Quote from: jojo on August 26, 2017, 05:18:27 AMhttps://www.facebook.com/ScienceNaturePage/posts/1148097078655882
If anyone can click this link.
It some kind of stem cell bone reg. Maybe it's for u ?
Thanks Jojo! I'll contact U of Leicester to see if they're in need of one more guinea pig 
Quote from: Auron on August 25, 2017, 11:26:33 PMIf it was an unrequited love he wouldn't care about you cheating. I think that relationship of yours is worth a shot!
As for Auron, Bodybuilder and Datum,
Thanks for trying to cheer me up! I had worked so hard, bearing weight nonstop to try grow bones, exogen, ingesting every kind of supplements, short of growing bones on a voodoo doll. To no avail.
I guess I'm going through the 5 stages of grief
Denial (Aug'16) = when I thought I'd just need a 2nd surgery to fix the nail/fracture and I could continue lengthening again from my 32mm gained height, hence, walking perfectly by christmas 2016 (achoo! delusional idiot!)
Anger (Feb'17) = when the doc cancelled my surgery last minute that cracked my rose tinted glasses
Bargaining (Summer'17) = when I'd try anything plus sign a deal with the devil to reclaim my life (and consumed enough chicken feet to bankrupt KFC)
Depression (Aug'17) = Drowning in an inconsolable stupor when I extrapolate my life trajectory as quasimodo
Acceptance = May I never get there
This is a very difficult time for you, and most of us here, who haven't done LL, cannot fully comprehend your struggle, even if we try. Yet I can only tell you: bear up with this. It will get better and seeing that you are now in better care than you were with that controversial LL doctor, you will recover one day. As well can all see, the consequences of your surgery were very grave, and you might wish that you had never done it. But nobody could've known these consequences beforehand, and what you did was simply making this decision based on your best assessment with all the information you had during this time. It sucks a lot, but there's not much that could've been done beforehand given the information you had. Please forgive yourself for this.
And I truly believe you still have the chance to find a good guy and start a family. Even with your current state, there are guys out there who could look past it and be able to see all the beautiful, good things about you, which I estimate there are many of. I concede they are very rare, but I'm confident they exist. And your recovery is not complete yet, so that's not even factoring in that you might be fully mobile one day in the future.
That's what I can say, from my own judgement. I hope you will keep fighting as you are doing so bravely. All the best to you.
Quote from: Unicorn888 on August 25, 2017, 12:44:45 PMOk, another verdict.
I've taken an xray this morning + seen my NHS doc too.
My left leg which was fractured, fused, rebroken and relengthened is currently showing very good bone consolidation. It has however runaway as well and lengthened involuntarily by 10mm in the last one month.
My right leg however has ZERO activity. There are no cysts and even with nuclear medicine, it shows ZERO activity. The doc asked me to do a white cell count to rule out certain infections.
She says now I've 3 options to which I might resort, if all else fails :
1) Bone graft with my hip bone + cadaver bone (doubtful it can fuse a 10cm gap)
2) Change to trauma nails (smaller nail + reaming - might stimulate healing/bone growth)
3) Change nail to Precice, shorten to zero, wait for callus growth and slowly restart lengthening at a very slow pace ensuring that the calluses are joining before lengthening further each time
Either way, she'll try to avoid operating on my left leg again. She says I've suffered enough trauma to be subjected to further shortening 
So that's that folks! The reality of lengthening gone wrong.
If I was you I would go for option number 2.
A New trauma nail plus shortening and match the left leg. Reaming seems quite successful and also 10 cm is a huge amount of lengthening. I dont wanna make you pessimistic or anything but considering your short limbs especially women's short tibia 10 cm seems freaking huge. Im not sure how this will affect bio-mechanics but I know that Tall from the old forum did 11cm (while being 178cm or something) and had knee problems etc. It might seem like BS but tibia to femur ratio is way out of proportion(im not talking about aesthetics). Also If the left nail is still lengthening I would put that leg in a cast but that's what I would do.
Quote from: doomsday on August 26, 2017, 11:26:59 AMIf I was you I would go for option number 2.
A New trauma nail plus shortening and match the left leg. Reaming seems quite successful and also 10 cm is a huge amount of lengthening. I dont wanna make you pessimistic or anything but considering your short limbs especially women's short tibia 10 cm seems freaking huge. Im not sure how this will affect bio-mechanics but I know that Tall from the old forum did 11cm (while being 178cm or something) and had knee problems etc. It might seem like BS but tibia to femur ratio is way out of proportion(im not talking about aesthetics). Also If the left nail is still lengthening I would put that leg in a cast but that's what I would do.
Hi Doomsday,
Thanks for the suggestions Firstly, yes, I've to wear a long leg brace to stop the accidental clicking But it was discovered after it has runaway to 9.7cm, so if the cap is fitted properly, it'll stop clicking completely at 10cm anyway
But yes, there are absolute pros and cons to all the options presented whether it's replacing nails or bone graft or relengthening with Precice II.
In the meantime, I'm desperately seeking alternatives to will my leg to fuse 
- Alternate heat and ice packs to promote circulation
- Massaging with fir, cypress and helichrysum oils
- Taking double boiled tien chi (reknown chinese herb for bone healing) - see instagram
- Might look at Forsteo to boost osteoblast power (will beg doc)
- Exogen light radiation to stimulate bone healing - see instagram
- Taking whey protein isolate daily - see instagram
- Supplements of D3, magnesium, zinc, calcium, vitamin C
- Chinese double boiled white fungus - see instagram
- Frog legs, chicken feet, pig trotters (the chinese believe, whatever you're missing, eat that animal part directly to heal 
)
- Beef bone marrow
- Algaecal - see instagram
- Cycling to promote circulation
- Acupuncture to increase chi flow to my right leg and promote circulation
- More walking and weight bearing (maybe I've to stand on the unfused leg all day like a flamingo? or get a job on a conveyor belt? 
)
- Getting sufficient uninterrupted sleep
- Talking, caressing and doling unlimited TLC to my right leg, who justifiably might have felt totally left out when all attention was focused on the fractured and relengthened left leg. I'd go on strike too if I were a member of Team Right!
I can't think of what else I can do to grow bones without resorting to further surgeries and inevitable complications My left femur is fusing beautifully, so I can imagine something's working and/or the right leg/nail has an isolated problem.
It's such a puzzling conundrum
WHAT IS PAIN?
I was discussing with one of my current classmates recently about our lengthening process and how it might have differed if we went to an experienced Precice doc. I had also been in touch with one of those rare patients who had done lengthening with 2 doctors, one of which includes Paley and had used both a manual racheting ISKD type nail and remote clicking Precice nail.
What strikes me as interesting is the fact that my classmate forgot that his lengthening was painful And I had to resend him the text messages we had sent each other right after surgery and he suddenly remembered the agony This is what I've often observed with myself and all patients. Our brains tend to block out painful and traumatic memories and it's probably a survival mechanism to help us cope and move on. Hence, sometimes, LL pain is under reported due to our survival instincts kicking in (sugarcoating the memory), peppered with some preservation of pride.
I've noticed too that there's a fair share of testoterone fuelled competitive spirit amongst my male classmates. While the girls retreated into their shells and suffered in silence, the men tend to treat the lengthening process as a spartan contest of stunts, lengthening speed and recovery. There were copious videos flying around within our whassap group of who can complete the elliptical earliest, quad squatting exercises, jumping, jogging, salsa dancing, moonwalking... with each stunt increasing in risk, heroic pain tolerance and sating a basic human need for recognition. And while most were not necessary for recovery, they were perhaps vital for healing the wounded ego. We sometimes compared this peculiar male dynamic to the initiation rituals that boys had to undergo to reach manhood
I remember the first time I went to see the NHS doc, she had given me a survey to determine my pain level and on a scale of 1-10, my result was 1. But they had observed me grimacing and wincing whenever I had to move or get up or do physio. My doc sat me down one day and said, "you might think that you're just enduring normal aches and pains and it's not a big deal. But this is not a way to live and we consider achy bones a form of pain." So she asked me to take paracetamol every 4 hours because she says that if my head is constantly petrified by pain, my physio therapy and extreme stretching exercises might be compromised. I was surprised at the starkly different approaches to pain btw both doctors.
Our previous doctor was not a fan of any painkillers besides tramadol/codeine for 2 weeks post-op and afterwards, we were instructed to wean ourselves off and exercise whenever there was pain. That caused many of us to stoically suffer post-op pain in addition to completing the manual racheting process on schedule. No wonder NHS uses Precice on children, because they cannot reasonably be expected to have the willpower and sufficient pain bearing mechanisms to manually rotate and rachet when they're already in so much post-op pain.
It really makes me wonder whether my old doctor's 'minimal painkiller' regime is wise. The reason I'm saying this is because one of those rare LLer who had undergone both ISKD type nail and Precice had revealed that the pain level/clicking process btw both nails are as different as night and day. Precice and adequate painkillers made the entire lengthening procedure much less traumatic.
So perhaps when all of us are discussing pain levels, we are comparing apples, oranges, pears and cats! We in London might have gotten the short end of the stick with both minimal painkillers + a manual racheting nail (+ astronomical prices). No wonder all of us can't agree on how painful LL is...
Just my 2 cents from speaking to a ton of people and their respective experiences.
Quote from: Datum on August 26, 2017, 12:40:18 AMDon't think about all these problems unicorn. You will be functional again thanks to your new doctors and you will find a good man. I would marry you ASAP ... and have children to fight LL moneymakers!
If you are 42 and you would liek children I would take action now, as from 42 onwards every additional years makes a big difference in terms of fertility. Consider making appointment with London Women's Clinic and getting your eggs frozen. That is if you want to get it done in London. Otherwise Czech Republic offers best value for freezing eggs.
Quote from: helloworld on August 27, 2017, 06:42:57 PMIf you are 42 and you would liek children I would take action now, as from 42 onwards every additional years makes a big difference in terms of fertility. Consider making appointment with London Women's Clinic and getting your eggs frozen. That is if you want to get it done in London. Otherwise Czech Republic offers best value for freezing eggs.
Hi Helloworld,
Thanks for the suggestion Yes, I've had my eggs frozen before I went for LL in the eventuality that something went wrong and my body got polluted by too much chemicals. So yes, the eggs are ready for hatching Or the buns are ready for baking in the oven!
Quote from: Chris on August 25, 2017, 01:47:56 PMYou have my sympathy 
My doctors had to re-cut my left leg in March, and now there is no new callus, so I can feel your pain.
Hi Chris,
Thanks for your message! I've just read through your diary. You're so resourceful, resilient and positive. Don't let the naysayers get to you. You've been courageous and focused enough to undergo this procedure on your own. Just on this basis, you're my hero!
Healing might be slower than we wished, but I'm very confident it will happen or you'll find a solution. This ain't going to be the story of your life, you've many more years to chalk up more memories that will make this one something to laugh at some day. Trust me.
Quote from: Unicorn888 on August 29, 2017, 06:02:04 PMYou're so resourceful, resilient and positive. Don't let the naysayers get to you. You've been courageous and focused enough to undergo this procedure on your own. Just on this basis, you're my hero!
Healing might be slower than we wished, but I'm very confident it will happen or you'll find a solution. This ain't going to be the story of your life, you've many more years to chalk up more memories that will make this one something to laugh at some day. Trust me.
That's more like it Unicorn! Your response to Chris is the type of resilience you to need to focus on while taking on your challenge. Don't let this thing take you down for the count; you have plenty of life ahead of you. Focus on your health; relationships and love have a funny way of falling into place when you least expect it.
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