Thanks for the update, your diary was very helpful, I am preparing for surgery with Dr Paley after the new stryde becomes available. Please keep updating and look forward to the day you remove your nails and fully recover.
Quote from: hippo60 on May 14, 2023, 09:30:44 PMThanks for sharing! Couple of questions for you 
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1. How much are you able to walk nonstop unassisted?
2. Are you sometimes using anything for help? (wheelchair/walker/cane etc)
3. Were you told to do strength exercises or anything else other than walking?
4. Do you still stretch a lot?
1. How much are you able to walk nonstop unassisted?
I walked about 3 miles the second day I got the email saying I can walk. Not sure if that's a good idea. I am walking wobbly though. My girlfriend says I look like I just bought high heels and wore them for the first time.
2. Are you sometimes using anything for help? (wheelchair/walker/cane etc)
No, I donated the crutches. I've never used them. I am keeping the walker and the wheelchair but not using them at all. I want to be as normal as possible. When I am tired I just sit down or lean against the wall. I would keep the walker until I take out the rods. I heard I'd need them again after rod removing surgery for a few days.
3. Were you told to do strength exercises or anything else other than walking?
I was told not to do any exercise. I guess upper body is okay since I was told it is okay even during the lengthening. Robbins told me about 1 month away from jogging. I can bend down, squat down and pick up light objects.
4. Do you still stretch a lot?
Sadly no. I should be though... Work has been busy.
Quote from: Yau on May 14, 2023, 11:52:08 PMGreat Look! Your bones are healing well. How about your gait? What did u do to improve your walking gait?
Gait is not best. I am trying to walk straight lines. I will be getting PT soon though. I am moving this week so everything's been hectic.
Quote from: TheDream on May 15, 2023, 12:57:42 AMThe aquatic rehab / PT sounds really good and interesting. How often did you end up doing it, and is it something you can still do back home?
Once a week. It is just execersing in a pool tbh. You can do it if you have access to a pool where the water level is at least the midpoint between your chest and waist.
Quote from: youyin12 on May 15, 2023, 01:01:43 AMThanks for the update, your diary was very helpful, I am preparing for surgery with Dr Paley after the new stryde becomes available. Please keep updating and look forward to the day you remove your nails and fully recover.
Good luck! The new stryde is probably going to take a while but yeah being able to walk during lengthening would make life much easier. I'd say don't wait forever though. Set a cutoff time, like if the nail doesn't come out by 2026 I am going to do it. I think being young is just as important. I was thinking about the same thing but I also wouldn't want to be the guinea pig for the new nail. The stryde problem was only discovered a few years later.
Quote from: erenyeager1 on May 17, 2023, 08:01:20 PM1. How much are you able to walk nonstop unassisted?
I walked about 3 miles the second day I got the email saying I can walk. Not sure if that's a good idea. I am walking wobbly though. My girlfriend says I look like I just bought high heels and wore them for the first time.
3. Were you told to do strength exercises or anything else other than walking?
I was told not to do any exercise. I guess upper body is okay since I was told it is okay even during the lengthening. Robbins told me about 1 month away from jogging. I can bend down, squat down and pick up light objects.
Wow 3 miles is quite a lot! Were you walking with the walker anywhere near that before? I thought you only walked for 10 minutes or so.
By exercise I don't necessarily mean weightlifting but also air squats. Stuff like the hip abduction machine can help you build those muscles so you're more stabilized when walking. You were told not to do any of that? Sounds a bit strange if you're able to walk unassisted...
Was it hard being able to crouch / squat down initially? I just moved to the walker and it's a bit scary 
Hey ErenYeager1, hope you're doing well. Would you be able to answer following questions for me?
1. Is there any place you would recommend the aquatic therapy near the Paley Institute if they dont already have one by now?
2. You also mentioned saving oxy for towards the end of the journey. Based on your experience how much did you need saved to get to the full 8 cm? Did you have to manage it in a way where you endured pain for the first three weeks of using less to save more towards the end or were you given enough to get you through the first 2-3 weeks of lengthening and could use some as back up for the last 6-8 cm when you really needed it?
3. You mentioned it wasn't worth it to bring your ps with you. I was considering bringing my ps5 as well when i get this surgery done at the Paley Institute as well. Do you believe that is a waste of time? Like there wont be anytime to play it or would it be worth bringing it just in case you do find the time or would it just be an unnecessary distraction or would a distraction be good? I get the answer will be different for everyone but would like to hear it from your perspective. Thanks in advance.
Quote from: hippo60 on May 17, 2023, 08:14:36 PMWow 3 miles is quite a lot! Were you walking with the walker anywhere near that before? I thought you only walked for 10 minutes or so.
By exercise I don't necessarily mean weightlifting but also air squats. Stuff like the hip abduction machine can help you build those muscles so you're more stabilized when walking. You were told not to do any of that? Sounds a bit strange if you're able to walk unassisted...
Was it hard being able to crouch / squat down initially? I just moved to the walker and it's a bit scary
The main problem with walker is that my upper body can't go that long. My palms and arms get really sore after like 10 minutes. Legs were not the limiting factor.
I didn't ask about specific exercises, so they didn't say yes but they didn't say no either... I think squatting and body weight exercises should be okay.
It is really hard to squat down. I feel like if I squat all the way down I can't stand up without pushing on things with my hands. It is part flexibility and part muscle strength. I hope it will improve over time.
Quote from: heightmatrix on May 17, 2023, 10:28:23 PMHey ErenYeager1, hope you're doing well. Would you be able to answer following questions for me?
1. Is there any place you would recommend the aquatic therapy near the Paley Institute if they dont already have one by now?
2. You also mentioned saving oxy for towards the end of the journey. Based on your experience how much did you need saved to get to the full 8 cm? Did you have to manage it in a way where you endured pain for the first three weeks of using less to save more towards the end or were you given enough to get you through the first 2-3 weeks of lengthening and could use some as back up for the last 6-8 cm when you really needed it?
3. You mentioned it wasn't worth it to bring your ps with you. I was considering bringing my ps5 as well when i get this surgery done at the Paley Institute as well. Do you believe that is a waste of time? Like there wont be anytime to play it or would it be worth bringing it just in case you do find the time or would it just be an unnecessary distraction or would a distraction be good? I get the answer will be different for everyone but would like to hear it from your perspective. Thanks in advance.
1. Paley is building one and before that they are renting one. I'd go with their pool. Otherwise, just use the hotel pool, as long as your wounds are okay.
2. My management was not good. I had 20 left at the end that I had to medically dispose (basically throwing them away safely). I should've taken more in the beginning where I was kinda of budgeting. General rule - don't have an empty bottle before you are discharged. They won't give you more of this. The mere presence of oxy makes me feel better because I have a backup. Be careful of addiction though. I had no problem but it is different for everyone.
3. Bring a switch or a steam deck, or anything you can lie down to play. I had tons of time to kill but I didn't want to sit at all because if you are doing femur sitting is not going to be comfortable for you. I heard playstation has some sort of remote play where you can have the machine up running and stream it to an iphone or something? Not sure. But definitely you would want to lie down for comfort. I tried using a projector but it was too chaotic. Cable management with these things while you are on walker is a nightmare. You can't really bend down, you see, which makes it very difficult to manage the cables on the ground.
Quote from: erenyeager1 on May 17, 2023, 11:56:31 PMIt is really hard to squat down. I feel like if I squat all the way down I can't stand up without pushing on things with my hands. It is part flexibility and part muscle strength. I hope it will improve over time.
Right?? It's rough. I think it'll improve but you don't wanna specifically work on it? I imagine it'll speed things up...
Do you think less lengthening would speed up recovery and preserve more athleticism? For example, 5-6cm on femurs.
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