Quote from: Unicorn888 on August 29, 2017, 03:41:46 PMHi Helloworld,
Thanks for the suggestion 
Yes, I've had my eggs frozen before I went for LL in the eventuality that something went wrong and my body got polluted by too much chemicals. So yes, the eggs are ready for hatching Or the buns are ready for baking in the oven!
Good decision! You are a smart girl!
Hi everyone,
Just a small little update. I had some free time and wanted to tally up how much it has cost me to undergo LL surgery and its continuing complications for over 13 months. Here's a breakdown by category which I find super eye opening :
Transportation = £8k
Pharmaceuticals/meds = £3.6k
Delivered Meals = £10.4k
Paraphernalia/accessories = £2.4k
Tests/xrays/scans = £7k
Nurse/help = £17.5k
Treatments/chiro/therapist = £4k
Groceries = £1.2k
Interests = £1k (from outstanding credit card balances)
Household = £2k (including cleaning)
Entertainment = £2.2k (including Kindle, Netflix, Sky)
Guichet invoice = £100k
GRAND TOTAL = approx £155k out-of-pocket, not forgetting NHS is completely FREE and I already live in London (so no extra accommodation costs factored)
... and my nightmare is far from over since I've zero bones/non-union on my right leg at 10cm length 
Hi Unicorn,I'm checking your progresses when I have time on your instagram profile.
155k£ are a lot of money,no doubt....I don't know what to say,besides the huge ammount of money,in my opinion your doctor had the worst behaviour I have ever seen.I hope he will get the right punishment that he deserves (maybe losing potential patients after you experience)
By the way you are a so strong girl that you will made it.
I like your hacrapags (I remeber "iwillwalkagain" and "heightneurosissuck") and your determination.
I saw a comparison picture of before and after and you have made improvements.
For your right leg,have you tried a bone stimulator machine like is doing now Rgkey ? I guess bone graft is not enough for 10 cm of discrepancy
I have read almost all of diaries(including yours) but I don't remeber all details,so sorry if I'm asking nonsense questions
Edit:i rembered some details,and there is also the option of relenghtening with the Precice system
Quote from: The Dreamer on September 15, 2017, 04:36:44 PMHi Unicorn,I'm checking your progresses when I have time on your instagram profile.
155k£ are a lot of money,no doubt....I don't know what to say,besides the huge ammount of money,in my opinion your doctor had the worst behaviour I have ever seen.I hope he will get the right punishment that he deserves (maybe losing potential patients after you experience)
By the way you are a so strong girl that you will made it.
I like your hacrapags (I remeber "iwillwalkagain" and "heightneurosissuck") and your determination.
I saw a comparison picture of before and after and you have made improvements.
For your right leg,have you tried a bone stimulator machine like is doing now Rgkey ? I guess bone graft is not enough for 10 cm of discrepancy
I have read almost all of diaries(including yours) but I don't remeber all details,so sorry if I'm asking nonsense questions
Edit:i rembered some details,and there is also the option of relenghtening with the Precice system
Hi Dreamer,
Thank you so much for checking up on me. Yes, I've asked Rgkey and while I didn't get an exact response, I think we have a similar light ultra sound bone stimulator. His is 10 hrs per day while mine is only maxed at 20 mins per day 
))
Anyway, I'm supposed to post more xrays but can't seem to get any external disk drives to work. So am working out that first. Seems like left leg healed beautifully but nothing at all on right leg 
It's definitely an official non-union of 10cm.
Dr. Guichet seems like such a loving and caring doctor. A doctor who goes out of his way to provide the best possible care imaginable. A doctor who will go that extra mile for each and everyone of his patients. A true selfless man who doesn't care about money.
I also love the way he promotes that his patients have lengthened 10cm or more on one bone segment in the automated email you receive when you first contact him. That's how you set safe and realistic expectations for future patients. Clearly his focus is safety first.
Quote from: Unicorn888 on September 19, 2017, 01:49:57 PMHi Dreamer,
Thank you so much for checking up on me. Yes, I've asked Rgkey and while I didn't get an exact response, I think we have a similar light ultra sound bone stimulator. His is 10 hrs per day while mine is only maxed at 20 mins per day ))
Anyway, I'm supposed to post more xrays but can't seem to get any external disk drives to work. So am working out that first. Seems like left leg healed beautifully but nothing at all on right leg It's definitely an official non-union of 10cm.
No problem Unicorn,you are one of the fewest patient that I trust,it's obvious that I will follow your condition.
So you stated having 100% a non-union on right leg while left is 100% healed(in the sense that ,if you want,you could put all of your body wheight on it ? Or you assumed by looking x-rays ? Or simply your doc gave ok ?)
Regarding bone stimulator (I don't know if it is Exogen in your and Rgkey case) you could wait and see if Rgkey will experience improvements.In that case you could move on Rgkey's model (10 hrs per day) because you said your machine has a maximum ammount of 20 minutes
It is strange seeing soo much timing difference between two devices that have the same purpose
Quote from: The Dreamer on September 19, 2017, 02:20:47 PMNo problem Unicorn,you are one of the fewest patient that I trust,it's obvious that I will follow your condition.
So you stated having 100% a non-union on right leg while left is 100% healed(in the sense that ,if you want,you could put all of your body wheight on it ? Or you assumed by looking x-rays ? Or simply your doc gave ok ?)
Regarding bone stimulator (I don't know if it is Exogen in your and Rgkey case) you could wait and see if Rgkey will experience improvements.In that case you could move on Rgkey's model (10 hrs per day) because you said your machine has a maximum ammount of 20 minutes
It is strange seeing soo much timing difference between two devices that have the same purpose
Actually to begin with, the guichet nail is supposed to be 100% fully weight bearing. However, since Guichet had used 13mm nails which is large for petite females like me, both Guichet and my NHS doc had told me not to bear weight fully on the right leg since the cortices are thin.
The left leg has calluses that have joined but obviously the 'bones' are still very soft. I'm walking with even pressure on each leg with crutches to try continue stimulate growth but as always, it is about striking that fine balance between walking enough to grow bones and not walking too much that break bones 
And yeah, I wish I'd know Rgkey's bone stimulator machine because Exogen only allows so few minutes compared to his 600 minutes per day. When you cannot grow bones, you become desperate to get more of ANYTHING Our Whassap group of non-unioners are constantly obsessing over one miracle or another... with no proven results so far except for time
Unicorn, no machine can close a 10cm bone gap.
Don't put your time and effort to something that it is impossible to work.
Try to put precise 2 as soon as you can to your non aligned leg and begin to reverse lengthening till you start to have callus formation. Then you can use bone stimulants and all these machines to have a little faster consolidation. But till then anything else is pointless.
Quote from: Unicorn888 on September 19, 2017, 10:20:46 PMActually to begin with, the guichet nail is supposed to be 100% fully weight bearing. However, since Guichet had used 13mm nails which is large for petite females like me, both Guichet and my NHS doc had told me not to bear weight fully on the right leg since the cortices are thin.
The left leg has calluses that have joined but obviously the 'bones' are still very soft. I'm walking with even pressure on each leg with crutches to try continue stimulate growth but as always, it is about striking that fine balance between walking enough to grow bones and not walking too much that break bones
And yeah, I wish I'd know Rgkey's bone stimulator machine because Exogen only allows so few minutes compared to his 600 minutes per day. When you cannot grow bones, you become desperate to get more of ANYTHING Our Whassap group of non-unioners are constantly obsessing over one miracle or another... with no proven results so far except for time
Now I have fully understood your situation.Well you should Pm Rgkey asking him what kind of device is he using,he is a great guy and always responds soon.
However maybe Bodybuilder is right and 10 cm gap is too large.But I remember you saying that your NHS doctor was reluctant to do more operation (for Precice) to your left leg because it have suffered already a lot of trauma.
Are you still under NHS insurance ? What did your doc recommend you to do ? Because I have no medical credentials and my opinion worths zero cents...
Quote from: Body Builder on September 20, 2017, 12:17:27 AMUnicorn, no machine can close a 10cm bone gap.
Don't put your time and effort to something that it is impossible to work.
Try to put precise 2 as soon as you can to your non aligned leg and begin to reverse lengthening till you start to have callus formation. Then you can use bone stimulants and all these machines to have a little faster consolidation. But till then anything else is pointless.
You're right Body Builder It's all a pipe dream, I know. Nothing can fuse a 10cm gap, definitely not bone marrow aspirate or any type of ultrasound or magnetic machine.
We can only dream because we're desperate to reclaim our lives. I cannot even begin to explain to you the kinds of depression and sorrow we go through.
I've just received a message from some troll on eBay asking me to post more photos of a dress and I had asked her to wait because I need my cleaning lady to put the dress on the mannequin and take photos. She writes back, "well if you can type, you can post. So don't bull about your f***ing handicap".
I know I'm supposed to ignore these types of comments but sometimes it's the straw that breaks the camel's back. And these days, I just have so little energy left to deal with life. I can understand why some people end their lives. It's so bleak sometimes because everything is painful and out of reach, that you don't mind if you don't see another day.
Can you imagine? I'm so sensitive that I let an eBay troll get to me??? What have I become?
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