a bus tomorrow, some people would be quite relieved.

Edit Post

Quote from: Unicorn888 on March 05, 2017, 04:00:49 PMFor whatever his reasons were, he says now my new lengthening on my left leg (which has yet to begin still), will be doubly slower than my previous experience.  So, it's either too fast or maybe being Asian, I'm a slow healer who'll not form bones quickly irregardless of how fast or slow I lengthened.  Again, this surgery is sooo experimental and individualistic, it's hard to pinpoint what is exactly right or wrong, because everytime we think we chance upon a solid theory, someone else has a completely different experience.

I just met an Asian girl who broke her femur while playing polo.  It took her 1.5 years to finally form bones and worst, her fracture resulted in one shorter leg, so she had to do some lengthening to regain her disproportionate leg.

So I can't tell.  Neither can Guichet.  He claims it's only happened to him one other time where a patient had one healed leg and one non fused leg.  Whatever.

You should try HGH nad stem cells

Edit Post

Quote from: Unicorn888 on March 05, 2017, 04:06:02 PMI keep getting banned from this forum with no end date.  Whatever that means.  So I can't log in most of the time.
Sorry you're having issues. If you're not logging in from a proxy server then it could be the case that wherever you're staying shares an IP with a previously banned user. Best way to sort it out is type Admin in the recipient field when sending a message and ask what's going on.

Edit Post

I'm so sorry to feel you're so gloomy, and even more about Guichet not being supporting enough, now that you needs the greatest psychological help, after almost an year of dealing with such painful situation. I now don't know what to think about him anymore.

I didn't know about asian bones being the harder to heal, I thought you say it was a sex issue. Do you think the problem is mainly racial genetic, or it also depends on an excessive lengthening or not enough pre-op preparation? Do you think that stopping at 6cm, would it have prevented the complications?

I wish you the best. Stay strong!

Edit Post

I'm still overall happy with my choice to go with Dr. Guichet. But I agree, he is sometimes very hard to get in touch with, and if you're not one of his "current top priority/brand new patients," (and I'm very surprised to hear that you're having to wait, given your problems, you should be a top priority), you will often wait to hear from him. I think he's a brilliant man and a great surgeon, but sorta scatterbrain-ish. Oftentimes, very brilliant people are.

However, I will say...if Dr. Paley or Dr. Rozbruch offered a weight bearing solution where I could have been on crutches throughout the entire lengthening process, I would have gone with one of them (only because I'm from the USA). Dr. Rozbruch removed one of the screws from my femurs, and I have to say, he's very responsive and very easy to work with. Hoping he can help me with my knee pain (Dr. Guichet wants me to go to Milan to see him, but it's not exactly a hop skip and a jump, plus the cost - so I dunno).

I feel your pain. LL really does take forever. If I can resolve my knee pain, I may just leave the nails in. Now that the left screw was taken out, I have no pain at all on the left side, just the right knee pain (which I'm hoping to resolve).

Edit Post

Hello, does anyone know if guichet is putting 13mm nails in all patients? I wonder whether too large a nail for smaller bones is affecting healing?

Edit Post

Quote from: YellowSpike on March 08, 2017, 04:43:13 PMI'm still overall happy with my choice to go with Dr. Guichet. But I agree, he is sometimes very hard to get in touch with, and if you're not one of his "current top priority/brand new patients," (and I'm very surprised to hear that you're having to wait, given your problems, you should be a top priority), you will often wait to hear from him. I think he's a brilliant man and a great surgeon, but sorta scatterbrain-ish. Oftentimes, very brilliant people are.

However, I will say...if Dr. Paley or Dr. Rozbruch offered a weight bearing solution where I could have been on crutches throughout the entire lengthening process, I would have gone with one of them (only because I'm from the USA). Dr. Rozbruch removed one of the screws from my femurs, and I have to say, he's very responsive and very easy to work with. Hoping he can help me with my knee pain (Dr. Guichet wants me to go to Milan to see him, but it's not exactly a hop skip and a jump, plus the cost - so I dunno).

I feel your pain. LL really does take forever. If I can resolve my knee pain, I may just leave the nails in. Now that the left screw was taken out, I have no pain at all on the left side, just the right knee pain (which I'm hoping to resolve).

I just came to the realization after spending the entire day crying that when you're lengthening, at least for myself, I'm really alone in this.  Guichet ignores me because as you rightly say, because I'm not a brand new patient with monetary promise, but rather a hideous cripple he would rather not have limping in the same waiting room as his potential patients.

I found out yesterday thanks to someone on this forum, who was sitting outside Guichet's office waiting for a consultation in London, that Guichet is back and seeing patients.  I dialed Guichet.  Caught, he picked up and cheerily said, yes yes, we'll see each other soon, don't worry and I'll talk to you later.  So he has had time to be in London, accept appointments to see new potential patients but preferred to ignore me.  He texted me today saying I'll inform you asap when I have news, only after I rang his office since he has not followed up from his brush off yesterday.

So Yellowspike, you're right!  The monsters like myself are to be swept under the rug.  I've lost hope in this last 1 month since he cancelled my surgery.  I've lost respect for him as a doctor and a fellow human being.  As brilliant a surgeon as people claim him to be, he still created the eggshell fracture during my 1st surgery under x circumstances.  And then, not having the decency to prioritize the complicated cases before the shiny £55k new patients and extorting as much financially and emotionally from my vulnerable situation.

I know I have to dig deep and find more strength to get myself fixed with Guichet or without, but I do advise you potential LLers out there, do prepare for the worst, please.  Because when that happens, you'll quickly see, even your classmates distance themselves from you, and some will even throw you under the bus to curry a little favour with the doc (his patients are beholden to him because he delays refunding patients their surgery deposits - so patients do sell each other out to finnagle that deposit back from him).  Now I understand the paranoia with this forum.  And yes, there are worst things not being mentioned here due to blackmails and threats and yes too, that classmates lost jobs and suffered real consequences.  Please ask yourself if this is worth the good things you've got going in your life?

It's all great and good with all the success stories, but do investigate far and deep into the skill, integrity and reliability when things go wrong.  And I know now, with this surgery, the risk is very high and when crap hits the fan, the price to pay is exponential on all levels.  Don't just gloss over all the easy experiences, spend time analyzing the disappointing ones too.  Ask yourself, what would you do if you got the short end of the stick?

I'm not worried about repairing my legs but I'll be forever scarred by the endless deceit and how I've been treated.  It's funny that for all the suffering I wrote at the beginning of this journal, my brains do block out the excruciating pain (unless I smell something that reminds me of the hospital, medication or chemical urine).  But, the real damage my brains cannot block nor process, runs spiritually deeper.

I've lost so much hope and trust in people, that even if I get taller one day and am walking perfectly again... the irony is, my strive to be beautiful outside, has made me become an uglier person inside.

When my bones got broken, a part of me broke too and that I'm afraid, I do not know how to heal from.

Edit Post

Thank your for being sincere Unicorn. I can't imagine the pain and distress you are having. I truly wish you the best.