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Bilateral Femur with Dr. Paley 11/2022

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hippo60
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Posts: 156
Joined: Oct 2022
Posted on Feb 2, 2023, 5:48 pm
#101
Quote from: erenyeager1 on February 02, 2023, 05:48:01 AMI don’t know how my pain got better. My bet would be that I am taking more gaba now versus at 4 cm I was not taking gaba. I inherited a foam roller from another patient and it’s really useful.

Got it! Do you use the foam roller for both your quads and hamstring?
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erenyeager1
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Posted on Feb 2, 2023, 7:32 pm
#102
Quote from: hippo60 on February 02, 2023, 05:48:39 PMGot it! Do you use the foam roller for both your quads and hamstring?

I am a little scared to roll on my femur, since PTs never done that to me. I just use it to do lower leg raises. Put it under my knees and do lower leg raises.
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hippo60
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Posted on Feb 2, 2023, 8:01 pm
#103
Quote from: erenyeager1 on February 02, 2023, 07:32:02 PMI am a little scared to roll on my femur, since PTs never done that to me. I just use it to do lower leg raises. Put it under my knees and do lower leg raises.

Got it, I was told it's ok so thought you're doing it as well..
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erenyeager1
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Joined: Sep 2022
Posted on Feb 5, 2023, 9:38 pm
#104
Day 70:

I will be 6.3 cm at the end of today. Only 3 weeks away from leaving here, which feels unreal to me. 3 weeks from today I will be back in my apartment in the northeast. I regret bringing my projector and my PlayStation which I hardly used. Anything you can do while lying down is much better because sitting for a long time will bring pain. Yesterday I saw L (one of my caregiver before I become independent) wheeling a new patient into the hotel. He is just like me in early December. I am now the veteran here, since they pause surgery for a while as Paley was traveling everywhere.

To be honest, everything is easier than before. Nerve pain is much less frequent and less intense (thanks to gaba), and that’s the only pain I get. I am taking 5mg of oxy in day time. Everything is going very smoothly.

The only time I saw Paley in the whole process is in the pre-op consultation. I will be seeing Robbins tomorrow and the appointment after that one will be my final one in WPB.
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hippo60
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Posted on Feb 5, 2023, 11:55 pm
#105
Sounds amazing, so jealous Bilateral Femur with Dr. Paley 11/2022
Glad everything is better, hopefully it stays that way till you're done.

Btw, you didn't see Paley pre surgery as well?
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erenyeager1
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Posted on Feb 6, 2023, 2:22 am
#106
Thanks man! Same to you. So I saw him on Monday afternoon. My surgery was Tuesday 5 am. I didn’t see if pre-op. I didn’t see Robbins either. The nurses shaved my legs, gave me some stuff through IV, and the anesthesiologist put me to sleep. The last I remember was talking to a nurse when they wheel me out to the operation room. Then I woke up around noon. Robbins checked on me in the afternoon and told me that he did one leg and Paley did the other.
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erenyeager1
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Posted on Feb 9, 2023, 8:30 pm
#107
Day 73:

Everything going well. PTs are confident that I can go to 8 cm at this point. Only part that’s very tight is my abductor, and they are not that bad. Robbins don’t care about abductors. He only cares if I can get my knees straight and legs bent over 90 degrees. Also met a patient in person who posted on this thread saying he’s doing surgery on 2/2/2023. New patients are coming in as surgeries are back on schedule.
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hippo60
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Posted on Feb 10, 2023, 7:28 pm
#108
That's amazing!! You're almost there Bilateral Femur with Dr. Paley 11/2022
Other than your abductor - you're not really tight at all? Your quads / hamstring are still very flexible?
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erenyeager1
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Posted on Feb 13, 2023, 7:28 am
#109
Quote from: hippo60 on February 10, 2023, 07:28:27 PMThat's amazing!! You're almost there Bilateral Femur with Dr. Paley 11/2022
Other than your abductor - you're not really tight at all? Your quads / hamstring are still very flexible?

Thanks! I wouldn’t say they are very flexible. They are about the same level of tightness as 5 cm, slighter than when I was at 3 cm. Definitely much tighter compared to pre-surgery but I tried to maintain them at the same level. Abductor is getting tight but Robbins and PAs don’t care about it as much. The two major things they look for is straight knee and knee bent over 90 degrees. If you can’t any one of these two, they may stop you from lengthening for a while.

Also I just hit 70 mm right before typing this. I am on count down for real.
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hippo60
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Posted on Feb 13, 2023, 2:13 pm
#110
Quote from: erenyeager1 on February 13, 2023, 07:28:46 AMThanks! I wouldn’t say they are very flexible. They are about the same level of tightness as 5 cm, slighter than when I was at 3 cm. Definitely much tighter compared to pre-surgery but I tried to maintain them at the same level. Abductor is getting tight but Robbins and PAs don’t care about it as much. The two major things they look for is straight knee and knee bent over 90 degrees. If you can’t any one of these two, they may stop you from lengthening for a while.

Also I just hit 70 mm right before typing this. I am on count down for real.

That's awesome! So close!
What's your rate? 0.75mm a day?

And yeah I think Rozbruch cares pretty much about that as well, based on the tests he's doing each follow up.
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