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Posted on Jul 9, 2018, 1:33 pm
#21

By the way, if you are considering LL, unless you are very close with your family and you think they would understand if you told them, it is best not to tell anyone at all!  I only told a very close friend I knew I could confide in. For everyone else, it was a surprise upon my return.  And I still got all the tut tuts when they saw me on crutches!  They knew nothing about LL of course.

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Posted on Jul 9, 2018, 6:02 pm
#22

You can post full body pictures, but not those of your scars, despite all the years that have passed?

And cutting, lasering out keloids generally just means they'll most likely grow back, and even larger.

QuoteRemoving the scar is one treatment option; however, it may result in more severe consequences: the probability that the resulting surgery scar will also become a keloid is high, usually greater than 50%


This is what happens with bad (e.g. surgical - without cryotherapy) keloidal treatment.

You got misdiagnosed, or you are lying.

I'm tired of all these pseudo-diaries where people can't produce the minimum evidence necessary, don't answer medically pertinent questions, and start crying wolf when pressed on.

For all we know these are just pics of a guy who is naturally that height. Not only that, the claim is 11cm - virtually unheard of -, and you are also claiming to be doing well.

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Posted on Jul 9, 2018, 8:30 pm
#23

Seems very plausible that the diary is fake... This further means Rocky is also fake as he claims to have met this guy.... both are then going to be paid advertisers of Jamal....   happens.

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Posted on Jul 9, 2018, 8:32 pm
#24

Quote from: totallyred on July 09, 2018, 08:30:35 PMSeems very plausible that the diary is fake... This further means Rocky is also fake as he claims to have met this guy.... both are then going to be paid advertisers of Jamal....   happens.

If the diary is fake why would Rocky use that callous gap pic he posted? And why would he say that he was advised to keep lengthening when it wouldn't show any signs of bridging and that "stem cell therapy" will be used instead. Seems like a pretty bad fake if he is one.

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Posted on Jul 9, 2018, 9:03 pm
#25

Quote from: Johnson1111 on July 09, 2018, 08:32:18 PMIf the diary is fake why would Rocky use that callous gap pic he posted? And why would he say that he was advised to keep lengthening when it wouldn't show any signs of bridging and that "stem cell therapy" will be used instead. Seems like a pretty bad fake if he is one.


Or let me ask otherwise, how could he meet a person and verify his credentials while person is hesitating to give even a minor proof of legitimacy. Why can't you give some proof that you are real CLLer?

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Posted on Jul 9, 2018, 9:30 pm
#26

Wow, I can't believe I'm reading this!  Some haters and doubters on these boards. I had 'Mr bag of good news' earlier telling me to look forward to arthritis lol.
What motivation would I have to post on here if indeed a fake? I have better things to do with my time. I am one of those that moved on with his life after LL. I had a career, went through a couple of marriages, only here cos I am back in Kiev and it was good meeting with Dr J again and his current patient Rocky. As a successful LLer I thought I'd share my experience with you guys and this is what I get in return? Fine, just to shut you bi@tches up, scar photos coming soon.  I'll take'em tomorrow. It's late here.

p.s. however, I am flattered that I look like a guy who is naturally that tall ) best compliment you can give me, cheers!
And can you please remove that vid about keloids, really not necessary!

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Posted on Jul 9, 2018, 10:13 pm
#27

Actually, this annoyed me to the point where I had to do it now.

 11cm on femurs internal Bliskunov with Drs Dragan and Jamal in Kiev in 2004 11cm on femurs internal Bliskunov with Drs Dragan and Jamal in Kiev in 2004 11cm on femurs internal Bliskunov with Drs Dragan and Jamal in Kiev in 2004 11cm on femurs internal Bliskunov with Drs Dragan and Jamal in Kiev in 2004 11cm on femurs internal Bliskunov with Drs Dragan and Jamal in Kiev in 2004

Happy?  And I'm fairly happy with my scar revision surgery thank you.  Please remove that vid from my diary

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Posted on Jul 9, 2018, 10:36 pm
#28

I can't edit old posts, and those don't look like keloids. People tend to have the tendency to call hypertrophic scars (what those look like after scar revision) the same as if they were keloids. Keloids are a type of scarring only really prevalent in those of Sub-Saharan African ancestry.

Still, thank you for posting the pictures. You can't expect us all to believe someone who came here claiming he lengthened 11cm and is doing totally fine, specially now at over 40, and without seemingly any concrete proof at all. Most people here lengthened less and complain about small aches/feelings of stiffness everyday, not to mention an endurance loss.

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Posted on Jul 9, 2018, 10:41 pm
#29

!

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Posted on Jul 9, 2018, 10:44 pm
#30

Quote from: myloginacc on July 09, 2018, 10:36:17 PMI can't edit old posts, and those don't look like keloids. People tend to have the tendency to call hypertrophic scars (what those look like after scar revision) the same as if they were keloids. Keloids are a type of scarring only really prevalent in those of Sub-Saharan African ancestry.

Still, thank you for posting the pictures. You can't expect us all to believe someone who came here claiming he lengthened 11cm and is doing totally fine, specially now at over 40, and without seemingly any concrete proof at all. Most people here lengthened less and complain about small aches/feelings of stiffness everyday, not to mention an endurance loss.

Yes sorry they're not keloids, apologies for the confusion.  Maybe ask the mod to remove the vid?

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