That’s why I’m bit worried
But dr. Paley had said vascular system adapts
I mean he has lengthened patients upto 16 cm and all are fine
I mean I survived fat embolism and also blood clot scare so I’m pretty deep into it.
Just exhausted and now want body to adapt and enjoy the new height
I wonder if I remove nails sooner would it help and just be on crutches
Quote from: overandover on June 19, 2021, 08:15:39 AMI haven't had the surgery yet still I get bad pain in my legs sometimes randomly. There's no reason for it it just happens.
Lmao. This is exactly what I'm talking about. Sometimes it's nerve pain around the knee and sometimes just a random sharp pain and lasts for 2-3 days. That's why tibias are a big no-no. I could only imagine the pain waiting for me when I go through the surgery a few years down the line along with the accumulated problems I have.
overandover: If you have pains like that already then expect them to be worse after LL if you do it, I never experienced those types of pains until after CLL
ahd1978: Yes early consolidations come with its pains, the body is healing and adjusting still, give it some time you should be soaring pain free around month 6-7 up until month 11-12 when you might encounter this 1 year post op hell, that left me almost crying and I'm very pain tolerant.
more: yup I researched and found those same answers, it varies with everyone.
want-3-inches: It's rare that someone gets their rods removed before the 1 year post op mark, I've only seen that once, SNC. Most people might experience this 1 year post op phase of crippling pain. to answer your question, Covid is the reason I haven't removed my nails yet.
Thanks movie
Looking forward to that pain free 7 month
I’m sorry for your post op 1 year pain. What did the doc have to say ? Is it nails or it just happens
There must be an explanations. I have watched diaries on victors Website of patients having done femur and tibia and no one mentions this pain
Thanks again for advice
I'm way past the 1 year post op pains, Dr. Mahboubian said that my body is still adjusting 1 year post op that pains are still normal.
Yeah I wouldn't ever hear of this 1 year post op pains. but when I mentioned it in my diary at least 4 other Stryde patients mentioned they had pain 11 months post-op, 1 year post op ETC around the 1 year mark and it lasted a couple weeks, pretty bad pains too.
Sending positive vibes and well wishes your way Movie. Around my 1 year op anniversary I'd get random shooting pains above my knee just a handful of times. In my case the most unfortunate residual outcome of this is numbness in my left shin that I still have till this day. Hopefully rod removal has a positive impact for both of us.
顺利
Quote from: Movie on June 19, 2021, 04:50:05 AMI want to address something that hasn't officially been addressed specifically, but after a lot of conversations with different fellow CLLers, a lot of us experienced what I've come to name "1 year post-op hell" which is pretty much self explanatory ... around the 1 year post op mark +-1 or 2 months I experienced excruciating pain in my knees, one week my right knee and femur would be on fire and pains up to 9/10, the next week my left would shoot up in pain. this lasted about a month or so, the pains still come sometimes if I exercise but nothing to complain about.
this is for Stryde nail femur patients not sure if other nails have this or if tibia procedures have this phenomenon.
Anybody else experienced this? if so care to share for other newer CLLers?
Interesting. That didn't happen with me after my Betzbone LL (10cm on the right, 9cm on the left) I only left my crutches 10 months after the OP. So when I reached one year post op was actually recovering pretty well, no pain at all. My excruciating pain happened during lengthening,
This is interesting, I actually too started having random soreness in my hips at almost exactly the one-year mark.
What are chances I have the nails removed within the year and be on crutches to avoid additional weight bearing
Atleast this way the nails r out of body
Maybe this pain is due to the nails
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