The thread on old forum is out of track, I know.
There are several reasons why nobody should ever go with the monorails. If all LL-veterans say never to go with monorails there MUST be a reason behind it!
I cheer for you Disobedient, I really do.
It doesn't matter if you're a little overweight right now. Your body heals better that way.
We don't need to discuss your weight if you don't want to. For the future: Do a fat% measurement with a personal trainer and you'll see how you are doing.
It has nothing to do with being perfect.
Don't be shy to post pictures, this is the first out in the open quadrilateral LL-diary so far. What is the point of starting it if you're going to leave it like many others often do?
Didn't you wish there was such a diary before you left?
Ask shorty to start a diary too.
Regarding him standing. Ummm, well if his doctor tells him to...... I just know he really shouldn't do that but it's his decision.
I lived in India with a guy who did cross-lengthening. He could absolutely not stand up with the monorail on his femur.
Another guys femur totally shattered when he was carried up the stairs.
I really hope you will make this journey! And ask Shorty to at least say he is doing fine.
VERY FERST STEP - INDIA - Dr. Anil Raheja
Please continue your diary. Everyone that does something that others don't understand or do not approve of will be criticized and get shots thrown at them. Don't mind those people. This diary is your chance to show everyone who doubted you that they were wrong in doing so. Please keep writing. I wish you lots of luck with your LL journey!
Quote from: BullSurfer on December 02, 2013, 09:26:19 PMI just don't understand the naysayers. Diso is fine and so Shorty. Why are you guys so adamant that this technique is inferior or will cause harm. I believe most doctors know what they're doing, unless that doctor never went to medical school.
Keep up that smile Diso, you're almost there. Some pics would be nice, just the gears and legs. I don't think you're overweight, these guys are perfectionists.
I am actually starting to think that although monorail is not that good that Dr Sarin’s carelessness made it look worse than it really is.
Most of the guys who are very concerned are from Dr Sarin’s guest house or members who read stories about guys who did monorail with Dr Sarin.
DSB has already achived 5cm if I am right AND with 4 broken ones.
She is in much better hands in terms of care. She appears to be getting adjustment operations as soon as a potential issue is noticed.
Now it urns out there is a guy who is doing Exactly the thing as DSB and is also in good spirits with no major issues to date.
I am starting to think that Dr Sarin’s failures with monorails had more to do with his actions than the device itself.
LETS NOT FORGET THAT THE MOST COMMON OR FAMOUS STORY ABOUT MONORAILS ON FEMUR THAT TURNED OUT TO BE A HUGE FAILURE WAS OF A CARAZY+6.
CRAZY+6 TRIED TO GAIN 4 INCHES WITH MONORAILS BEFORE RECOVERYING FROM ANOTHER SURGERY WHERE HE GAINED SOMETHING LIKE 3+ INCHES.
We also saw pictures of a guy who had been butchered alife by Sarin …. Haha aha ha h haa
The question is…Are monorails really that bad or were they in Dr Sarin’s careless hands
How many ppl will never do externals because of Captain America’s bent illizarov fames?
Who was bad? … the frames or the doctor??..
Monorails is that bad. I know of several stories from china and other parts from India.
America's device got bent bc he had very muscular legs. If the device were stronger I'm not sure that would happen.
There is so much more around monorails than just pulling the bones apart.
I agree with Adriano, maybe Sarin ruined this method for everyone, also, no one in their right mind would do 4 inches, that's just too greedy. People who's greedy will always run into obstacles.
I compare LL doctors to artists, a good artist will make any canvas look good with his brushes. The bad artist will ruin the canvas by overdoing or under-doing.
To Sweden, I thought you had your LL in Sweden, am I wrong? When did you witness the Monorail derailed? Why don't you tell us a few stories about how bad the Monorail system really is.
There's nothing inherently wrong with monorail fixators. The Mitkovic fixator is a monorail design and I've known people who've had LL successfully with it. Jungle could stand with them. Bianca could walk with them.
A patients femur broke: 
Scars from another monorail patient: 
Another patient suddenly got osteoporosis and had to change the monorail to an Ilizarov.
The muscles in your thighs get seriously damaged. Some patient report very sensitive knees and they can never go for a run, only slightly jogging.
Another reports from totally loss of feeling in the lower leg. Nerve damage. Got only slightly better after 2 years.
There is much more. The device can fail in a couple of ways, higher risk of infection, extreme muscle atrophy, way longer recovery time due to not being able to move, extremely painful physical therapy(sometimes my roommate screamed so loud the entire building got the shivers)
But if you're satisfied of only being able to have a very quiet life where you only exist then take the chance.
I want to do more than just walking around.
Disobedient, they're right when they say that what's the point of starting a diary and then leaving it. You're a pioneer in a way 'cause you're the first quadrilateral diary that has ever been posted. The whole CLL community is interested in yours as well as shorty's story. I send you my best vibes!
Quote from: Leonardo2013 on December 03, 2013, 02:29:05 PMDisobedient, they're right when they say that what's the point of starting a diary and then leaving it. You're a pioneer in a way 'cause you're the first quadrilateral diary that has ever been posted. The whole CLL community is interested in yours as well as shorty's story. I send you my best vibes!
Agreed 100%. Don't get discouraged, keep us all informed. We're interested in your LL experience!
I would like to see you continue this post too Diso.
Thanks Sweden for the Monorail pics.
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