Build your glute muscles if you are doing femurs. I lost those muscles immediately after the surgery. Stretch and do yoga prior to the surgery.
there is always a risk to CLL
while it is uncommon, fat embolism can happen and can cause respiratory problems and very rarely death.
I did 8 cm femurs and unfortunately had fat embolism. In terms of mobility, the more cm you do the harder it is to rehabilitate and walk. While i havent been 1 year post distraction yet, i know it will take months to get normal gait back. But many ppl are different
Quote from: farfan21 on September 18, 2020, 04:11:56 AMthere is always a risk to CLL
while it is uncommon, fat embolism can happen and can cause respiratory problems and very rarely death.
I did 8 cm femurs and unfortunately had fat embolism. In terms of mobility, the more cm you do the harder it is to rehabilitate and walk. While i havent been 1 year post distraction yet, i know it will take months to get normal gait back. But many ppl are different
Which doctor and let us know your story. Very sorry you had this fat emboli.
By the way how much cm u distracted brother. And how's ur recovery, and how much months post op sir
I was wondering if the risk to fat embolism was greater than the doctors make it out to be? By the way, what is the way to prevent this from happening in the first place? I understand that the doctor will vent a canal by drilling holes at the planned level of the osteotomy prior to the reaming process (from Paley's website). But aren't there stretches that you have to do while in bed? And don't they have to make you get up to walk on the day one if using Strydes with a walker? Are blood thinners used for this purpose as well?
Quote from: brondo on September 18, 2020, 05:10:32 AMI was wondering if the risk to fat embolism was greater than the doctors make it out to be? By the way, what is the way to prevent this from happening in the first place? I understand that the doctor will vent a canal by drilling holes at the planned level of the osteotomy prior to the reaming process (from Paley's website). But aren't there stretches that you have to do while in bed? And don't they have to make you get up to walk on the day one if using Strydes with a walker? Are blood thinners used for this purpose as well?
It's up to da surgery. And ya they prescribe xalrelto blood thinner. But it not related to fat embolism, which is directly in the days and week after surgery. Now with stryde they do aspirin at least paley does it with baby aspirin. To prevent da deep vein thrombosis and/or pulmonary embolism
I think da best way to survive is to stay in hospital as long as u can so that if anything happens u can get oxygen right away, and also maybe 2 weeks after u go home hire a care taker if budget permits. 2000$ for some peace of mind and potentially life saving I dink worth it tbh
Fat embolism is scary. But it truly is up to doctor to deal with it. Vent hole helps but as u can see this fellow got fat embolism. So sad. Not his fault, maybe not even paleys fault. Shïét happens. Just prepare for the worse, aka stay in the hospital as long as u can so oxygen can be READY at will
And for deep vein throm/ pulmonary embolism, take the damn aspirin/xalrelto plz. Ik one time mahboubian didn't prescribe this shiet and someone got pulmonary embolism and almost died lol
Quote from: ghkid2019 on September 18, 2020, 06:23:54 AMIt's up to da surgery. And ya they prescribe xalrelto blood thinner. But it not related to fat embolism, which is directly in the days and week after surgery. Now with stryde they do aspirin at least paley does it with baby aspirin. To prevent da deep vein thrombosis and/or pulmonary embolism
I think da best way to survive is to stay in hospital as long as u can so that if anything happens u can get oxygen right away, and also maybe 2 weeks after u go home hire a care taker if budget permits. 2000$ for some peace of mind and potentially life saving I dink worth it tbh
Fat embolism is scary. But it truly is up to doctor to deal with it. Vent hole helps but as u can see this fellow got fat embolism. So sad. Not his fault, maybe not even paleys fault. Shïét happens. Just prepare for the worse, aka stay in the hospital as long as u can so oxygen can be READY at will
And for deep vein throm/ pulmonary embolism, take the damn aspirin/xalrelto plz. Ik one time mahboubian didn't prescribe this shiet and someone got pulmonary embolism and almost died lol
Wow that pretty scary that happened under someone like Mahboubian. Was this a long time ago or recent? If I understand you correctly you mean to stay in the hospital until ready to discharge, hire a caretaker to look after you (24/7? or just during the day), and does this caretaker need any certifications (certified nurse) to check for complications while you're in bed? When can you start doing stuff all by yourself and you don't have to worry about complications? After week 3 or so?
The safest way to do LL is external tibias with an hexapod like tsf.
Period.
Quote from: Body Builder on September 18, 2020, 08:00:27 AMThe safest way to do LL is external tibias with an hexapod like tsf.
Period.
Maybe but you're a veteran
Dont you lol when people still keep asking this question lol
Quote from: brondo on September 18, 2020, 07:18:13 AMWow that pretty scary that happened under someone like Mahboubian. Was this a long time ago or recent? If I understand you correctly you mean to stay in the hospital until ready to discharge, hire a caretaker to look after you (24/7? or just during the day), and does this caretaker need any certifications (certified nurse) to check for complications while you're in bed? When can you start doing stuff all by yourself and you don't have to worry about complications? After week 3 or so?
A few years ago. obviously that mistake doesn't happen anymore. He actually did prescribe it. But it was a poor dose for the given situation AND he did not prescribe it for the entire duration of the LL and rehab was not properly done. Rookie mistake. Now they know better
And yeah stay in hospital until discharge as long as possible, and maybe 24/7 caretaker for at least 7-10 days after you leave.
Not really, noc sets. Basically there to check on you and call 911 if you pass out or begin to breathe very badly.
After the first week post op, the risk of FAT embolism syndrome developing is very low. After TWO weeks it is pretty much safe to say you will not have fat embolism syndrome if you made it this far- that is the reason for the caretaker for 10 days.
However, deep vein thrombosis/pulmonary embolism can occur throughout the entire journey. The MOST IMPORTANT THING post op is to exercise your leg even a little. So yeah that is what you're forced to stand up at Paley's. And prescribed blood thinner for the WHOLE JOURNEY until after fully consolidation.
When u exercise u get rid of existing blood clots. Then the baby aspirin is a preventative (prophylaxis) measure and will basically ensure you won't get future blood clots. Baby aspirin is used now for stryde although some doctors still use Xalrelto like Debiparshad and it really doesn't matter. Xalrelto was very good during an era of weak non weightbearing nails like PRECICE 2.2, however now with Stryde and the ability to stand on legs (essentially exercising the legs), baby aspirin is all that is needed.
But you must take your blood thinner whether asprin or xalrelto for the WHOLE PHASE OF LL. so both legnthening and consolidation.
http://www.limblengtheningforum.com/index.php?topic=5103.31
∆ here's the guy I'm talking about. He was 25 and almost died mostly because he was sleeping on opioids+ got breathing issues from PULMONARY / deep vein thrombosis. Scroll down on that link, he tells his whole story.
Basically you can tell if you have DVT. Second guess your doctor. Take your blood thinner every day don't stop till you legit are doing with consolidation. Exercise your legs by standing and walking slowly after surgery even a little to clear blood clots, and do this often on other days.
Thanks @ghkid2019
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