Quote from: The Dreamer on September 20, 2017, 01:32:11 AMNow I have fully understood your situation.Well you should Pm Rgkey asking him what kind of device is he using,he is a great guy and always responds soon.
However maybe Bodybuilder is right and 10 cm gap is too large.But I remember you saying that your NHS doctor was reluctant to do more operation (for Precice) to your left leg because it have suffered already a lot of trauma.
Are you still under NHS insurance ? What did your doc recommend you to do ? Because I have no medical credentials and my opinion worths zero cents...
That's hilarious Dreamer! Actually, your asking about my case shows interest. And interest, at this point for me is empathy 
So you are still making a difference in someone's life A foresaken one
A 10cm non-union is too large, that's correct. And NHS was saying that their most successful attempt at grafting with hip bone + cadaver bone mixture is 5cm. They were proposing to do this once they get all my full tests to ensure that I've no infection of any kind where my bone is rendered useless. This can easily happen. And if that's the case, they'll graft with a cadaver bone. It's by all means not without its own set of complications, risks and guarantees. Just another coin toss.
Other options which they can consider is changing to trauma nails and shorten the gap. My wish is to change to Precice 2, shorten it and wait for calluses to grow before re-lengthening to match my other leg which nobody really knows the final length. Somewhere btw 8-9cm I think.
That said, I personally am a layman as well and do not even know if my nails can be removed and Precice 2 can be used, and that shortening will not damage my soft tissues etc.
I'm kinda stuck for the time being. I'm sitting in NYC now on my way to Hawaii for my brother's wedding where I'm not supposed to appear in wedding photos using crutches. So we'll have to see what I can muster without tumbling into a volcano. I'm not a virgin (surprise surprise!) so, it's not like I'm going to appease any Gods with my sacrifice 
UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016
Quote from: Unicorn888 on September 20, 2017, 07:11:40 PMThat's hilarious Dreamer! Actually, your asking about my case shows interest. And interest, at this point for me is empathy So you are still making a difference in someone's life A foresaken one
A 10cm non-union is too large, that's correct. And NHS was saying that their most successful attempt at grafting with hip bone + cadaver bone mixture is 5cm. They were proposing to do this once they get all my full tests to ensure that I've no infection of any kind where my bone is rendered useless. This can easily happen. And if that's the case, they'll graft with a cadaver bone. It's by all means not without its own set of complications, risks and guarantees. Just another coin toss.
Other options which they can consider is changing to trauma nails and shorten the gap. My wish is to change to Precice 2, shorten it and wait for calluses to grow before re-lengthening to match my other leg which nobody really knows the final length. Somewhere btw 8-9cm I think.
That said, I personally am a layman as well and do not even know if my nails can be removed and Precice 2 can be used, and that shortening will not damage my soft tissues etc.
I'm kinda stuck for the time being. I'm sitting in NYC now on my way to Hawaii for my brother's wedding where I'm not supposed to appear in wedding photos using crutches. So we'll have to see what I can muster without tumbling into a volcano. I'm not a virgin (surprise surprise!) so, it's not like I'm going to appease any Gods with my sacrifice
Unicorn,don't let those stupid things to worse your mood.You must continue to fight so leave out "suicide" and other useless thoughts.I know it is easy speaking for me since i didn't LL and didn't pass the hell you have been through but usually when I feel bad for something,I try to focus upon positive things.It is hard but it worths a try.
Now you are under NHS care so you are safe and I'm sure they will do their best to take care of you
Having said that,I'm understanding that they still have to get all you tests in order to take a decision on which option is better.I'm guessing they will take also xRays of your right to leg to aknowledge the exact lenght of the distraction
However when you feel lonely or want to talk with someone feel free to Pm me,you're not alone
Now I don't want to bother you since a long trip is wainting for you (19 hrs right 😉 ?),a wedding it seems to me the best moment to take a rest recharging your batteries and Hawaii is surely a wonderful country and the right place to do that
In a 100% successfully planned and conducted LL surgery, a 10 cm gap isn't even supposed to happen, is it? The fault wasn't your own, but the one of the surgeon and the post-surgery care. I still shake my head over the accidental clicking and lengthening your leg with the internal nail that caused this gap. And internal nails were supposed to be an advancement over the "antiquated" Ilizarov frames, which is also why they're a lot more expensive. I think we can assume that with a traditional external lengthening, most of the problems you have today would not have come to exist. Yes I know, you did femurs, but if we entertain the thought that you had done external tibias or femurs instead, we can come to the conclusion that the complications would not have happened. Of course that's not useful, except for future patients.
It baffles me how much professional failure has become apparent in your case, with a procedure that has cost so much money. Amazing. I keep rooting for you, even though I'm a little scared to open your diary and read more dire news. Stay strong.
Quote from: IwannaBeTaller on September 21, 2017, 11:07:46 AMIn a 100% successfully planned and conducted LL surgery, a 10 cm gap isn't even supposed to happen, is it? The fault wasn't your own, but the one of the surgeon and the post-surgery care. I still shake my head over the accidental clicking and lengthening your leg with the internal nail that caused this gap. And internal nails were supposed to be an advancement over the "antiquated" Ilizarov frames, which is also why they're a lot more expensive. I think we can assume that with a traditional external lengthening, most of the problems you have today would not have come to exist. Yes I know, you did femurs, but if we entertain the thought that you had done external tibias or femurs instead, we can come to the conclusion that the complications would not have happened. Of course that's not useful, except for future patients.
It baffles me how much professional failure has become apparent in your case, with a procedure that has cost so much money. Amazing. I keep rooting for you, even though I'm a little scared to open your diary and read more dire news. Stay strong.
totally right.
Are you doing magnets? Why not teriparatide?
Quote from: Datum on September 21, 2017, 08:24:51 PMAre you doing magnets? Why not teriparatide?
I'm doing Exogen which is a light ultra sound. As Bodybuilder pointed out, chances are it wouldn't fuse a 10cm gap esp since there're no calluses.
That said, my poor NHS doc keeps telling me, PLEASE STOP GOING ONLINE TO RESEARCH about bone fusion since you've so much time on your hands and are so desperate 
It is quite funny because that's all I do every day... thinking about teriparatide, insuline-like growth factor 1, HGH, bone printing tech etc. and the more I search, the deeper I lose myself inside the dark net
Before we know it, I'll be drug dealing on Silk Road My second calling in life!
Quote from: The Dreamer on September 20, 2017, 08:43:14 PMUnicorn,don't let those stupid things to worse your mood.You must continue to fight so leave out "suicide" and other useless thoughts.I know it is easy speaking for me since i didn't LL and didn't pass the hell you have been through but usually when I feel bad for something,I try to focus upon positive things.
Quote from: IwannaBeTaller on September 21, 2017, 11:07:46 AMIt baffles me how much professional failure has become apparent in your case, with a procedure that has cost so much money. Amazing. I keep rooting for you, even though I'm a little scared to open your diary and read more dire news. Stay strong.
@Dreamer and @IwannaBeTaller, you're both absolutely RIGHT! I scare myself too and I shouldn't scare forum readers.
I have to reel in my emotions a little better because I'm stuck where I am and I cannot wallow in depression nonstop. I'll try my very best to look at the sunny side of life even if I've to fake it 'til I make it 
This thread is so scary, all my support for you unicorn, there will come a day where you will be fine again...
I trusted dr guichet so much before this, i was even planning to go with him for this summer, but right now i don't know what to think...
Quote from: Unicorn888 on September 23, 2017, 12:25:37 AMI'm doing Exogen which is a light ultra sound. As Bodybuilder pointed out, chances are it wouldn't fuse a 10cm gap esp since there're no calluses.
That said, my poor NHS doc keeps telling me, PLEASE STOP GOING ONLINE TO RESEARCH about bone fusion since you've so much time on your hands and are so desperate
It is quite funny because that's all I do every day... thinking about teriparatide, insuline-like growth factor 1, HGH, bone printing tech etc. and the more I search, the deeper I lose myself inside the dark net
Before we know it, I'll be drug dealing on Silk Road My second calling in life!
buddy, I am sure you will recover, god takes care of good people, it may take some time. I used to have great opinion of Guichet (since he is a pioneer in LL field) - but this - is not good result from him.
Hi everyone!
I wanted to be more positive for you guys pre-LLers. So here I'm going to post some very extreme stretching techniques to help you prepare for lengthening.
Regardless of what anyone's trying to sell you, you don't heal automatically from LL after reaching your height (the only thing automatic is your doctor's work is done at this point). After that, you have to regain muscle strength, bear weight, walk without crutches and finally regain your normal walking gait. And it takes time! It takes up to one year depending on how far you lengthen. Also, everyone is right, don't go beyond 6cm to be on the safe side. WHY?
Because while you can lengthen your femur bones, you cannot lengthen your soft tissues that fast. Hence, keep your lengthening rate SLOW. The slower you go, the less risk of non-union (watch your xrays every 2 weeks to ensure you've beautiful calluses that join). If you don't have them, STOP lengthening until calluses grow. Remember, the goal is not who can lengthen fastest, the goal is who can regain their normal life back fastest. And sometimes, slower is faster.
It reminds me of the time I went up Kilimanjaro with a troupe of about 10. And I was always put in front (first yay!) even though there were some expert climbers and rock solid guys behind me who were constantly complaining about our slow pace BECAUSE OF ME, the slow poke from Manhattan who didn't train for Kilimanjaro and cared more that all her North Face gear was matchy matchy in chic red and grey. When I finally asked the climbing guide why I was put in front, he said it's to ensure 100% success. Boy I felt amazing! Hah! Me, hero for once! And then he says, "To achieve 100% success rate, I put the weakest and slowest in front, that way everyone else behind her will be safe and will make it up the peak". What a blow to my self esteem! I could literally hear my ego puncture like a deflated balloon and farted away like a whoopie cushion. Hence, slower is sometimes faster! That's the motto!
Anyway, that said, I thought I'd dedicate this post to those who want to know what are the best ways to stretch because everyone knows that flexibility is key, but for what? It is not to make the lengthening faster, longer or more painless. It's for avoiding duck ass, lordosis, scoliosis etc because when your soft tissues cannot catch up with your new height, you become strung like a marionette. Basically, your hamstrings, quads, IT bands, psoas and illiacus are too short for your longer bones. So you end up crunched up with an anterior pelvis tilt which results in duck ass (lordosis), an inverted knee (genu valgum) and ballerina feet.
I've posted the IDEAL stretches and they look IMPOSSIBLE, but it's just a guide for you to achieve. The good news is soft tissues can be stretched out and it takes time and effort, exactly like homework. The more flexible you become, the longer you can lengthen and the less problems you'll have with recovery. So don't be discouraged with these impossible poses, I'm just showing you what end goal you wanna get to if you want to train hard for your lengthening. And there are other exercises if you google that will show you milder ways to get here. But the more you improve your flexibility, the better your LL experience will be
STRETCHING QUADS
STRETCHING HAMSTRINGS
STRETCHING PSOAS
STRETCHING IT BAND
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