what happen if u get infection?

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Quote from: redwedding on April 02, 2021, 07:30:29 PMdear Tartar,

you're right that there are several complications which can occurs with the operation. But all problems are short in their duration. if you get fat embolism it will happens in the hospital itself and its the doctors job to save you. If you get blood clots you will rush to hospital and get an ultrasound. They will prescribe to you blood thinner medications. Worst case you get pulmonary embolism and you are taken to emergency. All of these events put you under care of doctors and you will be allowed to return back and return to your lengthening.

Infection is the worst. Its treatment will go on for months and you will be in anxious for so long. If you continue the lengthening then you will need to be on the IV antibiotics for months while lengthening and then they will remove that nail and put the new nail. Sometimes you may be asked to stop the lengthening because the infection is so bad. If you are doing the tibias you can do external frames to finish the lengthening but with femurs you cannot.

Since it is precice my doctor in Spain recommended to do one leg first and then the another. Imagine what would happens if one leg is lengthened successful but the other one gets the deep bone infection. You cannot even use the external frame on femur to correct the length inequality.

regards,
sergio

That’s why you shouldn’t do one leg at a time. That has to be one of the stupidest approaches in CLL history. You also have more risk of infection if you do one leg at a time since more surgery.

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Quote from: RB on April 02, 2021, 07:49:32 PMThat’s why you shouldn’t do one leg at a time. That has to be one of the stupidest approaches in CLL history. You also have more risk of infection if you do one leg at a time since more surgery.

hello RB,

your logic doesn't sounds right to me. it's more surgery but on only one leg each time. By your logic if you are unlucky you will get the deep bone infection on both your legs together or none of the legs together. Please remember that in unilateral you are cutting open only one leg at a time.

if you go the fruits store and buy two boxes of apples together what is the chance you will a rotten apple? if you make two visits to the fruits store and buy one box of apples each time will the chance of getting a rotten apple increases?

regards,
sergio

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You have no increased risk of infection with two surgeries.

There are a number of papers regarding the higher infection rate in tibias

Scars will be bad and it will be uncomfortable but femur can have an external fixator

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Quote from: redwedding on April 02, 2021, 07:54:13 PMhello RB,

your logic doesn't sounds right to me. it's more surgery but on only one leg each time. By your logic if you are unlucky you will get the deep bone infection on both your legs together or none of the legs together. Please remember that in unilateral you are cutting open only one leg at a time.

if you go the fruits store and buy two boxes of apples together what is the chance you will a rotten apple? if you make two visits to the fruits store and buy one box of apples each time will the chance of getting a rotten apple increases?

regards,
sergio

There is still an extra opportunity for an infection to happen at the time of each surgery, however the risk of bone infection is very low either way. Has your doctor explained why he recommends one leg at a time?

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If the infection hides on the nail where no blood vessels reach (and antibiotics are therefore useless) you need to exchange the nail. If the infection is more shallow you can treat it with antibiotics. Infection is a random risk you have, you have to accept it if you want to do LL.

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Quote from: RB on April 02, 2021, 08:05:24 PMThere is still an extra opportunity for an infection to happen at the time of each surgery, however the risk of bone infection is very low either way. Has your doctor explained why he recommends one leg at a time?

hello RB,

as I explained before each leg is separate. each operation operates on only one leg. The deep bone infection risk of one operation is limited to the one leg. Please think about the apple example I gave you.

The doctor recommends one leg at once because the precice rods are not weight bearing. I will have the support person for only first few weeks and not after that. He believes that the experience of wheelchair is not tolerable especially for me maybe due to my anxiousness.

He said the risk of fat embolism and pulmonary embolism is half with one leg at a time.

So those was the reasons.

cheers,
sergio

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Quote from: redwedding on April 02, 2021, 08:48:40 PMhello RB,

as I explained before each leg is separate. each operation operates on only one leg. The deep bone infection risk of one operation is limited to the one leg. Please think about the apple example I gave you.

The doctor recommends one leg at once because the precice rods are not weight bearing. I will have the support person for only first few weeks and not after that. He believes that the experience of wheelchair is not tolerable especially for me maybe due to my anxiousness.

He said the risk of fat embolism and pulmonary embolism is half with one leg at a time.

So those was the reasons.

cheers,
sergio

Personally I would avoid doing it 1 leg at a time.

You’re paying double. The Stryde nails are only part of the cost, the use of operating theater and surgeon fees is usually the larger portion of the cost.

As an example let’s say Stryde nails are 20k for a pair (example) and surgeon/hospital fees are another 20k per surgery (example) according to your method you wouldn’t pay 40k, you’d pay 60k (example)

Secondly, don’t use non weight bearing nails. Go with Stryde. Don’t cheap out using old tech, weight bearing in my personal experience is quite important, not just mobility but for growing the bone, healing time, opportunity cost, etc

I think the final conclusion I can give is this, yea infections happen, once that bacteria gets to the metal it’s game over, youre gonna face health issues, cost issues, mental issues, time issues, it’s just a train wreck.

Choose your doctor wisely and choose your hardware wisely. If you don’t have the money for a proper doctor or proper tech, wait until you do. Not gonna comment on doctors here, the only one I would avoid is the first doctor I went to, not gonna comment on doctors I don’t have experience with.

At the end of the day it’s up to you, you make your own decisions and you live with it as have I done. We’re all adults.

If you can’t learn from mistakes others have made, go ahead and make those mistakes yourself and figure out how to solve them yourself.

I personally wouldn’t recommend doing 1 leg at a time especially given what Stryde nails can do. If I were you I would reach out to some of the more “famous” doctors and ask them the questions you may have. And reach out to more than 1, talk to as many qualified doctors as you can, as they will be the ones who know best. Dr Lee Dr Paley Dr Rosbruch , whoever else you think is cream of the crop, and ask them.

They are famous for a reason, people can bag on them for their prices but they have the experience to back it up. And reaching out to them as a “potential patient” will always get an answer because you know, $_$ it’s how the world turns round.

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Quote from: marathonrunner on April 03, 2021, 04:09:45 AMPersonally I would avoid doing it 1 leg at a time.

You’re paying double. The Stryde nails are only part of the cost, the use of operating theater and surgeon fees is usually the larger portion of the cost.

As an example let’s say Stryde nails are 20k for a pair (example) and surgeon/hospital fees are another 20k per surgery (example) according to your method you wouldn’t pay 40k, you’d pay 60k (example)

Secondly, don’t use non weight bearing nails. Go with Stryde. Don’t cheap out using old tech, weight bearing in my personal experience is quite important, not just mobility but for growing the bone, healing time, opportunity cost, etc

I think the final conclusion I can give is this, yea infections happen, once that bacteria gets to the metal it’s game over, youre gonna face health issues, cost issues, mental issues, time issues, it’s just a train wreck.

Choose your doctor wisely and choose your hardware wisely. If you don’t have the money for a proper doctor or proper tech, wait until you do. Not gonna comment on doctors here, the only one I would avoid is the first doctor I went to, not gonna comment on doctors I don’t have experience with.

At the end of the day it’s up to you, you make your own decisions and you live with it as have I done. We’re all adults.

If you can’t learn from mistakes others have made, go ahead and make those mistakes yourself and figure out how to solve them yourself.

I personally wouldn’t recommend doing 1 leg at a time especially given what Stryde nails can do. If I were you I would reach out to some of the more “famous” doctors and ask them the questions you may have. And reach out to more than 1, talk to as many qualified doctors as you can, as they will be the ones who know best. Dr Lee Dr Paley Dr Rosbruch , whoever else you think is cream of the crop, and ask them.

They are famous for a reason, people can bag on them for their prices but they have the experience to back it up. And reaching out to them as a “potential patient” will always get an answer because you know, $_$ it’s how the world turns round.

dear marathonrunner,

Thanks for the advices.

however I feel very confused by your statement that the stryde is better. You have yourself said in the past that the stryde eat the bone from within and causes the osteolysis and needs to be removed asap.  How can the stryde be a superior option to the precice with this information? The precice does not causes osteolysis. The stryde has been withdrawed but not the precice. The precice is there since 11 years without any osteolysis issues.

And I can do the cost of doing each leg separately I have did the calculations thoroughly and I feel like it is O.K. with me. Cost is no problem. Time is no problem. I want the good health that is all

marathonrunner, did you have any symptoms like pus or redness? Did you do any tests like WBC tests? I am finding it surprising that only after the opening the bone during surgery your surgeon was able to see the deep bone infection. But there are other ways to detect it right? like blood tests?

cheers,
sergio

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Quote from: redwedding on April 03, 2021, 05:31:58 AMdear marathonrunner,

Thanks for the advices.

however I feel very confused by your statement that the stryde is better. You have yourself said in the past that the stryde eat the bone from within and causes the osteolysis and needs to be removed asap.  How can the stryde be a superior option to the precice with this information? The precice does not causes osteolysis. The stryde has been withdrawed but not the precice. The precice is there since 11 years without any osteolysis issues.

And I can do the cost of doing each leg separately I have did the calculations thoroughly and I feel like it is O.K. with me. Cost is no problem. Time is no problem. I want the good health that is all

marathonrunner, did you have any symptoms like pus or redness? Did you do any tests like WBC tests? I am finding it surprising that only after the opening the bone during surgery your surgeon was able to see the deep bone infection. But there are other ways to detect it right? like blood tests?

cheers,
sergio

Best you do your own research and ask proper doctors rather than ask people on this board. I’m not a doctor. Yes there are tests to detect infection but those tests can be skewed by injury, ie, broken bone.

I have a feeling you’re not familiar with precise or Stryde.

Precise is the old version of Stryde.

Why would you get precise over Stryde when Stryde has improvements over precise?

I said it’s possible to get osteolysis with either one of the nails because they have moving parts inside, it’s not a straight up piece of metal, there’s moving parts.

Even if you had a regular IM nail in your leg, you want to keep it there forever? Really?

No right? Once you’re healed get the foreign objects out.

I highly suggest you ask these medical questions to actual doctors. There is only so much I can tell you from personal experience

And if you don’t know the difference between Stryde and precise, read more, this forum has that info as well as google. If I was able to google and find info on Stryde you can too.

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Quote from: marathonrunner on April 03, 2021, 07:29:33 AMBest you do your own research and ask proper doctors rather than ask people on this board. I’m not a doctor. Yes there are tests to detect infection but those tests can be skewed by injury, ie, broken bone.

I have a feeling you’re not familiar with precise or Stryde.

Precise is the old version of Stryde.

Why would you get precise over Stryde when Stryde has improvements over precise?

I said it’s possible to get osteolysis with either one of the nails because they have moving parts inside, it’s not a straight up piece of metal, there’s moving parts.

Even if you had a regular IM nail in your leg, you want to keep it there forever? Really?

No right? Once you’re healed get the foreign objects out.

I highly suggest you ask these medical questions to actual doctors. There is only so much I can tell you from personal experience

And if you don’t know the difference between Stryde and precise, read more, this forum has that info as well as google. If I was able to google and find info on Stryde you can too.

dear marathonrunner,

first of all, I know very well the difference between the precice and stryde.  I have spoken to the doctors and seen interviews on Youtube. stryde is stainless steel and precice is titanium. The stryde is supposed to be an upgrade BUT it has problems. Do you call a new nail with problems as an upgrade?

nails are not supposed to cause the osteolysis. Its not normal. That is what Nuvasive is researching. It doesn't happen to all the patients but it happens in some.

Will I leave the trauma surgery nail in my body? Maybe, if doesn't bother me. my grandmother has trauma nail in her tibia and he will not remove it. the doctor said O.K. Its not abnormal to leave trauma nail until death. many foreign objects are left for 15 years like knee and hip replacements. People who have the trauma nail debate about removing it or not. but with stryde you are ordered to remove it.

The stryde is being ordered for removal after 1 year because 1 it as the rare earth magnet and it has osteolysis. That is the reason.

So upgrade does not mean = better. they have recalled the upgraded nail for a very good reason. until they have not released it back we know it's not safe. in fact Paley has said they may do some fixes to the stryde nail if it has the safety problems. So today the stryde nail is not recommended. even if you want the stryde, you cannot get it because it is withdrawed. this must say something about it.

the precice doesn't cause the osteolysis. It has been used since 10 years and is used in the whole world in thousands of limbs (my doctor said 20.000). It does not cause the osteolysis. only stryde causes the osteolysis. the moving parts is not the only reason to cause osteolysis because even the precice also has the moving parts.

and for consulting with the doctors I have done this with 4 doctors but there is so much of information to gather. In the 40 minutes consultation 5 minutes are for introducing why I want the lengthening, 5 minutes is for doctor introduction to the operation. Then I ask many questions and for this the doctors give information in unstructured way.

I strongly feel that the patient community should enrich themselves with the information. Patients can freely speak to eachother without any fear or hesitance.

it is not right for patients to ask to others to review each others medical situation like "guys I am feeling breathless should I go the emergency room or sleep it out" but pre operation its best that the community of patients know the basics of risks well. I have seen that the doctors are very happy when the patients have done their thorough research.

one more thing marathonrunner, I have seen that the doctors become impatient while answer such questions. One has asked to me "are you a phd medical student that you are asking these questions".

I personally do not like that only after doing the paid consultation that some patients gain understanding of this procedure. This operation is already very expensive for people to afford but atleast for gaining he knowledge it should be free.

I feel surprised that so many patients have undergone this operation without knowing these basic questions

- what happens if you get deep bone infection?
- what is the cause of the pulmonary embolism? if you suspect it should you continue the lengthening or should you wait till your results are announced.
- what % of people who develop the deep veins thrombosis develop the pulmonary embolism

look at how well the people are educated about the covid today. If the similar understanding was there about the serious nature of this operation I think it would be good.

cheers,
sergio