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Posted on Nov 26, 2013, 7:04 am
#121

Assalamualaikum disobedient. How are u doing? Have u heard of exogen bone growth stimulator? I suggest u try that in conjunction with stem cell.
How is ur friend shorty doing? U've got guts, girl and i applaud u for that.

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Posted on Nov 26, 2013, 7:28 am
#122

Quote from: hand_sanitizer on November 26, 2013, 07:04:51 AMAssalamualaikum disobedient. How are u doing? Have u heard of exogen bone growth stimulator? I suggest u try that in conjunction with stem cell.
How is ur friend shorty doing? U've got guts, girl and i applaud u for that.

I would maybe argue that if anything she wants her bones to grow slowly at this stage.  To allow her soft tissues to catch up which, at the moment, are being stretched in many directions.

Stay strong Disobedient.  VERY FERST STEP - INDIA - Dr. Anil Raheja

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Posted on Dec 1, 2013, 11:47 pm
#123

Hello everyone

it's 5 am , and I still can't sleep,, there is no serious pain.. but I think I slept too much during the day..anyway so I told myself why don't i update you guys. VERY FERST STEP - INDIA - Dr. Anil Raheja.

two days ago I went to meet dr rah because the ring stuck and i couldn't do the usual turns so he changed its place and he told me that everything gonna be fine ...
I did my x-ray too and I noticed two important things
firstly : the misalignment  in my right femur has been fixed  :)however there was still misalignment in left femur

Secondly: I didn't gain any extra millimeter .. ! it was a week after  my last x-ray(I rested for 2 days ), so I have to be lengthened an extra 1 cm VERY FERST STEP - INDIA - Dr. Anil Raheja

so I discuss that with Dr rah and he told me he will do operation for the left femur right away.. so I don't have to worry and he added I don't have to pay anything too VERY FERST STEP - INDIA - Dr. Anil Raheja

and about my second point he said that during the operation of fixing the alignment of the femur I may lost some millimeter...

anyway I did the operation " well it's a simple operation I didn't take the Anastasia but it wasn't so painful"... the good thing that I  was able to see that the misalignment in my left femur has been adjusted  VERY FERST STEP - INDIA - Dr. Anil Raheja

so by that I get back to distraction phase again and for doing 2mm/day.. I think I'll stop at the new year no matter what height I reached




BullSurfer

hi..I'm doing good and thanks

hand_sanitizer

I just google it.. and it seems it's effective..but I don't know if I could find clinic here in India that doing it also about the stem cell I asked dr rah again and he said NO i don't need it and he'll not gonna give it to me unless if I have a problem VERY FERST STEP - INDIA - Dr. Anil Raheja  I don't know if I should be sad or happy because of that, but  so far " I think" I'll follow his advice this time

shorty is doing well.. he can bend his knee 85 degree..he started to left his legs one day after the surgery..

An_Apple_A_Day

what will happen if I speed up the consolidation?  I didn't see any problem associate with that






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Posted on Dec 1, 2013, 11:54 pm
#124

Nice to hear from you.  VERY FERST STEP - INDIA - Dr. Anil Raheja

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Posted on Dec 2, 2013, 5:00 am
#125

Disobedient, give us some pics, please!

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Posted on Dec 2, 2013, 5:51 pm
#126

This is absolutely not a good idea to do CLL . There are far more other advanced techniques to do CLL .
I dont know how you ended up doing monorail and on top of that quadrilateral.
I m not trying to make you feel bad or something. But so far from my experience i think you are ruining your life.
I saw people do monorail on femurs and it dosent look good , the scars and the pain they had to go through.
If there are any reverse mechanism to do then i think you should it straight away. Forget about lengthening .
Now is your chance , dont think you u came this far and now there is no turning back or something.
Be practical , you were kicked out from old forum  cause they know this is dangerouse. Everyone around the world are doing external fixator cause its safe . If u can reverse this lengthning then i suggest you should do it right away.
This is my suggestion ... i will pray for you . 
Shame on the doctor who is doing this surgery. Do your research on limb lengthening experts and try to consult other doctors over the phone or email. Do it now or you wil regret your whole life , this is not a joke .
I really feel concerned about you .
Your well wisher.

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Posted on Dec 2, 2013, 7:30 pm
#127

It is no use trying to talk sense to anyone. If you don't tell them what they want to hear they call you stupid and everything. They are not even ready to discuss your point of view.

A well, let them experience it the hard way....

There is so much more in life that you want to do than just being able to walk.

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Posted on Dec 2, 2013, 8:15 pm
#128


Sweden

QuoteShe is already out of shape to begin with. I'd say she had 15kg over weight when she started


no I'm not... I'm 56kg what is over weight in this!!
and just to recall your thread in old forum  is not to ask for more unbiased advice VERY FERST STEP - INDIA - Dr. Anil Raheja


Machine

oh good  I was worry that I banned from old forum  because I asked about bicycle exercise..
BTW I didn't mention on old forum  that I'm gonna do the both parts.. so again what did you say they banned me for?

Leo

I don't think I'll post any pics of me anymore except my x-ray..

however shorty took many pics of himself  while he's standing, bending his knee and walking
I really want to post his pictures just to proof that the result and complications of ll surgery is vary from one person to another
me and shorty did the same surgery with same doctor, however he was able to left his leg from the 2nd day, he is bending his knee 85, he can stand for 5min, and he came to my room today by walking on his legs !!!
I think he did better than a "regular"  LL patient can do " when I said regular I mean who did one part" ...
anyway I'll see if he will let me post his pics ..



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Posted on Dec 2, 2013, 9:26 pm
#129

I just don't understand the naysayers. Diso is fine and so Shorty. Why are you guys so adamant that this technique is inferior or will cause harm. I believe most doctors know what they're doing, unless that doctor never went to medical school.

Keep up that smile Diso, you're almost there. Some pics would be nice, just the gears and legs. I don't think you're overweight, these guys are perfectionists.

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Posted on Dec 2, 2013, 10:52 pm
#130

Quote from: Disobedient on December 01, 2013, 11:47:51 PMAn_Apple_A_Day

what will happen if I speed up the consolidation?  I didn't see any problem associate with that


I'm no surgeon or doctor so it is only conjecture with which I say this; but, if your bones are regenerating fast and you need to turn quickly to avoid premature consolidation you are going to torture your soft tissues.  Your bones don't need to stretch and be supply like everything else, the more and more one reads the more one learns LL is actually a case of looking after your muscles and nerves.  There are lots of trick to get bone non union to sort it self out.  Very little for nerve damage or torn muscle/tendon issues.

Just look after yourself.  You are a long time living.  You want it to be comfortable and happy, not messed up from rushing these few months of your life.

Take care.

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