VERY FERST STEP - INDIA - Dr. Anil Raheja

Edit Post

You'll never recover past 50-60%. Just my wild guesses but that's the way it is when doing what you've done.

You have to struggle real hard in 3-4 years. Try to find a good physical therapist.
And read more about what you've done and about nutrition that can help you on your way.

I was right before regarding the nail and I'm right now. It's not that I'm throwing it in your face or anything so no need to get pissed off.

Really hope for the best outcome possible. Try to listen to your body.

Edit Post

Hi Dis,

Are you worried about your scars when your frames are taken out? I'm sure it's big deal for everyone but more so for women.

Best.

Edit Post

How is your final alignment Diso?

Make sure it is perfect because, once your bones have consolidated past a certain point, any misalignment will become permanent.

Edit Post

Claude

I don't know.
I'm not planing to tell them about LL,but if they'll  notice my new height I will just say that I got HGH treatment ..
and to be honest if I have money, I wont bother myself by returning home now, maybe  after 3or4 yrs, when everybody will be almost forgot me..

Smallguy

No, he is just doing external.
I'm sure the only reason that motivate you to do it with him is because of the cost of the operation
why don't you try to contact  this hospital ?
http://www.bangalorepediatricortho.com/servicesmore.html
they're preform both Fit bone and ISKD, and since it's in India it has to be cheap.

Sweden

if I'll be able to walk decent after 3or 4 months , that would be enough for me right now ..
and I can give myself some months more till I can be able to run again, and when that will  happen I'll consider that I recovered 90%.. it's not that I was athletic before LL
 
and I'm not regretting choosing just external  cuz as I read the nail inside cuz a permanent knee damage, nor regretting doing quad lengthening cuz Paley is doing it right now ..
it just I thought it wouldn't take such long time to remove the frame...

you know that Indian PT are suck and know nothing, beside I want to give myself a rest till they remove the frame, so yeah after that I should find a good PT


medicore

after removing frame I'll start using silicone gel sheets till I save some money to have surgical scar removal. it's not so expensive in India though, but having multiple scars that would be costy..


Tall

humm I still have misalignment in my right femur, according to Dr rah he'll fix it later, cuz he don't want to disturb that callus right now.
and he told me that if the misalignment was 10-30% it could be fixed by the time like after 1.5 yrs

Edit Post

Quote from: Disobedient on February 26, 2014, 10:09:12 PM he told me that if the misalignment was 10-30% it could be fixed by the time like after 1.5 yrs

I don't think this is true. A bone can't be moved at all when it's fully consolidated. I can't change the shape my never-broken femurs at all now without breaking them. However, I'm not an expert so if someone else could chime in, it would be very helpful.

Edit Post

30% malalignment is huge!

Edit Post

Yeah , I didn't find this convincing too, and I'm kind of worried about it since I read carzy6 has knee pain because of the misalignment. To be honest I believe Dr Rah will not fix it, cuz he is keep saying that the misalignment is okay and not bad!   


and just to be accurate

((Dr rah said this "he'll fix it later, cuz he doesn't want to disturb that callus right now.
and its okay if the  misalignment was 10%

Dr Kumar said " if the misalignment was 10-30% it could be fixed by the time like after 1.5 yrs  " ))

but that wont make any difference since both of them work at the same hospital

Edit Post

Crazy 6 has all sorts of pain... not just knee pain. And his opinion of doctors reflects who he is currently working for.

I just looked at your x-ray. I have seen worst, including myself. And it is already what it is. Your bone is consolidating so there is no chance of fixing anything now.

I don't think you'll have arthritis.. if you keep to a healthy nutrition that includes a lot of leafy green vegetables, anti-oxidant and omega 3. I haven't felt any pain since I came back home. And I think the indian diet is very bad.

Maybe you don't feel it now. But you are 5'4 now? That's a perfect height for a girl. Whatever pain and difficulty you have endured, when you stand up, it will be a world of difference. Just make sure you pop those calcium tablets and do some exercises like sit-ups in your bed. That way you'll recover more quickly.

12cm.. in 2 segments. That's a remarkable achievement. Just make sure you do everything as told by your doctor at this point on.

Edit Post

Diso,

Just to know your opinion since you've had both tibias and femurs lengthened and almost for the same amount 5.5cm. If you were to have lengthening again with monorail frames but just one segment, which one would you choose tibias or femurs. In other words, which one was easier for you and why? Thank you.

Edit Post

Small Guy

Maybe you're right about crazy6, and it is relieve to know that your x-ray was worse than mine, and yet you can walk,exercise normally without pain. but maybe the misalignment in the tibia is different than femur. Anyway.. I think I have to be less worry about that right now.


Leo

I'll list the advantages,and drawbacks for each part.

A- The disadvantages of Lengthening Tibia by the monorail

• During the distraction the pain in your tibia would be much worse than the in femur, like by ten times
• The pin sites are problem especially when they stretch  because of either the lengthening or the exercising, but comparing to femur the pain in pin sites is less to be occurring
• You can feel that the monorail device is so heavy, since it's perpendicular to your tibia

B-The good points of lengthening tibia over the femur using the monorail

• much comfy in sleeping since you can sleep in your side
• the pain in pin sites is less to be occurs than the femur.
• Much easier and almost wont bother you at all in wearing clothes or even in siting on the chair

C-The drawbacks of lengthening femur over the tibia using the monorail

• You have to lay in your back while sleeping (no sleeping in your side), which was (still) very tiring for me
• It's hard to wear clothes, and very uncomfortable to be sit on the chair with rail in your femur
• The pain in pin site is much worse than tibia and more likely to be occur
• you'll lose your ROM in your knee gradually and this really hard, cuz this will limit your mobility

D-The good points of lengthening femur over the tibia using the monorail

• there is almost no pain during distraction phase or very slight pain comparing to the tibia

so if I was plan to do two surgeries like doing one with monorail and saving some money to do the other one just internal . then I would choose monorail for the tibia, and internal method for femur

However if I was plan to do just one surgery..and that by monorail . I would  choose lengthening the femur, just to avoid looking disproportional,  as I noticed even though I lengthened almost same amount in both part but my tibia kinda looks taller, and you can't really notice the different  in appearance  on femur part after lengthening ..