Yellowspike - Dr. Guichet, Internal Femurs, Late 2014

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Quote from: KiloKAHN on January 15, 2015, 07:30:04 PMI think the lack of sleep is probably the worst aspect of CLL for most people. It's not as bad for me now being in the consolidation phase, but having these bulky Ilizarov frames on me still makes sleeping difficult to the point where I can't sleep now unless I drink a shot of whiskey first. Fortunately you're doing internals, so once your soft tissues have healed enough you shouldn't be uncomfortable sleeping.

sometimes ive no pain or discomfort, but the fact of wearing the frames make it harder to sleep....

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Not sure what it was, but I think I got close to 5 hours of sleep last night (compared to the usual 2-3 the last two weeks). When I woke up around 3am, I mimicked the cycling motion in bed, and that actually somewhat helped. Lord have mercy, I needed those few extra hours, and I feel so much better (physically and mentally) today.

And my actual exercise bike arrives today, so hopefully my sleep will keep improving. Once I can fix this....I'll be so much better able to deal with all that LL has thrown at me (I've somehow managed a month post op with no sleep)

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that's grea.t.

is pain more or less controlled?

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Quote from: ItsMyLife on January 17, 2015, 06:04:50 AMthat's grea.t.

is pain more or less controlled?

The pain at this point is only when I have to move my hips (particularly, my right one), and in some PT exercises. Other than that, pain is very manageable. I've only taken pain meds at night the last few days.
 
The bike does help. Went to bed around 11:30/11:45, woke up around 3. Biked for 10 minutes, then slept til around 6:30. Clicked at 7am, biked 10 more min, slept til almost 9:30. It's annoying to have to do it half asleep, but it seems to work.

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Quote from: YellowSpike391 on January 17, 2015, 09:43:00 AMThe pain at this point is only when I have to move my hips (particularly, my right one), and in some PT exercises. Other than that, pain is very manageable. I've only taken pain meds at night the last few days.
 
The bike does help. Went to bed around 11:30/11:45, woke up around 3. Biked for 10 minutes, then slept til around 6:30. Clicked at 7am, biked 10 more min, slept til almost 9:30. It's annoying to have to do it half asleep, but it seems to work.
You're sleeping ok dude.  Chill out. I've had ~2 weeks of 3-4 hours of sleeping during exams. I would feel I could have gone longer after I finished. 

Do you wish to keep your current location and surgery location private (London or Milan)? I couldn't tell if you missed my questions or chose to keep it private.

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Quote from: SAD on January 17, 2015, 11:56:49 AMYou're sleeping ok dude.  Chill out. I've had ~2 weeks of 3-4 hours of sleeping during exams. I would feel I could have gone longer after I finished. 

Do you wish to keep your current location and surgery location private (London or Milan)? I couldn't tell if you missed my questions or chose to keep it private.

Lol well I dont know if you've had LL yet....but I don't think you can possibly compare getting no sleep during exams to getting no sleep while having to get around and do PT while temporarily crippled

I think I said earlier that this is all taking place in London. Just under 3 weeks until I head home!

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I cant imagine sleeping 3-4 hours with fractured bones... you will feel very very much worse than getting 3-4 hours as a healthy person:(
I've consistenly slept many hours since my LL... due to drugs like antihistamine and codeine.
past few days, I stopped taking drugs to sleep. I still sleep well... Phew.
Cos I have sleep issues.

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Quote from: ItsMyLife on January 17, 2015, 06:37:39 PMI cant imagine sleeping 3-4 hours with fractured bones... you will feel very very much worse than getting 3-4 hours as a healthy person:(
I've consistenly slept many hours since my LL... due to drugs like antihistamine and codeine.
past few days, I stopped taking drugs to sleep. I still sleep well... Phew.
Cos I have sleep issues.

I officially hate you

My sleep is still not great. Slightly improved, but not good. I don't know how I'm going to survive these next 2.5 weeks...and I've sorta decided that I'll click until around Feb 10/12 (I'm sure we will have slowed it down even more by then), and then whatever cm I gained, I'm done. I really just want to start recovering and sleeping normally again without having to bike 10-15 min at 3am just to wake up 2 hours later....

I think I'm due to hit 5cm this Wed or something...

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Sleep has been a little better the last two nights. I think I'm getting between 5 and 6 hours now. I still wake up with stiffness. Sometimes I can't be bothered to hop on the bike half asleep, so I'll just mimick the cycling motion in bed, and it actually seems to help.

I'm going home in two and a half weeks. I'll click until around feb 12, then I'm done. If we slow down again (I'm sure we will within a week knowing Dr G), it'll be around 6.2-6.4cm, which is fine with me. I'm already starting not to feel that short anymore.

The only pain I really have now is my stupid left flat foot (a little less today) and my right hip when I stand with my feet closed. My knees only feel pain when they're tight (bike helps that). I rarely take any pain meds during the day, only at night to help me sleep.

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Hey YellowSpike!

Great to hear about your amazing journey with Dr Guichet so far. I wish you the best in the next 2-3 cm of your pursuit of happyness 

By the way, how long did Dr G say you need to be in crutches after youre discharged and how long till you can walk normally? Cause Im kinda thinking about femur procedures as well