Wanna to know have anyone regret of doing CLL?
Any advice to prospective patients?
If I can afford enough money with premium surgeon, do u guys recommend a caring surgeon.
I am considering Dr Assayag, Dr Paley and Dr Lee. Please give me some opinions.
Quote from: uponly on April 19, 2023, 05:48:28 PMI have no regrets from doing LL. It's the best decision I've ever made.
Every doctor you listed is very credible. I would definitely add Dr. Rozbruch to that list. Along with Dr. Paley, he is considered the best in the world at this procedure. I can tell you from personal experience that he very much cares about his patients, and his team is top-notch. He is also the head of orthopedics at arguably the best orthopedic hospital in the world (HSS).
You're on the right track. Do not compromise on Dr. quality, and using the right nail (Precise 2.2 is the best available on the market as of now). I would consult with all of them, and then decide where to do the surgery. In Asia, Dr. Lee is obviously the first choice. In the US, it depends on whether you would be more comfortable on your own or prefer to stay locally, which Drs. Paley and Assayag require. For me, Dr. Rozbruch's approach to PT, his patient demeanor, and the fact that I could go home and be in an environment that was more conducive for me to thrive in sealed the decision.
But really, you can't go wrong with any of those doctors. Have a healthy diet and good Vitamin D and Calcium levels before the surgery, take the recommended supplements and eat lots of protein, and follow the Dr.'s protocols to the letter, and you will have a successful outcome.
Thanks a lot!
Your advice helps me a lot. Yes, Dr R is one of the best. I have already contacted Dr Donghoon Lee. His staff said” Since a lot of international patients ask for more availability for surgery, Dr. Lee has created another operation room and more facilities; therfore, you can make an appointment even this year if you want.” It is so good! I watched most of videos in Dr Lee’s YouTube channel. I think he is a caring and experienced doctor. I also contacted Dr Paley’s staff. The cost of Paley institute includes PT sessions, it is 5 sessions per week during lengthening phase. He has a reliable PT team.
After I talked with them, I believe that I can’t go wrong with those great doctors and PT.
Quote from: tempthrowaway on April 20, 2023, 05:14:44 PMWhat is the average wait time on docs in USA? Do most docs require you to book surgery a year+ in advance?
I have already asked the Paley institute’s staff, they said 2-3 months in advance.
Quote from: tallerwouldbenice on April 24, 2023, 09:48:59 AMNo regrets. One of the best things I did in my life. Bilateral femurs with Paley about a year ago
After 1 year, how is your current recovery condition? Do u walk normal? Do u try running or playing sports? While u have stayed in WPB, other patients in Paley institute s also did well?
Quote from: tallerwouldbenice on April 24, 2023, 03:06:24 PMRecovery very good. I have lost a ton of flexibility, but I don't care. It might come back, it might not. I never wanted to run marathons anyway
U said u have lost a ton of flexibility, please tell me some details. I like swimming and playing tennis, can I do these after recovery?
Quote from: Siegfried on April 24, 2023, 03:13:10 PMOnly regret is not doing it 5 years earlier! Best thing I ever did
Wow!👍How is your athletic ability now?
Quote from: p00293 on April 24, 2023, 03:27:11 PMI don't know why so many are so concerned with their 'athletic ability'. You see some weirdos on here who are hesitant to get surgery cos muh I won't be able to squat again.
Who gives a fk about your squat? It's much more beneficial to life to be 2-3 inches taller than be able to squat any amount of weight, or play some stupid amateur sports or whatever. Who cares if you can't run 100 metres as quickly as you used to, 99% of the time legs are used for walking or climbing stairs, and I honestly can't remember the last time I had to run somewhere.
Just get it, be taller, enjoy your increased social opportunities and just live with the TINY fking tradeoff that your leg days aren't going to be anything impressive going forward.
Ok! I understand. Different people have different mindsets. Some people enjoy “playing some stupid amateur sports or whatever”. Yes, I play sports every weekend and enjoy it, so I concern “athletic ability” and want to get back. Some people like playing online games or addict the internet world or other indoor hobbies, so they don’t care “athletic ability. I understand it is a trade off and accept losing some athletic ability(maybe 10-20%). But I will also try my best to recover my athletic ability.
Quote from: tallerwouldbenice on April 24, 2023, 04:04:15 PMI'm quite active, meaning I work out. LL does not stop me from working out. I am essentially back at my previous personal record on the main machine that I used to track my ability.
You won't be able to run marathons though.
So you regained your athletic ability after consolidation phase? U totally recovered now?
Quote from: Siegfried on April 24, 2023, 04:21:49 PMI fully intend on running marathons again though, however i already did this before surgery. I do not see a reason why, I should not be able to do this again. However I probably wont be breaking any personal records though
Looking forward you run marathons again! Wish u recover well!
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