Alternative surgery

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Hello, please can anyone advise, I’ve just discovered this forum which looks really helpful. My daughter is 18 years old and was diagnosed a few years ago with possible Beckwith Weidemann syndrome, she is a lovely 5ft 9” but has one leg that’s 4.5cm longer than the other. This has more recently been  causing her to experience more back and leg pain. The consultant here in the UK suggested we wait until she finishes school for her to have surgery and to have it done before she goes to university, she finishes school this year. The surgery that was recommended to us was breaking her leg and putting her leg in one of this cages and she would tighten the screws (I’m sure there’s a more technical name, please forgive the Simplicity) which would then allow her leg to lengthen over time, this would then need to be repeated and the same surgery done again, taking approximately 2 years before it was completed. Leaving lots of scarring. My daughter has always been opposed to this surgery but her pain is increasing and she is aware that something must be done. Please can anyone advise? We would be happy to travel for the right treatment. I Would love for my daughter to be pain free and happy. Thank you in advance.

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Thank you so much! This sounds a much better alternative, I haven’t got the consultants notes on me but I will find out which bone it is as I can’t remember which one it is. I will look into it and fingers crossed it will help.  Can this kind of surgery be done with both of those bones?Thank you for your advice, it’s reallt helpful.

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Thank you so much petite888, I will have a look into that new one too. I’m in the UK, this help is so appreciated, I’ve been feeling a little lost with what to do for the best.

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Aww wow! Amazing! Thank you so much, I will look into that, that’s really kind of you. 😊