Hello diso. I havent read your entire patient diary but may I ask how much you had to pay for food and accomodation or was this all included in the package. I understand your issues with your limb lengthening however would you still reccomend dr anil??
so if I said I do recommend dr anil, you'd consider having LL with him?
I spend around 1000-1200USD/monthly ,for (food, accommodation, medicine, caretaker.. )
hi
I hope you are getting somewhat of you knee ROM back now that you’ve stop lengthening.
If you could do it all over again what would you do differently?
interesting question,
Although my answer may changed after some months. but let's answer it now from perspective of person who has been stuck in those frame from half year..
humm, firstly.. I don't think monorail device is bad choice... you just have to choose the right doctor for it, so yes I wont chose Anil Rah ..
but I would still go for quad lengthening personally I still didn't see any critical disadvantage for that, maybe I'll have one month or two apart from the two surgeries..
and I'll choose internal for the femur.. it's hard to lose your knee ROM.. it makes you feel that you're completely paralyzed..
Only very few people would be lucky to do Quad Lengthening and monarail without major complications. Diso you are very lucky to have pulled that off. But most people would be in a lot of trouble. You are also a woman, usually women have loser muscles which allows better lengthening. Im serious when I say you are a very lucky girl Diso!!)) Probably as lucky as I am if not more)))
Disobedient,
I have read most of diaries and this is my first post on any limb lengthening forum.
You are just amazing soul and lovely person, and that compelled me to post for the first time. 
Quad lengthening is something no one dares to enter and you did that and with your spirit pulled it off well so far :-)
You have gained a massive respect in my heart at least.
To be honest, consolidation period is always at least twice the distraction (for external fixator). That is for single section (tibia or femur alone). For both segment it will be thrice the distraction.
So Dr Raheja was didn't told you before. Regarding misalignment of femur, it happens almost in every surgery I read across, and can only be avoided by following procedure here.
https://www.inkling.com/read/operative-techniques-orthopaedic-surgery-vol-2-1st/chapter-peds-34/technique-limb-lengthening
http://www.wheelessonline.com/ortho/limb_lengthening_of_the_femur
http://www.synthes.com/MediaBin/US%20DATA/Product%20Support%20Materials/Technique%20Guides/SUTGDORINGFemurJ7498B.pdf
So in case it is more than 10%, you need to undergo a similar operation, but this time distraction will be sidewards. So Dr Raheja is lying if he says he can solve it by any other way than that.
Even I would be doing quad lengthening, with bone graft and inserting nail if necessary. Right now I am going though to select quicker procedure or one with fewest complications. I have already saved enough but I would also appreciate if you could share 15 docs/hospitals you considered over pm 
Btw, I am from Bangalore.
I hope you have a speedy recovery, but honestly, 54 days distraction implies at least 5 and half months consolidation.
For the last six months, I was thinking that I’m “okay” I’m fine, and I convinced myself that I don’t need help from anyone, no need to share the secret of having LL with anyone either..
And to be honest, it wasn’t hard a lot, I mean this forum give me strength to do that , and honestly, I don’t know what would I do if I didn’t receive the invitation to LL forum..
But today, it was a different day, and for the first time from 6 months I felt RELIFE that I’m no longer have to carry this pardon all by myself, Now there are someone who sharing that with me.. and to be more specific it’s not a certain person, they’re group of very kind of ppl, whom I really appreciate their help.. and they’re willing to do anything just to make sure, I’m “okay” and safe just as if I was in HOME..
As I mentioned before today I have had an appointment in UAE’s Embassy.. But unfortunately I wake up at 11AM, I have less than 30min to be prepare and go to the appointment.. I called the office and asked if I can come at 12 noon, and they said they’ll call me back, cuz the person whom I’ll meet is having a lot of meetings today, and I’m supposed to meet him in 11:30 not 12..
I know it’s my mistake again, I wonder how many ton of mistakes I could do in such a short time, I just messed up my chance again and all because I slept for an extra hour.. I started to blame myself in how I’m lazy and do all things in a very last minute, when a call interrupted all that, it was the secretary, she told me that her boss will meet me but I have to be there in 12sharp..
Ok I can make it, I dress up so quickly and got ready in 40min, of course my caretaker helped me but 40min is such a short time for someone who is paralyzed… so I got into the cab then immediately to the Embassy.. I reached there at 12:15… entered the building .. the ppl over there welcomed me and was so passionate asking me if I’m okay and what happened to me? And as soon as I started to speak Emeriti they draw a smile on their face and become more welcoming.. you know it’s a different when you’re in foreign country, and when you see someone from your nationality you feel somehow that you belong to him/her.. ~! I don’t know if I was over emotional.. but that’s what I felt at that time..
After 2min the colonel came, he greeted me and asked me how am I doing, I replayed as you see I CANT WALK.. Then I started to talk about my situation, how dr. lied to me about the duration of the treatment and how am I right now paralyzed and in the verge of being broke.. Although, the col. wasn’t so agreed to have LL from beginning but he didn’t talk much about that he focused in my health situation, how he could help, and what the best thing for me to do right now,.. He asked me why didn’t I came from beginning.. where am I staying right now, and who take care of me…
So long story short, they gave me some cash, told me from tmw they’ll start to send my report to another hospital, and they’re thinking of changing my hotel, to be sure I’m staying in clean and safe area.. and asked me to have an escort, I explained that I kept all the thing from my family.. and I want to keep it that way.. but they insist since I’m not in a very good health condition.. so when I went back to hotel I called my sister, told her that I’m disabled because I had a surgery, then she asked if it’s LL surgery (thanx oprah!!! ppl know about LL bcuz of ur show) anyway I answered by yes,, but Don’t Tell Anyone.. she was cool, didn’t nag too much “maybe bcuz it was over the phone” and she said she’ll come whenever I say so.. ..
So In next few days it will be clear for me what will happen next
I may sound so weak and dependent, but yeah I need help now, and it's better to ask for help when you need it..
Awesome Diso!)) Im glad you got out and saw some familiar faces!)) Yeah and there is nothing wrong with asking for help!!))) Sometimes when you spend such a long time inside and without any action it can be depressive at times. Connecting and interacting with people is such a huge help!)
hey Diso it's normal that you feel homesick after being away so long! I am glad the embassy and family (thanks to oprah ha ha) are supporting you, the loneliness is often harder than the physical pain of LL. Rgkey is right. It's good to have people to talk to and not carry everything inside. Best wishes.
Disk,
I am very glad for you, these are wonderful news. You are very strong and independent, but even very strong person needs support and care of other people, especially in situations like this. Hope now things will get better for you.
You must be logged in to post a reply.
