My surgery is in two weeks and I want to get on a diet to maximize bone and tissue healing.
Anything special, vs. the general diets recommended for fractures? The most interesting article I found on that is
https://www.betterbones.com/fractures-and-healing/speed-healing/
Some things that stood out:
While a normally active adult may require 2,500 calories a day, a bedridden, injured patient with multiple fractures may need 6,000 calories per day! If this demand is not met, the healing process is compromised.
(The above is a bit surprising!)
Protein malnutrition or under-nutrition leads to a “rubbery” callus, compared to the rigid calluses of those with adequate or high protein intake. Numerous studies document the acceleration of fracture healing with even a modest 10- to 20-gram increase in protein intake.
Specific amino acids of special importance include lysine, arginine, proline, glycine, cystine, and glutamine. Lysine, for example, is known to enhance calcium absorption, increase the amount of calcium absorbed into the bone matrix, and aid in the regeneration of tissue.
Other resources are https://draxe.com/heal-broken-bones/ and https://www.webmd.com/osteoporosis/osteo-fracture-diet. They recommend the usual suspects: protein, calcium, Vitamin D, zinc, Vitamin C, iron, potassium, magnesium, omega-3 fats. Of course, avoid alcohol, coffee, salt and sugar.
An interesting bit from Dr. Axe,
Vibration therapy can accelerate healing of broken bones. Stand on a vibrational platform for 5-20 minutes 2x daily to improve osteoclast formation.
Other tips?
You should make an appointment with a nutritionist. The links there provide a lot of information, so you two could probably work the ideal protein and vitamin intake.
And in hindsight, it looks like Jexus' doctor was right about the calories, after all, if that betterbones website is to be trusted.
Quote from: myloginacct on March 02, 2018, 11:19:16 PMYou should make an appointment with a nutritionist.
Perhaps, but outside of individual allergies, I think the topic "Best diet for CLL" is common enough in this forum that we should have good answers for it sourced from nutritionists and personal experience. FWIW I've asked Paley & team - the advice was along the lines of "Just eat a healthy diet with http://bonehealthnow.com/ supplementation and keep in mind that most patients lose weight because of extra training and post-op discomfort."
Correct. You need about 2000 calories extra per bone break (So for LL, it would be 4000 extra calories.. 8000 for quadrilateral). You need to have lots of Protein, Calcium, and Vitamin D.
Quote from: Purushrottam on March 03, 2018, 12:10:51 AMCorrect. You need about 2000 calories extra per bone break (So for LL, it would be 4000 extra calories.. 8000 for quadrilateral). You need to have lots of Protein, Calcium, and Vitamin D.
Holy moly, 8000 calories. Makes sense though. Puru, curious what the source of this information is. Thanks!
Quote from: fivefive on March 03, 2018, 12:12:48 AMHoly moly, 8000 calories. Makes sense though. Puru, curious what the source of this information is. Thanks!
I didn't ask Paley for specific numbers (he just said lots of calories). However there was another Quadrilateral patient there. He said that Paley/Robbins said the number was about 2k calories per break, so 8k calories for him.
So how many pills of vitamin D3 would a CLL patient need per day? About 3 for bilateral? (Logic being one for normal intake, then one pill for each bone break.)
It depends on the patient. I was deficient in Vitamin D (which impacts consolidation). I was taking 15000 IU per day (3 pills), as per prescription.
That being said, my consolidation was good 
.
Quote from: Purushrottam on March 03, 2018, 12:19:47 AMI didn't ask Paley for specific numbers (he just said lots of calories). However there was another Quadrilateral patient there. He said that Paley/Robbins said the number was about 2k calories per break, so 8k calories for him.
Interesting. So two Paley/Robbins patients (Puru and myself; I've also asked specifically) weren't told any specifics about calories, but another patient was told 2000 calories per bone break.
Goes to show that you need to fend for yourself even with the best doctors.
Remember - you are the one single person on Earth most invested in your CLL success. Don't just "let the doctors do their job". While you may be "in safe hands", if you're serious about what you're doing, take matters into your own hands.
I think you are misinterpreting. I didn't ask for specific calories. Now that I think about it, they may have told me 2k calories per break as well. I just don't remember too well as it was in September.
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