VERY FERST STEP - INDIA - Dr. Anil Raheja

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Oh dear lord in heaven!!
I'm thinking of becoming religious just to pray for you girl.

There is no chance in this universe that you can weight bear in 10 weeks.
Even some patients with rods inside their legs break the rod after a full year.

I really hope nothing bad happens to you and if it would, then please write about it in here so future patients can benefit from it.

I have to stop reading this. I'm having trouble sleeping bc of it..... 
I'm seeing pictures in front of me where you try to stand and one bone snap so you fall and hitting the ground makes the rest of your bones to break. I'm sorry but it's just so horrific!

I hope I don't get the chance to say: I told you so....

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Hi Claude,

I mentioned about the misalignment in the previous post, and how Dr Rah said he'll fix it within few weeks ..
Is my callus so bad? I think my callus in tibia is pretty good, I'll do next x-ray in few days and I'll post it ,maybe in these 3 weeks I develop good consolidation ..
I have caretaker here who stay with me  for 12h..
and yeah you sound just like if you was my mother   
BTW she doesn't know that I had LL  , but she keeps asking me to be careful and stay healthy , and funny thing last time I spoke to her via Skype  she asked me to stand up to see my height    (I never mentioned to anyone that I'll do LL) but OMG mom is much better than god she can sense what I did even though I'm miles away from her.

Medium Drink Of Water

you're right about the left femur but it is actually 6mm longer, that's is why I stopped distraction for all parts except the left femur I did 1mm for 6 days...

about your first two sentences I'm not sure if I get it right , how did you assume that the mechanical and anatomical axes are okay?

if these are the mechanical and anatomical axes that you mentioned


then I guess mine is totally not okay
I was planning to post my x-ray in you thread to ask you but since you're here what do you think about my callus,  note I took this xray 3 weeks ago ?

Sweden

Did I look so tall in your dreams 
I don't think my callus is so bad ! and for sure I think I'll post any thing important will happen ..
But if my dr think that now is the right time to remove the frame I'll do it.. I wanna to get rid off these frames as soon as possible
the thing is that I think I spent enough time with the frame about 3months with 8weeks more this is approximately 5 months, many ppl removed their frame after 6 months.. Also   I'm not planing to stand or walk a lot.. I'll do few steps using the walker and I'll stand for just few min using the walker again so I don't think I'll break my bones if i do so ..

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Hey Diso,

Sometimes belief will trump everything. Just focus on positive aspect and be cautious, this will carry you through.

When I said big money and easy gain I meant 60k for Paley or 45k for internal nails. Those people are treated like kings and doctor's butt will turn for them to kick when they feel pain.

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I wasn't saying the axes are fine, I was saying maybe they're fine.  Just because the bone is curved doesn't mean the axes are bad.  The whole femur needs to be seen to calculate them, and the top isn't in the x-rays.

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disasters occur when every1 is optimistic and no one points out what is realisticly likely to happen.

First of all, Your Dr is telling you what you want to hear and not what you should hear. 

1) there is no way you will be weight bearing in 10 weeks!!!

2) it is very obvious that the femur on the right hand side of your x-rays is out of line. yes bones (femurs) are naturally curved but yours is way out of the centre of gravity. The bone is going to snap/break under pressure when carrying weight.

Unless the newly formed bone thickens to about 150% of the thickness of the rest of the bone then it is all going to end one way my friend.

3) While you may be light weight and may get away with the bone snapping there is another obvious problem that's going to occur with the femur being at an extended  angle to the tibia. Yes..u guess right my friend. You are going to have knee pain and or extremely early/ premature arthritis.

while time, money and height r an important part of you life right now it wont be long before you suffer from the decisions you have made about ur LL.

Is it just me who thinks her femurs where cut too the knee??
I think this is the reason why her femur is mis-alighned.

Didn't your Dr know that the femur consolidates faster when cut high up the thigh??

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Ya mama she knows everything 
So when is he going to fix the misalignment ?
Yeah 6-10 weeks is BS, i think everyone agrees.
Being disobedient is ok sometimes but not always cutie 
I would advise you to be suspicious about your doc.
BE CAREFUL

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Quote from: Adriano on January 13, 2014, 10:00:03 AMdisasters occur when every1 is optimistic and no one points out what is realisticly likely to happen.

First of all, Your Dr is telling you what you want to hear and not what you should hear. 

1) there is no way you will be weight bearing in 10 weeks!!!

2) it is very obvious that the femur on the right hand side of your x-rays is out of line. yes bones (femurs) are naturally curved but yours is way out of the centre of gravity. The bone is going to snap/break under pressure when carrying weight.

Unless the newly formed bone thickens to about 150% of the thickness of the rest of the bone then it is all going to end one way my friend.

3) While you may be light weight and may get away with the bone snapping there is another obvious problem that's going to occur with the femur being at an extended  angle to the tibia. Yes..u guess right my friend. You are going to have knee pain and or extremely early/ premature arthritis.

while time, money and height r an important part of you life right now it wont be long before you suffer from the decisions you have made about ur LL.

Is it just me who thinks her femurs where cut too the knee??
I think this is the reason why her femur is mis-alighned.

Didn't your Dr know that the femur consolidates faster when cut high up the thigh??

I must admit I was also surprised about the low cut of the femur bone...

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Her knee has been floating in her legs. Scary 

It's been a year since I did my first surgery and I still can't straighten my legs fully as one should be able to.
It will take much longer time for Diso 

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Diso,
 
I agree with Claude your tibias seem fine (you can even see some callus  starting to form there) but your femurs seem slightly misaligned -- definitely talk to your doctor about it. As far as your knee ROM (range of motion), wait until you get your frames remove before you start to worry about it. The pins going through your thighs are the ones creating the tension/contracture of your knee extensors (quadriceps) but once the rails come off and you start physical therapy you will be normal again. I haven't had CLL yet, but I studied PT, so there's my two cents to you. Stay strong!
BTW, read this article about femoral lengthening and knee contracture:

http://www.ncbi.nlm.nih.gov/pubmed/8156696

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A lot of decent advice in this thread.  That's what this new forum needs to be about, cold heart truths and not a kind of fairy tale worls that old forum  became.  I knew people personally who were  having complications and old forum  was altering diaries to suit his money making schemes