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Posted on Mar 28, 2021, 7:59 pm
#1

Let's say there is a 1% serious complication rate of leg lengthening.

Now 1% is hard to make meaning of. "1 in 100" is quite arbitrary to imagine. Is it not much risky at all? Or is it still quite risky? If you could roll a 100 faced dice with the rules that if it lands ONE unlucky face you develop a limp for life, and for all other 99 faces you end up 3 inches taller without complications! Should you roll that dice?

What would make it easier is if we can compare the risk to something normal people undertake in real life.

For example, if there is an 0.1% risk of getting into a serious car accident for someone who drives daily to work, then we can think "ok leg lengthening is 10 times as risky as driving to work daily".

If there is a 0.5% risk of serious injury during skiing then we might hink, "ok leg lengthening is twice as risky as skiing".

I just made up these numbers for skiing and driving. But can YOU think of real life examples with statistics of risk to compare against leg lengthening risks? It can be something many humans go through regularly (pregnancy, driving, flying, sky diving, knee replacements, boxing, playing football professionally, anything like that)

Please explain how you arrive at your risk figures for such activities with relevant links.

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Posted on Mar 29, 2021, 9:06 am
#2

Anyone? Common folks, this is the most straightforward of deciding or calming your nerves if you've already decided.

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Posted on Mar 30, 2021, 4:32 pm
#3

Quote from: RealLostSoul on March 30, 2021, 01:08:53 PMI think you can't really compare it to stuff like base jumping or skiing. With LL the main priority is having a good doctor to reduce the risks of bad events happening and or going terrible.


What do you mean? The outcome of both can involve disability. Even with a good doctor LL can create disability. So it's fine to compare the odds of both. If you've done one before and didn't feel scared about it, then you can do the other (IF the probability of disability is similar). If you see someone on TV doing skiing and you know the risks of disability from skiing = risk of disability from LL then you can think 'oh my doing LL is like that guy doing skiing'.

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Posted on Mar 30, 2021, 4:45 pm
#4

Quote from: silverlining on March 29, 2021, 08:18:24 PMIt's not only the percents of risk, it's type of risk. One of the risk of LL is pulmonary embolism which will kill you within minutes. I don't think you can compare it to the risks of skiing or skating.


I don't care about death honestly. It's disability that worries me.

Anyway, even road accidents can cause death. So we can compare the risk of "Death or disability" from LL vs other events that some of us take part in.

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Posted on Mar 30, 2021, 4:48 pm
#5

Quote from: Stryde2021 on March 29, 2021, 01:43:31 PMThere are no comps that present remotely the same risk profile.  There are a range of things that can go wrong with LL, there’s nothing else really like it. Sure, some activities might present a similar risk of crippling. But they won’t present a similar risk of embolic events, or nerve damage.  You have to get comfortable with each of the several specific risks on its own

Yes it's true there are many types of risks from LL. But you can consolidate them and make it a 1% risk (this is my research considering world class centers who offer LL). 1% includes everything from death to drop foot to a minor limp. So you can think, what other activities in life carry a similar risk or even half the risk of disability (or even death).

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Posted on Mar 30, 2021, 8:50 pm
#6

Quote from: RealLostSoul on March 30, 2021, 06:28:19 PMYes but it‘s not as linearly as just saying X has a risk of Y so it is comparable. in real life there are multiple factors. For example, in skiing you have your action under more control than in a car accident. If you ski without proper skill and knowledge you are more tend to accidents than if you are cautious. For car accidents, there are multiple factors too, most of which you have under control, but there are more unpredictable ones as well (encountering drunk drivers etc).. For LL however risks are way less under your control. Most of which is just up to the dr AND randomness (for example fat emboli etc).


It does not matter how much control you have. Statistics are statistics.

Think this way: let's say you have to play a game where you have to solve one easy puzzle in 1 minute. If you don't solve it correctly you get disabled, otherwise you become 3 inches taller. So you have FULL control over the outcome.

You start testing your abilities. You do a hundred of these tests in "practice" mode. You see that you can solve it correctly 99% of the times. So do you decide to take the real test or not?

It's similar with LL. If you Paley publishes a 1% chance of disability then it means the same thing I described above. Paley doesn't dislike you or like you more than his other patients. So your chance of success is similar to his other patients.

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