Yellowspike - Dr. Guichet, Internal Femurs, Late 2014

Edit Post

Quote from: YellowSpike391 on January 15, 2015, 03:01:13 PMI don't sleep bc of muscle tightness waking me up every night. I'm averaging maybe 3-4 hours a night, and it's going to kill me. For me, this is my only current real roadblock.

It's really reakly wearing on me. About 3 weeks of hell on earth to go. Wonder if it will even have been worth all this...

Slow down on your clicks that's probably why your muscles are so tight, give your body a break.

Edit Post

try anti-histamines like hydroxyzine, take before u sleep
it makes it easier to drift back into sleep.
get a muscle relaxant tablet ready when u wake up, and swallow it if wake up in middle of night
also, take all pain meds immediatley before u sleep.

let me know if this helps..
i get enough sleep very night..

Edit Post

Uppland - we have slowed clicks. Today is day 3 of 12 instead of 15 clicks, and supposedly it takes the body 4-5 to "notice" you've slowed down. So I'm sure I won't be sleeping tonight. And my bike should finally come tomorrow so that should hopefully help too.

ItsMyLife - thanks for the suggestions. Do you mean to take something like Benadryl? That ALWAYS knocks me out. As for muscle relaxants, Dr G said after a few weeks they don't work as much anymore which blows.

Edit Post

How many cm are you at right now?

Edit Post

Quote from: ReadRothbard on January 15, 2015, 05:24:39 PMHow many cm are you at right now?

I'll have a better idea on Monday (next x-Rays), but if going by my Excel file, maybe just under 4,5cm? But I feel like it's more because I had many accidental clicks the first 2 weeks and I would (so stupidly) throw in an extra click here or there to speed things up (though I haven't done that in a while now). Boy did I learn my lesson.

I just need this to end. Shooting for between 6-6.5cm. I'll still only be in the 5'8" range, but I'm starting not to care about height anymore. This nightmare has made me appreciate what I had all along a lot more (as corny and "pussy-ish" as it may sound to all of you).

Edit Post

Quote from: YellowSpike391 on January 15, 2015, 05:28:34 PMI'll have a better idea on Monday (next x-Rays), but if going by my Excel file, maybe just under 4,5cm? But I feel like it's more because I had many accidental clicks the first 2 weeks and I would (so stupidly) throw in an extra click here or there to speed things up (though I haven't done that in a while now). Boy did I learn my lesson.

I just need this to end. Shooting for between 6-6.5cm. I'll still only be in the 5'8" range, but I'm starting not to care about height anymore. This nightmare has made me appreciate what I had all along a lot more (as corny and "pussy-ish" as it may sound to all of you).

This is completely normal. Just hang in there, start watching some series/movies to distract yourself, can't to much more.

Edit Post

Hi Yellow

Is being away from home maybe a major contributor to your nightmare?

Edit Post

Quote from: MAN-OF-STEEL on January 15, 2015, 06:20:18 PMHi Yellow

Is being away from home maybe a major contributor to your nightmare?

Yea that's part of it. But sleep is the worst aspect right now for me.

Edit Post

I think the lack of sleep is probably the worst aspect of CLL for most people. It's not as bad for me now being in the consolidation phase, but having these bulky Ilizarov frames on me still makes sleeping difficult to the point where I can't sleep now unless I drink a shot of whiskey first. Fortunately you're doing internals, so once your soft tissues have healed enough you shouldn't be uncomfortable sleeping.

Edit Post

hang in there,
yes benadryl is an anti-histamine;
you may find it will stop working after 1 week. if so, switch to another anti-H such as hydroxyzine, chlorphenaramine.
they make u sleep like a baby!
take it before u sleep, so when you wake up, you will drift back into sleep!
i hope these will buy you a few weeks' of good sleep...
i have taken them for sleep and it really works... i've had good sleep since day one, but im doing ext tibia!
once anti-histmines dont work, take painkillers like codeine phosphate 30 mg or tramadol, which make u drowsy (dont take them tgt)