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Posted on Oct 1, 2017, 4:26 pm
#731

Here are my latest xrays as of yesterday.

RIGHT LEG
Still nothing but I'm hallucinating a little more calluses
UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016

LEFT LEG
Beautiful calluses (fingers crossed), I had reduced my lengthening to abt 3 clicks a day instead of 15 clicks, hence only 0.2mm per day
UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016

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Posted on Oct 2, 2017, 3:11 pm
#732

Is doing 30 minutes at day of yoga youtube videos good enough to reach ideal flexibility in the long term?

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Posted on Oct 2, 2017, 3:39 pm
#733

Quote from: Unicorn888 on October 01, 2017, 04:26:26 PMHere are my latest xrays as of yesterday.

RIGHT LEG
Still nothing but I'm hallucinating a little more calluses
UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016

LEFT LEG
Beautiful calluses (fingers crossed), I had reduced my lengthening to abt 3 clicks a day instead of 15 clicks, hence only 0.2mm per day
UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016

I really dont understand what are you doing right now. What is the point of lengthening left leg 0.2 mm per day? The right leg is you reference point. Because there is no callous formation you need to start pressing NHS on taking some action. IMHO stop immediately lengthening left leg. If it is 8 cm or whatever keep it that way. Stop pushing you soft tissue and let it regenerate. The right leg needs to be shorten in order to reignite callous formation. They should shorten right leg which should help a bit then re nailing should also help and maybe additional bone graft. Those 3 should make a difference. If not. Precise 2, shortening (as much as needed) to start callous formation and the re lengthening to match left leg.  P2 got only 8 cm so i dont understand why you keep lenghtening. There is no callous formation on the right leg so trying match it with the left leg makes absolutely no sense.

Edit
I need to be harsh with you. You f*ckin need leg shortening in order to take some pressure off you soft tissue. Ive seen the way you walk and if you can recover from that in few year(yes years!) then I think it would be close to miracle. Its not only your bone but muscle tendons etc and right now it looks bad. If you shorten right leg by even 2 cm that will help a lot and will definitely speed up recovery.
I know it sounds negative and discouraging but I really think you can still walk normal. Height is no longer you priority.

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Posted on Oct 2, 2017, 3:58 pm
#734

Quote from: doomsday on October 02, 2017, 03:39:31 PMI really dont understand what are you doing right now. What is the point of lengthening left leg 0.2 mm per day? The right leg is you reference point. Because there is no callous formation you need to start pressing NHS on taking some action. IMHO stop immediately lengthening left leg. If it is 8 cm or whatever keep it that way. Stop pushing you soft tissue and let it regenerate. The right leg needs to be shorten in order to reignite callous formation. They should shorten right leg which should help a bit then re nailing should also help and maybe additional bone graft. Those 3 should make a difference. If not. Precise 2, shortening (as much as needed) to start callous formation and the re lengthening to match left leg.  P2 got only 8 cm so i dont understand why you keep lenghtening. There is no callous formation on the right leg so trying match it with the left leg makes absolutely no sense.

Edit
I need to be harsh with you. You f*ckin need leg shortening in order to take some pressure off you soft tissue. Ive seen the way you walk and if you can recover from that in few year(yes years!) then I think it would be close to miracle. Its not only your bone but muscle tendons etc and right now it looks bad. If you shorten right leg by even 2 cm that will help a lot and will definitely speed up recovery.
I know it sounds negative and discouraging but I really think you can still walk normal. Height is no longer you priority.

She's not lengthening anymore. At least that's what I got from it. She said because she lengthened slower, the recovery was better.

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Posted on Oct 2, 2017, 6:37 pm
#735

Quote from: IwannaBeTaller on October 02, 2017, 03:58:49 PMShe's not lengthening anymore. At least that's what I got from it. She said because she lengthened slower, the recovery was better.

I stopped lengthening left leg some time ago so it doesn't match my right leg of 10cm.   There's no point lengthening to match a 10cm that cannot fuse.

I'm now waiting to see what NHS will do for my right leg.  I think they want to graft it with hip bone but I prefer to change nails to Precice 2, shorten, wait for union and then re-start lengthening to match the healed left leg.

So both of you are right.  I'm not lengthening left leg anymore.  And something has to be done to the right leg  UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016

I had only mentioned the slow lengthening rate because I was lengthening on my own for my left leg and I had waited one week after surgery without lengthening for the left leg to settle and then lengthened very slowly.  And that shows that with very slow lengthening (unlike the lightning speed of 1mm per day for my right leg) works very well because the fusion has been good.  I'm just comparing the results of lengthening fast and slow.

Sorry it wasn't clear UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016   So to summarize the differences, I created a chart below :

UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016

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Posted on Oct 2, 2017, 6:58 pm
#736

Quote from: Unicorn888 on October 02, 2017, 06:37:07 PMI stopped lengthening left leg some time ago so it doesn't match my right leg of 10cm.   There's no point lengthening to match a 10cm that cannot fuse.

I'm now waiting to see what NHS will do for my right leg.  I think they want to graft it with hip bone but I prefer to change nails to Precice 2, shorten, wait for union and then re-start lengthening to match the healed left leg.
I think that involving the Precice system seems to be the best and safest option.
You mentioned that you have lengthened your left leg slowly than 1mm per day.Do you remeber the exact ammount ? Like 0.66 mm or something similar ?

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Posted on Oct 2, 2017, 7:39 pm
#737

Quote from: The Dreamer on October 02, 2017, 06:58:45 PMI think that involving the Precice system seems to be the best and safest option.
You mentioned that you have lengthened your left leg slowly than 1mm per day.Do you remeber the exact ammount ? Like 0.66 mm or something similar ?

I was too scared that my left leg would end up non-union like my right leg.  So I think Guichet lengthened about 1cm during surgery, and then I waited one week without lengthening.  When he found out, he got furious so he made me lengthen 165 clicks in 24 hours.  That was more than 1cm in one day and my skin was about to burst, hence the erythema.

After that, I slowed down to 3-5 clicks a day which is only 0.2-0.3mm per day.  And the healing looks good and very different from the non-union of the right leg.  The right side was lengthened at 1.5cm during surgery and afterwards, 1.5mm per day (first 2 weeks), 1mm per day (most days) and finally 0.6mm per day (last 2 weeks).  And it was very fast.  We were recommended to take up to 1,200mg of aspirin per day during my right leg even after lengthening ended.  So I stopped taking aspirin for my left leg since it's known to slow fusion.

Again, this is only for old ladies like myself who don't fuse.  Younger dudes usually pre-consolidate, so they have the opposite reaction and need to lengthen even faster to slow down fusion and take Naproxen/Xarelto (I forget which one).

One thing we noticed for men and women is...  people with lower blood pressure seem to fuse slower.  Amongst my non-union group, we noticed that many of us suffer from low blood pressure.  Not a theorem, just an observation.

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Posted on Oct 2, 2017, 8:04 pm
#738

Quote from: Annalisa on October 02, 2017, 03:11:11 PMIs doing 30 minutes at day of yoga youtube videos good enough to reach ideal flexibility in the long term?

Hi Annalisa,

Any yoga is better than nothing esp the ones focused on stretching out your quads, hamstrings, hips, IT band muscle groups.  That will really help your lengthening recovery afterwards and perhaps allow you to reach the height you want.

Tight muscles/low flexibility means you'll be hunched over like me because my muscles/soft tissues are not stretched/long enough to compensate for my taller body.

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Posted on Oct 2, 2017, 8:19 pm
#739

Is it just me or does it look like a little tendril of callus reaching down from the top on your right leg?

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Posted on Oct 2, 2017, 9:01 pm
#740

Very clear,thanks Unicorn.Interesting also your intuition on the effect of bloody pressure.Probably it is because less pressure=less speed of blood flood and as for consequences slower healing.Just my 2 cents
Yes,it is true that for young people the risk of preconsolidation is more worrying about.
At first sight I would say you have a small formation on your bottom of your right leg,but now that i'm paying more attention maybe Bleda is right.However the gap is still noticeable in my opinion
I would ask you if you know what happens exactly(biologically speaking) when you reduce the gap by shortening the nail
Why this is supposed to enhance callus formation ?
I read this statement in a lot of diaries but never understood the concept behind it

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