Were you scared

Edit Post

So to everyone who did this surgery..were you scared? Is there anything to be scared of?

Edit Post

I didn’t think I was scared. My heart rate was below normal.
But afterwards I couldn’t sleep for three days and ended up in the ER.
Not really sure what happened there but it was like I couldn’t relax and fall asleep. Like my body was in shock.

In the beginning I had really hard time to sleep.

But it wasn’t so scary I couldn’t do it again. I think I will do it again actually.

Edit Post

Quote from: Sweden on December 17, 2018, 10:44:46 PMI didn’t think I was scared. My heart rate was below normal.
But afterwards I couldn’t sleep for three days and ended up in the ER.
Not really sure what happened there but it was like I couldn’t relax and fall asleep. Like my body was in shock.

In the beginning I had really hard time to sleep.

But it wasn’t so scary I couldn’t do it again. I think I will do it again actually.

Femur 5cm?

Edit Post

A good doctor can take my fear away

Edit Post

ADvice, Trust your guts. I had a bad impression abt my doctor. I convinced myself I was wrong. It was a mistake.

Edit Post

It's pretty natural to be scared of this kind of surgery; however with the current United States based doctors you truly are in great hands.   It's always interesting to know what the patients that have actually experienced CLL have felt prior to surgery...   We'll stand by to hear more.

Edit Post

american doctors charge wayy too much. There are better options like Dr. Giotikas and Dr. Solomin.. Dr Sarin..there are a lot of good doctors overseas.

Edit Post

Yes I was very scared and excited at the same time. I wasn't really scared of the pain, or going to South Africa being Dr.Birkholtz's first bilateral PRECICE 2 CLL patient since I knew that I was in good hands with an honest doctor. However it was the thoughts of device failure, non-union, deep infections, compartment syndrome and countless other serious complications relating to surgery were all in my mind, with the additional finances that would be needed to cover these complications. Along with knowing that patients under the most experienced doctors can encounter such complications. And trust me when I say this, the flight to SA when I left my country was one of the most traumatic flight that left me feeling numb for the entire flight, thinking whether I'd come back home with my leg(s) or even make it back home alive. This is my honest experience.

Edit Post

Quote from: TRS on January 01, 2019, 03:27:56 AMYes I was very scared and excited at the same time. I wasn't really scared of the pain, or going to South Africa being Dr.Birkholtz's first bilateral PRECICE 2 CLL patient since I knew that I was in good hands with an honest doctor. However it was the thoughts of device failure, non-union, deep infections, compartment syndrome and countless other serious complications relating to surgery were all in my mind, with the additional finances that would be needed to cover these complications. Along with knowing that patients under the most experienced doctors can encounter such complications. And trust me when I say this, the flight to SA when I left my country was one of the most traumatic flight that left me feeling numb for the entire flight, thinking whether I'd come back home with my leg(s) or even make it back home alive. This is my honest experience.

Yeah LL is scary. I wish LL were administered with a course of anti anxiety medications or something from a month before  Would make life easier.

Have you recovered fully since your operation?

Edit Post

Im terrified just thinking about it. But I think its worth it. I hate being short so much.