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Posted on Jan 5, 2023, 7:53 am
#31
So in 2 weeks you gained 1cm.

2cm/month x 4 months = your 8cm goal

Is this correct?
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Posted on Jan 5, 2023, 11:36 am
#32
How much stretching and exercises do you have to do in your own time after having the therapist perform your daily sessions?
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Posted on Jan 5, 2023, 12:49 pm
#33
Quote from: erenyeager1 on January 05, 2023, 03:54:05 AMHi stretched! When I woke up after surgery, because the anesthesia is still there, I didn’t feel any pain, just legs are heavy. Then anesthesia goes away in a few hours maybe a day. Then they give you oxycodone 5mg every 8 hours or so for a few days. The pain level was low like 2 for the first 2 days. Then it starts to go higher to like 4-5 for last two days in the hospital mostly because they stop giving me oxycodone and switched to a different pain killer. From time to time there is like a 1-sec level 7-8 pain, but that’s like once an hour or so. The surgical pain remained like this for two weeks, then it slowly goes away. For most people, the surgical pain should be gone in around 3 weeks. Looking back, the pain wasn’t that bad. It was manageable for 99% the time, and most people have similar experience. Apparently, tibia hurts less than femur for most people. I didn’t do tibia but I talked to a few who did both femur and tibia, and they say that the pain after femur surgery is much worse than that of the tibia surgery.

After surgical pain is gone, you probably have already lengthened like 1.x cm. Soon, depends on your flexibility, you are going to get muscle tightness. Then some people get nerve pain. If you get nerve pain, it’s probably going to stay for the entire lengthening period. The only way to delay or prevent this is by stretching religiously. It is a painful process too, but it’s a different kind of pain than the surgical pain. And this pain you can experience pre surgery. Just find a physical therapist and ask them to stretch you real hard. As of now for me, 5 weeks post op, I feel 0-1 pain for the most part. The only pain in my life is when I do stretches. Hopefully I don’t get nerve pain. Most people get it between 2 to 6 cm lengthened, but I’ve met a few who never got it, but they are either very flexible to begin with or stretched really hard.

Also my overall energy level was low until recently, like the first few weeks I am always super tired everyday. It slowly gets better as time goes on.

Do you think I can do remote software engineering work or is it impossible to get into the right mindset following surgery?
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Posted on Jan 5, 2023, 1:55 pm
#34
Quote from: BrentL on January 05, 2023, 07:53:52 AMSo in 2 weeks you gained 1cm.

2cm/month x 4 months = your 8cm goal

Is this correct?

The first week after surgery you don’t lengthen. In surgery they put 1 mm to test the rods. So you have 79 mm to go. Usually you lengthen 1mm every day. So that’s 7+79=86 days. Usually people stay for one more week afterwards for extra PT and to see the doctor for X ray one more time, so I’d say around 93 days is a good estimate, a little over 3 months.
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Posted on Jan 5, 2023, 2:04 pm
#35
Quote from: the188cmdream on January 05, 2023, 12:49:18 PMDo you think I can do remote software engineering work or is it impossible to get into the right mindset following surgery?

Probably not full time 37 hours/week but maybe something like 10-15 hours/week.
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Posted on Jan 5, 2023, 2:10 pm
#36
Erenyeager have you heard any rumors of new LL technology while at Paley’s?
His group tend to be very advanced and come up with new methods. I remember Paley talking in an interview on YouTube about a device that could lengthen more slowly but over an entire day instead of in jumps, but haven’t heard anything since.
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Posted on Jan 5, 2023, 2:27 pm
#37
Quote from: Ismail6024 on January 05, 2023, 11:36:11 AMHow much stretching and exercises do you have to do in your own time after having the therapist perform your daily sessions?

I try to do once before each turn (lengthening). So everyday I do 4 turns, each turn is 0.25 mm. Usually I do a turn after coming back from PT. So the rest 3 times I do it at home but it’s been difficult to do 3 recently since I start working. For each exercise, I just do whatever I do at the PT minus some moves so usually it’s 30-40 minutes each hotel session by myself, assisted by my dad. It is nice to have someone with you so the PT can teach them how to help you stretch at home, which can be more effective than stretching just by yourself.

Quote from: the188cmdream on January 05, 2023, 12:49:18 PMDo you think I can do remote software engineering work or is it impossible to get into the right mindset following surgery?

Definitely not for the first 3 weeks post surgery. I probably could start working full time in week 4, but it was Christmas. Femur makes it difficult to sit down for a long time because your butt is gone and it’s quite uncomfortable to sit for a long time. I’ve been working full time for a few days now, and I know multiple other lengthening patients who do the same. Since my team is on the west coast, it lines up well - I go to PT in the morning and work from noon to 8 pm. I usually sit for an hour, stand up for a minute on the walker, then lie down for a few minutes. I also try to fit in 2 turns in my working time. It’s probably more difficult for me than other patients because I have a herniated disc at L5S1, but it wasn’t too bad. I even pulled an all-nighter writing grad school application yesterday🥲
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Posted on Jan 5, 2023, 2:32 pm
#38
Quote from: TheDream on January 05, 2023, 02:10:50 PMErenyeager have you heard any rumors of new LL technology while at Paley’s?
His group tend to be very advanced and come up with new methods. I remember Paley talking in an interview on YouTube about a device that could lengthen more slowly but over an entire day instead of in jumps, but haven’t heard anything since.

Haven’t heard of anything. All the lengthening patients I know, including a few who just had surgery recently, have the precice 2.2 rods. I do see other lengthening devices like externals in PT but they are not for LL. The jumps (.25 mm turns) work fine for me. It’s never been painful, though slightly uncomfortable sometimes.
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Posted on Jan 5, 2023, 8:23 pm
#39
Some advice is to get a professional physical therapist. 95% won’t do the proper technique and even if you know it, you will never push yourself as much as someone else doing it. My hamstrings got really tight during 7-8cm mark and it was terribly painful to straighten them out flat. My wife would do it but she would feel bad cause I’d be in pain. My PT I ended using (insurance covered) had zero regard for my feelings and made me tough it out. It sucked but if not for them I would have been stuck with a bent leg
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Posted on Jan 5, 2023, 9:49 pm
#40
Quote from: erenyeager1 on January 05, 2023, 02:32:24 PMHaven’t heard of anything. All the lengthening patients I know, including a few who just had surgery recently, have the precice 2.2 rods. I do see other lengthening devices like externals in PT but they are not for LL. The jumps (.25 mm turns) work fine for me. It’s never been painful, though slightly uncomfortable sometimes.

I think the idea is that if you had a graph over the pressure exerted over time on the soft tissue from the current method you’d see jumps from the .25 mm steps, and then like a slow drop from the tissue lengthening. If one could control this rise in pressure from the lengthening in a continous manner then it could simulate the natural process better.

Anyway, thanks for your reply and best of luck with your journey. Wishing you good fortune, and you are in the best of hands so I’m sure you’ll do well.
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