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Posted on Feb 6, 2014, 4:26 pm
#271

I wouldn't risk it. If you get the frames off now and break a bone, you'll have to be in a plaster 3+ months anyways. It's really not worth the risk. Go see more orthos if you can and get their opinions. Perhaps you could even ask Dr. Franz Birkholtz, who kindly answers patient questions on this forum.

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Posted on Feb 7, 2014, 12:49 am
#272

It's good to hear from you Disobedient.  We thought you may have died!  VERY FERST STEP - INDIA - Dr. Anil Raheja  I agree with the comments about resting for a few months.  The last thing you want to do is try to do something too early and end up hurting yourself and having to spend even more time in bed.  You have to rebuild a lot of bone in 6 large bones.  It takes time. 

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Posted on Feb 7, 2014, 1:29 am
#273

Diso. U can not stand without a rod inside. Doing so will prolong ur recovery time, I guaranty it. I honestly think U should move to sringari's care home. Pm me if u want the details. I'm suggesting this out of pure concern, no bad intentions here.

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Posted on Feb 7, 2014, 1:37 am
#274

I just reread ur previous post. Ppl wear the frames up to 10 months doing 8cm and u expect to do this within 10-12 weeks? Sometimes I wonder if u really did adequate research on this procedure. Ur legs will snap and u will be crippled, I reluctantly agree with Sweden on this and u have no one to blame but ur own stupidity. Having courage and having no brain are 2 entirely different things, I hope u're not the latter.
God u're as stubborn and blind as my ex wife.

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Posted on Feb 7, 2014, 1:40 am
#275

Diso, even if your doctor tells you to he will remove the fixator now, do not do it. If you do that and stand up, it's a certainty that you'll end up with snapped bones. You're worried about 3 months now, how long do you think you'll be unable to move with fixators on you after you've got snapped bones? Tough it out now for a better result in the long run.

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Posted on Feb 22, 2014, 4:46 pm
#276

Diso, are you ok? Did you get your X-rays? Please, give us a quick update.

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Posted on Feb 23, 2014, 10:24 am
#277


Hi leo

there is no much things to say actually..
I msged Dr rah and he said to wait 6 weeks more ..the callus is good but not good enough to get the frame removed..
so basically I can't do anything now but waiting ..6,12 or 24weeks  .. I have to wait , VERY FERST STEP - INDIA - Dr. Anil Raheja
as I have been lying on my bed for last 5 months, so I developed a very good habit " being so lazy", I didn't contact any other dr yet, everyday I say tww I'll do that, but this tmw never come..

I do sometimes have thoughts of returning home, since I'll have emotional/financial support from my family,  I think that is what family for!!
but this would be a big failure for me, returning home with wheel chair will make me looks like I'm not mature enough to make the right decisions .. so I want to save my ass from listening to such a thing.

I have the hard-copy of the x-ray but the soft copy still didn't get it, since the RT didn't know how to save it in my USB .   

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Posted on Feb 23, 2014, 1:45 pm
#278

Just reading this thread gives me a realization how CLL is really fraught with physical and psychological challenges that every patient must overcome.

I'm not gonna give you an "I told you so" speech but instead hope that you come out well out of this.

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Posted on Feb 23, 2014, 4:11 pm
#279

Diso,

Hang in there. Wait the time that be necessary until you're sure your bones are dense enough to remove your frames. You definitely don't want to remove them and have a fracture and have to start consolidation all over again. BTW, how is Shorty doing? How many cms is he doing?

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Posted on Feb 23, 2014, 4:13 pm
#280

Diso,

Hang in there. Wait the time that be necessary until you're sure your bones are strong enough to remove your frames. You definitely don't want to remove them and have a fracture and have to start consolidation all over again. BTW, how is Shorty doing? How many cms is he doing?

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