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Posted on May 23, 2021, 8:25 am
#61

SirStretchAlot
Is the Betzbone inserted through the knee or the greater trochander?

I'm sorry to hear about all these problems. Hope you'll get well very soon!

I don't want to offend this doctor but could it be that he is too old for performing this surgery?

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Posted on May 23, 2021, 8:30 am
#62

Quote from: SirStretchAlot on May 23, 2021, 06:23:54 AM
Day 20
After some research, it is clear that I have Trendelenburg's Gait. [...]

From loose screws, to slanted x-rays, to painful clicking, and degenerated hip abductors, I am guessing at this point, there must be complications with my right leg during surgery that Dr Betz has not told me about.

Im' really sorry to hear you have complications. I am not sure what kind of research you did, but I'd wait until one or two doctors confirm your guess before jumping to conclusions Bilateral Femur Lengthening Dairy: May 2021 with Dr Betz and Betzbone

The best of luck for your recovery!

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Posted on May 24, 2021, 9:55 pm
#63

Limbfan2020
Trochanter. I can't imagine any extendable nails being inserted through the knee. There would be little room to grind through the bone marrow necessary for insertion.
I heard from a fellow patient who had his nail removed, that Dr Betz is much less energetic now after his back surgery, almost a different person. He still seems lively to me, but forgetting to screw in a nail, is still quite a large oversight.

DonBones
My London orthopedic doctor and physio just confirmed severe Trendelenburg. My hip line is tilted up towards the left because my right hip is extremely weak. They could not ascertain whether it was nerve damage, but hypothesized my right leg likely suffered more trauma (tissue damage/bleeding) during the surgery compared to my left. The injuries and pain are likely blocking the nerve signals from reaching the hip muscle. Regardless, intense physiotherapy is the only way to recover any functionality.

Day21
Clicking is still extremely painful on my right leg. The twisting is also causing chronic knee pain. At this point, I am just taking Ibuprofen and toughing through the pain. I read another diary where the pain suddenly improved after 1.8cm. I'm near there now, so I hope it happens to me soon too. Please if you're using Dr Betz, reconsider Betzbone. There are patients who have more painful clicking than I do.

Wide legs are also very apparent now, and becoming difficult to surpress. Standing with my legs together is stressful on my it band (hip to knee). For most people, it comes after 2.5-3cm. It came much earlier for me even though I am quite active (stretching+gym+>30min of walking per day). The good news is that I have yet to see any signs of duckass.

I may not be the most successful of patients, but all that means is if I can do it, you guys can definitely excel. Bilateral Femur Lengthening Dairy: May 2021 with Dr Betz and Betzbone

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Posted on May 24, 2021, 10:43 pm
#64

For the wide legs, I also developed them quite early on, just before 2cm. My legs were quite wide even while walking with crutches and I was told that it won't resolve until after clicking stops, however once I got out of quarantine in my home country and started walking a lot more, my wide legs have closed in significantly while walking with crutches, the point where they don't really look that wide anymore. They are still wide when walking unassisted unfortunately but I assume that's because I don't walk as much unassisted as I do with the crutches.

So my advice would be to walk as much as you can tolerate on the crutches each day and your wide legs should hopefully improve. Duck ass for me came after 3cm  Bilateral Femur Lengthening Dairy: May 2021 with Dr Betz and Betzbone

Good luck man!

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Posted on May 25, 2021, 4:52 am
#65

Did you contact Dr. Bentz on all the surgery issues?
Did he willing to resolve the issues with you?
It was really disturbing to hear ths mistakes he made.
....may be he is too old for the job.

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Posted on May 25, 2021, 1:59 pm
#66

Hey man, I’m doing LON and I’m clicking as well. Holy   it hurt dramatically the first day. Now the pain has subsided a very, very little bit. Whenever they rod shifts in my bone it’s super dramatic but not altogether painful lost of the times.

I heard it gets easier after another cm or so of lengthening. Then nerve pain kicks in 🤪

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Posted on May 26, 2021, 5:55 am
#67

RB
It's nice to know that I'm not the only one with early onset wide legs, haha. Yeah, I used to walk at least 20min daily pre-surgery, which at my post-surgery speed is equivalent to 40min of walking. I'll try to get to 60min!
Dang, I thought maybe duckass wouldn't come for me. Bilateral Femur Lengthening Dairy: May 2021 with Dr Betz and Betzbone

leoth2
Yeah, I've emailed Yvonne and I should be getting a response back from Dr Betz soon. I think screws-related complications (loosening or breaking) is fairly common. They are more fragile than the nail.

PerfectBody
Oh wow, I can't describe how much I sympathize with fellow patients who suffer from clicking pain. Dr Betz and Daniela are nonchalant about clicking pains. I brought it up with them several times and they offered no solution. I even recall them re-assuring me pre-op that clicking should be painless or minimally painful. This is one part of the entire process which I felt lied to.

Day 23
I managed to do all the clicking in 1 hour today. The key is to fill the tub with very hot -- almost boiling water, and sink your entire leg into it. The first 5 clicks were almost painless. The next 5 were slightly painful. The next 5 were painful. The last 5 was as painful as if I were dry. This happens as the water in the tub cools. Make sure to also time your clicking within 1-2 hours of taking your pain meds. They are most effective then.

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Posted on May 26, 2021, 8:26 am
#68

Quote from: SirStretchAlot on May 26, 2021, 05:55:06 AMRB
It's nice to know that I'm not the only one with early onset wide legs, haha. Yeah, I used to walk at least 20min daily pre-surgery, which at my post-surgery speed is equivalent to 40min of walking. I'll try to get to 60min!
Dang, I thought maybe duckass wouldn't come for me. Bilateral Femur Lengthening Dairy: May 2021 with Dr Betz and Betzbone

leoth2
Yeah, I've emailed Yvonne and I should be getting a response back from Dr Betz soon. I think screws-related complications (loosening or breaking) is fairly common. They are more fragile than the nail.

PerfectBody
Oh wow, I can't describe how much I sympathize with fellow patients who suffer from clicking pain. Dr Betz and Daniela are nonchalant about clicking pains. I brought it up with them several times and they offered no solution. I even recall them re-assuring me pre-op that clicking should be painless or minimally painful. This is one part of the entire process which I felt lied to.

Day 23
I managed to do all the clicking in 1 hour today. The key is to fill the tub with very hot -- almost boiling water, and sink your entire leg into it. The first 5 clicks were almost painless. The next 5 were slightly painful. The next 5 were painful. The last 5 was as painful as if I were dry. This happens as the water in the tub cools. Make sure to also time your clicking within 1-2 hours of taking your pain meds. They are most effective then.

Seriously?

They told me during the initial phone call and the consultation that clicking may be extremely painful or not painful at all, with most people being somewhere in between. Should the pain become too much to bear, they would use local anaesthesia, they said.

Usually when I was distraught for one reason or another and argued with doctors, in the end I had a few regrets, too. If you want my advice, try and maintain a good accord with Yvonne and Betz. At the very least you want them to feel like they want to help you.

In any case, I think I can see between the lines that you are making progress, which is great. The best of luck for the next few days.

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Posted on May 26, 2021, 8:42 am
#69

"Usually when I was distraught for one reason or another and argued with doctors, in the end I had a few regrets, too. If you want my advice, try and maintain a good accord with Yvonne and Betz. At the very least you want them to feel like they want to help you."
Great advice, should be applied everywhere.

On another note, What made you choose Betz if I might ask? I am considering options and I think I will go with him (initial plan was stryde).
No need to answer if you don't feel comfortable by the way.

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Posted on May 26, 2021, 11:03 am
#70

Clicking update: there's not a ton of pain now, it just bothers the   out of me. it's a super dramatic+uncomfortable sensation that shoots through your bones.

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